Christine’s Story

Hello! I am so happy to see this website. I am 44 years old. I was born with hip dysplasia. It was not caught until I was 10 years old. I have always had pain in my hips and walked funny. My mom took me to the doctor. and they said I need to have bilateral pelvic osteotomy. I missed the whole 5th grade. I was in a body cast, then a wheel chair and then crutches. they did the right one first then 6 months later the left. I was so young and had no clue of what I had. I returned to school in the 6th grade. I was told by my doctor not to run on cement, gain a lot of weight and that I would have to have my children c-section. When you are 11 you really do care about that stuff.

I lived my life had three children. At 32 my hips started to bother me. I had not been to an orthopedic in all of those years (big mistake and shame on my mom) lol. They tried cortisone injection, but the pain was too much. My hips had brought me down once again. I had bilateral hip resurfacing in 2000 (right) 2001 (left). Due to the surgery my right leg was longer then my left. It took me 2 year to recover from that surgery.

Once again going through life and then in 2010 I start to have a very bad pain in my groin on my right side. I knew something was wrong. I had moved at this time so I had to find a new orthopedic. He did testing and came up with nothing. He told me he did not see any reason for revision. I got a second opinion. This doctor ordered me a cat scan. He told me that the prosthetic was breaking down and was deteriorating my bone around the prosthetic. He told me I had to have revision on my left and he said the right one was the same. I had my left hip done April 2011. Once again my hips had brought me down. I had the right one done Dec. 2011. I had to quit my job after this last surgery. My legs are weak and I suffered a pelvic fracture in March of 2012.

I am praying that these hips will jump back up and take some control. :) This has been a very long journey. A journey that I don’t want other children to have to go through. I will spread the awareness. I thank you for this site I don’t feel so alone in this. I was beginning to feel like a wimp after having to quit my job. lol Thank you




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  1. Lori says:

    Thank you so much for sharing your story. I am 42 and I have chronic arthristis in both hips. I took off of work to raise my three daughters. I had them naturally. I never knew or had any idea about c-section,cement floors.I never had follow up visits. I don’t know what my mother was told, so its hard to put blame. I am now facing hip replacements. I am having trouble coming up with the funds. I have not worked outside of the home for 17 years. I am trying to find out if children born with hip dysplasia are recognized as disabled from the social security office.I have struggled many years with pain. Any info. would be greatly appriciated.

  2. Angela says:

    Hi Christine,
    thank you for sharing your experience of dysplasia. I am 44 next birthday and have only been diagnosed with dysplasia in both hips for 6 months now. I have had an MRI and am awaiting results and further discussions with my specialist on the best type of surgery to have. Fortunately for me I have just been made redundant and will not have to worry about work for the time being. Trust me I do not think anyone will consider you a wimp after all you have had to endure. Thanks again xx

  3. christine says:

    Hello! This is Christine again with an update. This new journey of mine had be painful, but I have grown in many ways. I have lost weight and I am trying to be as active and I can. I am also starting a new part time job. The job is very few hours, but it is close to home. I pray that Lori and Angela, are both doing good. It is hard when the body is giving you a hard time, but the mind is still very strong. I am going for it and pray that I am able to do my new job. In this case mind over body. Christine :)

  4. Sam uk says:

    I have severe ddh and sublaxed joint with flattened femur, don’t want surgery until I’m 50 (40 now) I struggle every day , anyone else find this so bad you can’t work, shop, walk, bath? Only shower…..bending hard and even sitting too long hurts…

  5. Christine says:

    Hello Sam!! I know you want to wait to have the surgery, but quality of life is everything. I was scared to have my surgery, but had not one regret other then I wish I would have done it sooner. I do struggle still but not anything like I did. Hope you find some comfort in this and that if you have any questions of what the surgery is like from a pt view point let me know. Christine

  6. Jo says:

    Hi, I’m 32 and was diagnosed with acetabular dysplasia at 19. I’ve had two children (now aged 3yrs and 10 months). Two years ago I had my first steroid injection which lasted about 2 months. I was very fortunate to feel improvement during pregnancy and whilst breastfeeding (I now understand that to be due to the hormone relaxin). Now I have pretty much stopped breastfeeding my daughter I am starting to experience pain and reduced movement again. I am trying to get an appointment with a consultant again but for some reason they discharged me whilst I was pregnant. I feel beaten by this problem. I cannot see how I would cope with surgery and recover with such young children but it severely depresses me that I cannot run around and keep up with my kids. The thought of such major surgery scares me. It is refreshing to hear success stories, but I struggle to see light at the end of my tunnel! I am interested to hear what the recovery involves. I believe I would be looking at pelvic reconstruction.
    Thanks
    Jo

  7. Simone says:

    Hi There, I am 32 and found out only 6 months ago that I have DDH, I had to beg for an x ray, and am now booked for the PAO surgery on the 4th April. I delivered 2 children naturally they are now 10 and 7, I am really hoping that I am able to go back to work in at least 3 months, because I can’t afford not to. I am really nervous about this operation and the recovery. But I am looking forward to some degree of pain reduction post operatively. Thanks for sharing your story. Good Luck to all.

