Angela

As an infant in the early 80’s I was diagnosed with club foot and my parents were told I would need to wear a metal brace for my feet for the first year of my life. My grandmother tells me that when I had to wear this metal brace every night I would always cry myself to sleep.

It wasn’t until i was three years old and wanted ice skates for my birthday that my parents realized this was something else. I was unable to stand on my ice skates. I couldn’t do it, no matter how hard I tried I was not able to stay up. My parents to me back to the doctor and I met with surgeons who recommended that I get surgery to correct misdiagnosed hip dysplasia.

So I had the surgery at age 4. There was traction and body casts, scars, and lots of ice cream from the good nurses at Vancouver Children’s hospital.

The last time I had a visit with a surgeon regarding my hip was when I was 10 years old. I have ongoing discomfort and pain and the surgeon told me there was nothing that can be done. So I stopped complaining and deal with the pain in silence.

I have a scar that stretches from my upper hip to my groin. And as an adult in my early 30’s I still suffer from discomfort and pain, it is increasingly getting worse and sometimes I have difficulty walking. My hip will give out like it is not strong enough to hold me up.

You should know that my hip has never stopped me from being active though. Through perseverance I played sports in elementary and high school, I have been in kick boxing, as well as tai-kwan-do as an adult, and I am still healthy and active to this day. I think one day I may have to go for further surgery to deal with my hip issues. Is there anyone else out there with a similar story?




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  1. Rachel says:

    My story isn’t all that similar, aside from issues lasting far past recommended surgery, and that same scar (among others, 6 surgeries all told).

    I’m 28 now, and haven’t seen a surgeon since my last check up at 18. I’ve had remarkable luck with the Feldenkrais Method of Somatic Education, which has taught me how to use my hips in a healthy way despite deformities, and will hopefully keep me out of surgery for another 20 years at least.

    I wish you the best of luck, and hope you can break your pain silence soon. There are options out there besides surgery.

  2. Joey says:

    I am 36 i didn’t know i had hip dysplasia till i was 25 when i was complaining to doctors about pain. I had surgery on my left hip. I had surgery at age 27 on my left hip. i also have dysplasia in my right hip it doesn’t hurt as much.

    I am now starting to get more pain in that hip. I just had a MRI on friday awaiting to hear from my surgeon about if i need surgery for my hip they think its a labrum is ripped or torn. i am getting the same pain in the groin. it been getting pretty bad lately. I am seeing Dr Sponceller did my surgery @ Johns Hopkins.

    I am also active adult also i longboard skateboard and snowboard still..
    My doctors told me i can do anything i wont i had no limitations after i healed. wish you all luck i am living with it so far..

    Joey

  3. Kelli says:

    I am 33 and was diagnosed with congenital hip dysplasia of the left hip when I was 6 months old. I did not have surgery at this time but was in traction and then a body cast for 6 months. I had surgery when I was 12-years-old to slow the growth of my right leg because it was about 3/4 inch longer than my left (the one with dysplasia). I also have been very active in sports, exercise, etc since childhood.

    I had my first child a year ago and my hip actually felt great during pregnancy (everything looses during pregnancy so that actually helped me). I was able to deliver naturally and had no problems with my hip even though my range of movement is very minimal in my left hip.

    Post baby is a different story. At first it was fine, but when my son was about 5-6 months, I started experiencing more and consistent pain. I continued to stay really active (spin, hot yoga, kickboxing, etc) but I constantly have pain or feel uncomfortable, even when sitting. I do notice when I wear any kind of shoe that doesn’t have great support (flip-flops, cute flats, heals, etc), I am feeling it for days.

    I have been followed by orthopedics at Mayo Clinic in Rochester, MN. They have always told me at some point I will need a hip replacement. They’ve said I need to wait as long as possible and my goal has always been at least 40, but I’m not sure I’ll make it that long.

    Good luck to you!

  4. Michelle N says:

    I am 48 and was diagnosed with severe club feet and dislocated/dysplasia in both hips. I have had over 14 surgeries on my feet/hips. I have had 3 body casts, many hospitalizations with traction. I have many scars, one over 15 inches long and two inches wide. I always said that surgeon did not go to sewing class :-), as my other scars are thin lines. I have been a patient of Gillette Specialty Care in Minnesota since 6 months of age, and still go to Gillette Lifetime clinic. My parents and I have been extremely happy with all of the care received through Gillette.

    I never let that hold me back in school sports either. I was involved in volleyball, swimming, softball and gymnastics until about 8th grade (when I became more aware of my appearance). I may have quit sports, but never missed an opportunity to try new things, including skiing, and noncompetative sports.

    I had my first child in 1990 with natural delivery, and felt great during pregnancy and breast feeding. So I breast feed as long as possible. I had only occasional pain and migraines before and after.

    I started to have constant pain in my left hip and had a periacetabular osteotomy in 1993. I had my second child in 1995. The hip surgeon said I could have a natural delivery, but I did not want to disturb the great response I had from the surgery, so I opted for a C-Section. I was pain free for 20 years after the PAO. One of the reasons it lasted that long because I was not overweight. I had just “high-fived” the surgeon in the hallway for our great luck – I work in the same hospital in the medical field.

    Two months later, I was an “empty-nester”, and started to work out at the gym, and do more activities I enjoyed. I am sorry to say that now I am having left hip pain, I need to have a hip replacement with bone grafting anteriorly. Also my Ischium is fractured and pebble looking in scar tissue. I was always wondering why riding a bike felt uneven. I want to push it out as far as possible, but I am having trouble performing my job and enjoying life. I have seen my 3D CT and it is amazing to see your hip that way. For some reason, it is harder to make a decision this time? I am guessing I will have it done this winter (2014-15). I have been researching a lot on the Internet regarding the procedure.

  5. Rita August 29,2014 says:

    I was born butt first with double dislocated hip dysplasia & no sockets with a limp cause of a leg shorter the the other. At age 2 was told sockets formed from a muscle mass in the wrong position. Had 2 kids natural birth with no deformity. Am now age 66. Many falls loosing balance over the past few years causing clots around hips(on cumindin) including arthritis. Now debating for total double hip/socket replacement surgery. My lower back pain is due to flatten discs. Too many risks involved. Was told it gets worse as I get older. Anyone out there my age group gone through with the surgery?

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