  8. Keitha says:

    Ladies,

    I am 34, was diagnosed with DDH in 2005 at the age of 26. (After years of misdiagnosis, unnecessary surgery, ect.) I had a PAO November 2005 and was told I could expect approx 10 more years on my natural hip. My recovery was rough and in the summer of 2006 I was back on crutches due to non-union of the ilium (I think it was). I had my son in 2008 and had to be induced because the increased weight on the hip had made the pain unbearable – and of course, no pain meds while prego. In 2009, I had total hip replacement. Afterwards the Dr. told me I had NO cartilage left and a part of my femur had broken off due to avascular necrosis of the femoral head. Since then, I have had a daughter, all-natural without pain meds or any assistance (hey, I was very familiar with pain). She was born healthy and happy. Thus far, my hip replacement has been a wonderful decision. Quality of life is everything. I can play and run around with my kids now and even fulfilled a dream of mine last summer and was part of an archaeological dig! There is a light at the end of the tunnel. The only thing I struggle with now is the knowledge that, considering my age, I will probably need at least one more hip replacement in my lifetime. Trying to work through that disappointment and the fear my yesteryears will be spent in a wheelchair, but we’ll have to burn that bridge when we get there.

  9. Christine says:

    Quality of life is everything!!! Since I wrote my first story I have lost 25 pounds and I will be losing more. So far I am walking better and hope to be back to work soon. I was depressed at first but thank the Lord I am back. I KNOW that this has made me who I am today. I just love hearing everyone’s story’s of triumph. God bless and keep on going!!!!!

  10. Meggan says:

    I am thankful to have stumbled upon this site and your stories. My name is Meggan. Presently, 28 years old. The story is diagnoses of right congenital hip dysplasia at age 4 (the doctor should have caught it at birth as it is genetic and my eldest sister had the same condition).

    I had hip reconstruction surgery at age 5 years and was followed by an orthopaedic surgeon throughout development (until age 16, at which time they “released” me, commenting that it would only be a matter of time before I experienced difficulty with right hip functioning again). Throughout development, I have been able to strengthen my hip with Pilates and abduction exercises; however, began experiencing increasing discomfort/irritation approximately six months ago. I was referred to a surgeon in Alberta, Canada (Dr. Panaro) who specializes in hip dysplasia. I had my first consult this morning and he said that pelvic osteotomy may be the only option to try to prevent further damage and preserve my hip for any length of time (likely, though, I will need a complete hip replacement as I get older).

    I am wondering if anyone has had this surgery and what their experience has been? I am fairly young and live an active lifestyle… the thought of not being able to hike up mountains might be enough to smother the fear of having my pelvis crushed…

    Displaced,

    Meggan

  11. Angele says:

    I am 33 and after a long history with my hip that goes back to my early teens, I have recently been told that I have developmental acetabular dysplasia, and just yesterday met with a surgeon that reccommends I get a PAO procedure. I feel as though it is the right thing to do given the information I have received and that it will postpone the total hip replacement but the idea of a surgery this big REALLY scares me!!! I am feeling really overwhelmed by this decision and feel like I have so many questions on what to expect after surgery with recovery and what I will be able to do and not do….

  12. Meggan says:

    Angele, I’m curious whether you had an MRI prior to your surgeon recommending the PAO surgery?

    M

  13. Angele says:

    Hi Meggan

    Yes, I did have an MRI about 18 months prior to my appointment with the current surgeon. It was requested by the surgeon I saw before him. My Xrays and MRI showed no signs of damage or osteoarthritis as of yet. Which is why the first surgeon recommended me to the current one, said I would be a good candidate for this surgery.

    Although, they have commented that since it was not a dye MRI, it is hard to confirm the no damage part and that when they go in for the PAO there is a high possibility that there may be labrum damage that would be repaired at the same time.

    My MRI was definitely not requested for this last appointment though, they looked at it because I mentioned that I brought it with me.

  14. Meggan says:

    Interesting. Do you mind if I ask if you are having any symptoms presently, and if so, what they are? (e.g., aching, pain, discomfort, or weakness in your hip?).

    The surgeon I am seeing is not overly optimistic that I will be a candidate for the PAO surgery as he thinks there may be too much wear to the cartilage at this stage. It’s hard to tell why he thinks this, but the impression I got is because I am having increased irritation in my right hip and the symptoms may indicate deterioration.

    I know you must be afraid, but it is wonderful that there is an alternative to complete hip replacement for you at your young age… I hope my surgeon will conclude that I am a good candidate for the PAO surgery as I would much prefer to keep my own hip as long as possible!

    Do you mind if I ask what region you live in? I’m curious to discover that this type of surgery may be more common in other countries than in Canada.

    Have you decided to have the surgery? Will you just need to have one hip done? When do you think you will have the surgery? I will be interested to follow your story =)

    M

  15. Angele says:

    I am writing a response to all your comments… do you want to continue discussing this on here? Would yo like to exchange email?

  16. Kathie says:

    I have had hip pain since I was in my late teens – mainly groin pain if I stood / walked for long periods. I always used to have to stop and sit for a couple of times when walking home. I saw my doctor who dismissed it as ‘growing pains’. I was diagnosed with hypermobile Ehlers Danlos when I was 19 which I believe is a contributory factor to dysplasia – plus I was a big (first) baby and my mum was tiny – also risk factors.

    I had my first child when I was 24 – a daughter, large baby, extended breech presentation, c-section delivery but born with both hips fully dislocated. She had to wear a craig splint from birth and was under a paediatric orthopeadic surgeon until she was 15 and then discharged. I subsequently had two further babies – both boys, both normal delivery and with no hip problems. fast forward to my mid thirties. I had changed career in my early twenties to avoid painful prolonged standing but the groin pain was still there and more intense and frequent.

    Age 35 I was diagnosed with bi-lateral dysplasia – at about the same time as my mum – who by this time was in her early 50’s with advanced arthritis. No treatment was offered – I was told to live with it but that he’d probably see me in the next ten years or so for bi-lateral hip replacements.

    Now at 50 I am having major problems with my right hip which, according to recent X-rays is severely subluxing out. My left hip also subluxing but not to the same degree. It seems I may have missed the boat for any hip preserving surgery (PAO). (I have also been diagnosed with a serious blood clotting disorder which complicates the decision.) Nevertheless, I am seeing Mr Marcus Bankes on 17th to confirm this. It seems that very few UK orthopeadic surgeons offer PAOs – certainly there is no one in my area who knows anything about the procedure and I am having to go to London for an assessment. In the absence of a PAO not sure which way to go. I really don’t want to have a hip replacement but I certainly cannot continue as I am. I have problems sleeping, can’t stand / walk very far and can no longer do stairs.

    Unfortunately, the blood disorder means I’m on long term warfarin so I’m unable to take anti-inflammatories either so pain control is becoming an issue.

  17. Angele says:

    Meggan,
    Sorry, I typed this all out last night, but apparently forgot to post it… oops!

    My current symptoms are low/moderate on a day to day basis where I don’t do much, although I am currently not really active at all. I used to play soccer, and played for years, but I had to quit about 6 years ago. This is when my hip was at its worse, excruciating pain after a game, it was so bad I would cry myself to sleep at night, so I decided that as much as I loved soccer it was time to give it up. This is when I should have put a push on getting answers for what was going on, but I didn’t.

    Over the last 6 years I have tried different things, being trained by personal trainers, running (actually completed a 10k!), kick boxing … but ended up quitting everything because it only caused me more aggravation, discomfort, and pain. To be completely honest, sometimes I wonder how much of the pain and discomfort I have just grown accustomed to …

    Since I am not active, right now my discomfort comes from doing things like a lot of walking – just going shopping for an afternoon will aggravate my hip, so the more walking the worse it gets. Also, just being on my feet and standing for long periods of time. And actually lounging for too long cause is to ache sooo much I end up shuffling and shifting in my seat. With all this type of aggravation and discomfort I get that feeling where I need to push out my hip or shift it to help it ‘click’, `clunk`, `snap`, or ‘pop’ …

    I have decided to go ahead with the surgery, it will be in the fall sometime. It is only the one hip that I need to have surgery on.

    I am in Ottawa, Ontario, although I am travelling to London, Ontario for this surgeon (about a 6 hour car ride).

    That is unfortunate that your surgeon has that opinion… is he making the assumption of damage without the MRI? I would wonder about that also…My understanding is that this surgery is best performed before damage, but if it’s only labrum damage that it can be repaired at the same time as PAO. I think once the damage is in the bone might be when it’s too late??. Does the surgeon you are seeing actually perform the surgery or would he refer you? Either way, if you are not happy with his diagnosis you could search for a second opinion. My surgeon made it clear to me that it was his recommendation but would not be insulted if I wanted to seek another opinion. There is actually a surgeon here in Ottawa that does the same surgery (he apparently has a very aggressive approach), but the one in London came by high recommendation, people travel to see him, one of his recent patients actually flew to him from Winnipeg. He also studied in Switzerland with Professor Ganz (who created the procedure), that`s reassuring! (But I guess it is possible that a lot or most of the surgeons who do this procedure have – lol)

    I feel like this is a subject I can go on and on about… if you would like to chat more please feel free to contact me by email (angelelanctot@hotmail.com)… I would love to hear about your story too!

  18. Meggan says:

    Hi Angele, I will contact you via email in the next day or so! I would love to chat more about your experiences =)

    M

  19. Margaret says:

    I have had severe groin pain and burning in both my hips for years . And to put a long story short I had in my late twenties had weaknesses in my legs . I had to stop working out as hard . Then I started a job with 3 floors of spiral stairs which I had to run up and down for years and all of a sudden I’d feel sick my legs felt heavy and they said was stress which it was not . But they took my tonsils out when I was 39.5 years and I did sound a lot better . But every time I got on a plain I felt week on the legs and balance was of and I feel Sick . Then at age 42 I had severe pain in my groin both sever sweating of the groin and I’d fel like passing out . And my hip would give way nd I’d limp . I was so burt out and tired and my doctor said it was all perimenapause . I Saidyes but something ealse iis Wong also I ad pain in my shoulders too . In 2009 I left Canada and my great job moved to Scotland by July I has severe pain in my joints all due to menapause . Then I could not get my left arm up for 8 months in 2010 could not get my right arm up . 2011 I fell right arm was worse. I had a breakdown and was told I did not have arthritis and it was all stress related . Dec 2012 I was told I had osteoarthrites . M work in Canada I ad to rotate a machine one nd half ours . I was a medical esthetician . Then I started getting groin pain again in both hips and I said I want an ex ray they said I have mild osteoarthritis hip dysplaysia I’m worried as im50 next year about my hips . My lgs are getting weaker and my octor will not let me see a hip specialist . Be us I’m not limping . I have lit muscle bulk and tone like iv aged 5 years in 3 years . Pills s not the answer I blame my canadain doctor for not doing an MRI on my hips and shoulders . The oboes back in Scotland thought I was jI nut . My life is dull be sad of ll hs I’m living on my savings . They say I go mild osteoarthritis on both my hips I sve not sen a peclist

  20. Margaret says:

    Now I’m told by an ex ray I have hip dysplaysia I’m 50 next year . The pain in groin is unreal worse when. Sit I’m old it fibromyalgia burn and hip sin to me means too much friction and friction is burning which erodes the joint

  21. Wendi says:

    Hi Kathie
    I have just been diagnosed with bilateral dysplasia. I am also due to see Marcus Bankes and wondered about your experience?

  22. Emily says:

    Hi Meggan and Angela,

    I’ve now had two PAO surgeries both on my left hip. One on my hip and pelvis at the age of 17 and the second on my femur at 20. I’m now 23. If you decide to go through with the surgery and wanted to speak about my experiences I’d be comfortable answering any questions you may have.

  23. Kathie says:

    Hi Wendy. I saw Marcus Banked at Guys and he confirmed that the (PAO) surgery needed to have been done much sooner. As you get older (post 40 though some say even post 35 is too old) the cartilage deteriorates (even if there is no obvious joint damage) meaning the operation is less likely to be successful. All that they could offer was cortisone injections to reduce the inflammation from the chronic subluxation – which I can’t have anyway due to the EDS. Failing that the only alternative is a hip replacement. I want to hold off on the latter as long as possible!

    In the meantime my daughter has been referred to the orthopaedics team as she is having hip pain. The Xrays show that there is now coverage of the femoral head (she was born with bilateral full dislocation of the hips and was splinted / under the orthopaedic team until she was 15. Nevertheless the xrays show significant arthritis – which is not good as she is only in her early twenties! They haven’t decided what the options are for her yet…

  24. Kathie says:

    I guess I should add that they weren’t suggesting a hip replacement because of osteoarthritis – which (surprisingly given my orthopedic surgeon’s gloomy predictions of a few years ago) is quite mild. The hip replacement was an option to stabilise the joint to stop the subluxation which is a significant contributor to my pain. As the damage is limited – so I’m not messing up my chance of a replacement in the future by stalling – I’m ‘putting up and shutting up’ til I get *really* desperate!

  25. Christine says:

    Hello! Just a up date since my first post. I have been working for since March :) I have lost 55 pounds since January. Once again these Hips have pulled through. Thank the Lord for the strenth and the will power to get the weight off. I have been reading the post and I just want to say, I know somedays are hard and the pain can be horrible. We are in this together we are strong and thankful for all the post and the fact that we can come together for help and comfort. KEEP STRONG EVERYONE! After having six hip surgerys I thought this was it, but thank the Lord I am back. 25 pounds to go :)

  26. Meggan says:

    Hi Emily, thanks for offering to share your experiences. I am curious how you are doing currently? I have an MRI scheduled in November 2013 and from the results, the surgeon will decide which procedures may be an option. I also had a femural osteotomy at age 5 years… I’d be interested to know whether you think another one on the pelvic side would be wise =)

    Look forward to hearing more!

    M

  27. Emily says:

    Hi Meggan,

    I was the opposite of you. I Had my pelvic Osteotomy first, then the femoral Osteotomy second. Out of my experiences the pelvic surgery is far more invasive and took longer to recover. Also, MUCH more physio (hydrotherapy etc) was needed.

    It’s been approximately 4-5 years since my femoral surgery. Two years ago, I completed my first 10k run and felt stronger then ever! Unfortunately the past couple weeks I’ve taken a turn for the worse. I have a appointment with my surgeon next week.. there’s definitely something wrong. I can barely walk without shooting pains.

    Since I’m not sure currently whats wrong its hard to suggest to you if I would recommend getting another surgery. If your pain is tolerable I would put it off as long as you can (without developing arthritis). Maybe the grass isn’t always greener on the other side (in the long term).

    My other hip also has displacia but its tolerable. I’ve promised myself that I’ll put it off as long as possible. I developed this from my mom (congenital) and she had a full hip replacement and is doing great. I hope I can put off my future surgeries until I’m a candidate for a replacement (although that will be 30 years from now). Seems like the way to go..

    I’ll keep you posted, my appointment is next week! Hopefully its nothing major..

  28. Wendi says:

    Hi Kathie
    Thanks for sharing. I am 42 so probably in the same position as you. I can’t believe that this has come on so quickly. Last year I was trekking everywhere! I am sorry to hear about your daughter but at least her condition has been diagnosed early. Take care xxx

  29. Grace says:

    I’ve got hip dysplasia I have it in my left hip, im currently 17 but it got diagnosed at 2 which also was too late for anything to be done permanently, i’v already been in wheelchairs had operations and now im waiting until my hip is so bad it needs replacing which iv been told will be in the next 5 years or so, Its so horrible I wanted to join the RAF and got rejected and now i want to be a stewardess but nobody wants to accept me due to this hip problem, I hope that in a few years they can do something to cure or make hip replacements which last a life time x

  30. Linda says:

    I am 49 and was diagnosed with bi lateral hip dysplasia in Feb. 2012 after I experienced pain in my right hip and inability to walk. In 2008 a pain management specialist performed a MRI of my spine because that was where most of the pain was. There was nothing of note and I was said to have weak core muscles. LOL! I was a competitive athlete most of my life. I ran ,but long distances always caused pain. I was an avid cyclist, golfer, and walked daily for exercise. It wasn’t until I couldn’t walk anymore that I finally went to the orthopedist. A simple xray revealed I had bhd. He ordered a deep injection to take down the pain and get a better image. It was discovered that I had labreal tears, cysts, and arthritis and was bone on bone. A tendon tear also was detected as the hip subluxed. So in Oct. 2012 I had a total hip replacment. The tendon tear required me to be on a walker for 6 weeks.
    After I had no pain on the hip. Of course I wasn’t loading either. As I transitioned to cane. I started experiencing severe back pain. They ran another MRI and discovered I had torn and herniated a disc on L4 L5 . I had degenerative disc disease s-1 to L4. They said I wouldn’t need surgery , so they thought. They gave me some injections but as soon as that wore off ousa! The performed an IMG test to test my nerve responses. I indeed had peripheral stenosis. Doctor said the two were unrelated but after I have read so many other bdh stories seems common. In May 2013 I hd a decompression.
    After two months nerve pain in my other hip was getting bad. They ran an MRI. Showed no degeneration only tendonosis. A small intersistial tear in hamstring. Nothing can be done. So I continue to battle that pain everyday and use my PT stretched daily. I continue to strengthen as much as I can. The left hip is weaker than the new hip.I take Gabapentin for the nerve pain and I go on and off the Celebrex. I recently decided I’d try the Boswellian tablets just to see since so many people have suggested it to me. I think I need bones though to fix the problem. On the bright side I was able to walk for the first time in many years and got back to playing some golf. I suppose eventually I will have the left hip replaced as back pain persists , but they won’t do anything until it shows degeneration.
    I pray that soon I can that fixed.

  31. Michele Lombardi says:

    I am 36 years old.I was born with bilateral hip dysplasia and it was found at 1 day old. I went through the pillow brace and traction and many surgeries and osteotomies. I was sent to a grEAT CHILDERENS HOSPITAL Alfred I DuPont Institute in Wilmington Delaware the only down side is they stop seeing you after you turn twenty-one,and it’s been a living hell trying to get help ever since. I suffer in silence because you just dont get it unless you’ve been through it. Now I am at the point where the pain is unbearable and i NEED a TRR. The hospital in my area is trying to find someone qualified to help me because my left hip is extremely severe. I am losing my balence,my lower back,thighs,and my better half,lol is starting to bother me besides the hip pain that is bad enough. I am emotionally on fumes.I think from always feeling different.I push myself to be”normal”. Like I dont have a debilitating condition which I do.It sucks the life from me sometimes and robbed me of my youth. I just wanted to share a little about myself and even though I dont have answers cause my jouney isn’t over.I hope people can relate and I could comfort someone and let them know they are not alone. We fight our bodies every day and with that same inner strength we need to fight for our health just as strongly.

  32. Kaylee says:

    Hello, I have just been diagnosed with hip dysplasia in my left hip after a year of misdiagnosis. I have constant discomfort in my left leg, I feel when relaxing that my left leg isnt able to relax in a comfortable position, I battle to sleep at Night, I have discomfort and pain when driving, I cannot sit crossed legged any more. I also suffer majorly with pain and discomfort in my left shoulder. I also battle with pain on the left side of my back as though my muscles were being pulled diwn by my hip or pulled out of place by my hop. I also have pain and discomfort in the lowrr abdomen on the left side. Please can any one let me know if they’ve had similar symptoms. I am 25 and feel ad though I am 85.

  33. debbie says:

    Hi every one. Just reading some of your stories. I have hip dysplasia and I am 45 and just had my right hip resurfaced a week ago, due to have my clips out this week. I notice some of you are young and having hip replacement. My surgeon told me I was to young for a full hip replacement so went for what is called BHR which is a hip resurfacing which is recommended for younger patients. I can relate to some of the pain some of you are having because both my hips are the same just that my right hip was worse than my left, might have to have my left hip resurfaced next will see what the surgeon says when I see him in 5 weeks. I have suffered with right hip pain for years since my 20’s but when the left hip started hurting just as bad as the right I went and to my GP, got booked in with a physiotherapist who I saw 4 times and she sent a note to my GP to get an other x-ray on my pelvis because the last x-ray was 7 years ago. Went for my x-ray December and was told my hips were really bad. Couldn’t even put my socks or tights on ,needed a stall to get in and out the bath. Life was just pain, pain when sitting, standing, walking and trying to sleep. So hopefully this hip resurfacing will give me my life back when it as all healed. All the best to you all.

  34. Chloe says:

    Hi, I’m 20 years of age and had been going back and forth to the doctors since I was a baby. I know this is a long comment but I would really like some support and advice. I was born with slight club foot, and so they corrected that when I was a baby but they didn’t check or else didn’t notice the fact I was born with hip dysplasia. I also have slightly twisted femurs and my knees also turn it, and this is hard to correct without very brutal, intrusive surgery.
    I’ve been going to the doctors for years and by the time I was 15 I was pretty fed up. My hip dysplasia is very painful sometimes as the muscles get very tense around the hip joint. I just wanted to be able to do things any teenager could, like go shopping for the day without suffering pain for it! It was only by this age they decided to do X-rays and a year later an MRI scan.
    Beforehand they didn’t know what caused it and assumed I would ‘grow out of it’. One doctor was very arrogant and even said something along the lines of “well I’ve seen knees turn in before but not any pain from it, if you want surgery for cosmetic reasons, it’s very intrusive and painful”. He basically didn’t believe I was in pain, as I get knee pains too, and assumed I just wanted my knees put straight, which would be great but not my biggest concern.
    Anyway, I soon found a doctor that kind of told me what was wrong and sent me to a physiotherapist. I now have to do physio exercises at home everyday for the rest of my life it seems. Which is kind of depressing because it doesn’t make the pain go away completely. Just aids it. I feel like maybe something more can be done. As I said I’m only 20 and I worry about my future like early onset osteoarthritis and what about having children? Can I do that naturally? And exercise is a struggle, I’m slim because of genetics but I can’t keep fit. There’s so many exercise I’ve been told I can’t do. And No one has ever told me how bad my condition is and what my future holds, but as I sit on my bed I’m in pain and I’m not even doing anything.

    It gets me so down. Walking 20 minutes down the road can cause pain but it’s just something I have grown used to and I consider it the norm. Which it is not. Along with the hip and knee pain I get back ache because my posture is all wrong. So it all piles up. And I get so down, I’ve been doing my physio and don’t see much progress. I’m only young and I don’t know what the future holds…. I don’t go back to the doctors because I had so many bad experiences of them just not understanding what pain I was feeling. Sorry, again for the long long long paragraph but I didn’t know this page existed until now.

  35. r.martin says:

    I was born with bi lateral hip dysplasia and have had 25 surgeries the last two were total hips, the last one was just done 8 weeks ago it’s been really tough, in 2005 I had the right side done but I always had problems, I did go on disability from it, I was a medical assistant and on my legs all day, I just couldn’t take the pain. This new surgery I had they cut in the groin area which is in a tough place, I ended up with an infection but it’s getting better, because my hips bow out the implant on the right was straight, back then they didn’t make implants with curves, but they do now, I wish you a lot of luck, I have been going thru this since 1970, body casts a few times, reconstructive surgeries and at 45 total hip, I will need to do the right side because it never fit right so I still have a way to go but you shouldn’t have trouble with disability. Good luck to you!

  36. r.martin says:

    I used to weigh 105 pounds at 5′ tall, now after a total hysterectomy and the total hip I gained 65 pounds, how can we loose weight when we can hardly move, does anyone have any answers, I tried eating right, I have terrible cholesterol too so if someone can help I’d appreciate it.

  37. Meghan says:

    After my grandmother noticed my limping during a walk in her neighborhood, several xrays and doctor’s later, I was diagnosed with bilateral hip dysplasia at 11. My grandfather {deceased} had bad hips, so for all we know he *may* have had this same condition, and my mother had dysplasia when she was born but it was corrected w/o surgery when she was a baby.
    I’ve had a few xrays over the years, followed with one of the top pediatric ortho’s in the country who specializes in hip dysplasia until I “aged out” at 18. There was little change in my hips, so that was encouraging. The first 18months after I was diagnosed I did physical therapy, and it did little to help, just temporarily relieve the pain.
    Where I left off w/the pediatric ortho was that, at an older age {30+} I could get both hips replaced. Basically, I couldn’t wait too long to get them replaced, but getting them replaced *too* early meant that I could only get them replaced every so many years and only a certain number of replacements…I can’t remember all the exact details, but that’s it in short.
    Hearing and then researching more about hip resurfacing as an option for younger patients, has given me much to think about and bring to the table upon beginning my care with a new ortho as soon as I get my records from the pediatric ortho. *sigh* This is a truly tough thing to live with, and my heart aches for all of you. I know how you feel. If anyone has any questions or just wants to talk about living with this chronic pain/disability, email me at: everygoodwordmoderator {at} gmail {dot} com.
    Prayers and blessings.

  38. Sharon says:

    Hello! I’m 51 and just discovered I have DDH in both hips. I have been a life long runner and exerciser. My hips have always hurt after a workout or run, but they would be better by morning so I thought it was normal soreness from working out. This time my right hip didn’t get better and I went in for an xray and discovered I have DDH. I am having an MRI, but my doctor thinks I’m too old for the repair. He thinks I will need total hip replacement. Having a hard time with this. I probably won’t be able to run again or do my favorite boot camp type workouts. A light sure went on when I realized there was a reason I always had hip pain. Still in shock and threatening to just go for a run anyway.. :( Best to you all!

  39. Nancy says:

    Hi All, I think I’m one of the oldest (62) to contribute to this site. I was diagnosed at birth, had four closed reductions (of the right hip only) At 13 I had a shelf replacement, at 14 a cup arthroplasty, at 23 total hip, 28, a revision, 38 and at 40 another revision. At the time, it was thought that we could return to most activities unless it caused pain. Needless to say, I would do whatever I wanted thinking I’d just have another replacement. Take care of your hip. After all these replacements, I have little left of a pelvis to attach another acetabulum.

  40. Nancy says:

    I hope diagnosis of hip dysplasia becomes one of the tests at birth (Apgar). It’s easy–the butt creases have to match left and right.

  41. debbie says:

    Hi All, been just over 3 months since my op and i think i’m doing ok.Walking with no sticks but my right leg is shorter than the left.Due to see the doctor at the hospital November for another check up,but they think i will be in touch with them before then because of my left hip being in a bad way.I am trying to stick it out until November but my left hip is so painful some days.Still having trouble bending down to put shoes on but thats proberly my fault for wearing sandels with a buttle on the side. Well last week i thought i would try water aerobics, well it went well but thinking the exercise as caused more pain in my left hip so only thinking of doing it once a week.As anyone else tried water aerobics? Just not sure if i’v started doing exercise to soon. Just thought it would help my operated leg. Going to stick it out if my left leg lets me lol.

  42. Shaon says:

    hi i am Bangladeshi.

    I born in 3.1.1997

    when i read class 7.
    Then broke my right hip in car accident…10.7.2010
    i treatment my lage in Bangladeshi high hospital.name appolo hospital..
    but i not feel fully well…..i walked funny….
    how get i fully well….plz tell

  43. Rita August 29,2014 says:

    Hi I am 65 years old. Have displaced hips with no sockets My muscles & cartilage are what’s holding me up. I was born butt first. Never had surgery & I am now in preparation for both hips to be replace in the right place. My right leg is shorter causing me to lose my balance,I too can’t stand or sit also unable to walk very far. I fall if I walk fast or run. I can only sleep on my stomach. Any other positions is like I have a baseball in the way; is so painful if I turn in my sleep waking me up in extreme pain. Had a cortizone shot a week ago. Helped me some, but by supper time I have increased pain. I try to be positive getting the surgery although I get negative response from those who don’t have this problem. I sure could use the support right now. I can’t wait to be able to wear clothes that make me feel & look better. I have 2 adult kids natural birth who are normal in every way ages 29 & 38. a girl & a boy. They’re both quite supportive.

  44. Christine says:

    Hello! You will do great with the surgery and will feel so much better. I have had a total of six hip surgery’s 3 on each side. My story is on here. Since that story I am now working for the United States Post Office part time. I lost about 50 pounds and that helped soooo much. I am feeling good and if you have not had your surgery yet I pray you have a successful surgery. God bless Christine

  45. debbie says:

    Hi Rita. i know what you mean about the pain and sleeping on your stomach even sitting and standing for to long caused me pain also sleept with my knees bent to ease the pain but when trying to turn over the pain was really bad. I had my hip operation in May on my right hip and can’t wait to get the other hip done.The pain just seems to have gone in my right hip and i hope the other hip will be just as good when i get it done. Like Christine said i’m sure you will be fine with the surgery. Just wished my operation was done years ago, but trying to get some doctors to listen to you and know what pain your in is sometimes hard work. Wish you all the best with the surgery you’ll be just fine. keep positive. x

  46. sharonann says:

    Hi everyone, I was born with congenital hip dysplasia. They found out when I started to walk at age 1. I was put in a body cast for 2 years, I’ve seen pictures of myself but do not remember anything (my poor mother sure remembers it all). I had a great life, rewarding job and 2 children before I was 30. Then it all started. I had bone on bone and could not walk. I saw a specialist here in Sudbury ont. They performed an osteotomy on my left hip. They cut a piece of feimor out to realign my hip bones, so the ball was now rubbing on what little cartilage there was left in the cup. It took 4 years of discomfort and pain before I could have the stainless steel hardware removed from my hip (5 long screws and a steel brace). I managed to have jobs here and there, nothing long term, the pain would take over soon after. When I hit 48 it became clear that there was 0 cartilage left and the hip needed replacement. I’ve been back and forth to my specialist since the replacement because I was still in pain. My thinking was after this surgery I would get my life back, not the case. I resently went to see my Toronto Dr. And they ordered a full body bone scan. Guess what, my prosthetic is loose in several places. I am now 50 years old 2 grandchildren not able to work (and I love to work) waiting on my Doctor’s next move. Meanwhile I am on a high dose of antinflamitories that helps a bit. I am wondering if I am able to receive ontario disability. I need some kind of an income. Does anyone have any ideas?

  47. Holly Attwood says:

    Hello my name is holly, I was diagnosed with congital hip displacement. I had a major operation when I was 16. Only on my right hip.for year before I was in so much an couldnt walk properly all throughout scool I was very insecure. I my hip operation recovery I loved walking an was confident. But now im 29 my hip hurts so much an cant walk very far my hip letting me down again x

  48. Stephanie says:

    Hi, my name is Stephanie. I’ve had hip problems since birth. I’m almost 42 yrs old and like many of you, my hips are really bothering me more now than ever! I’ve had 4 natural births and all my children were not born with hip problems. I’ve tried to stay active and it helps a bit, I’ve tried sleeping with a pillow between my knees. I don’t know how I’ve been able to manage this pain after so many years. I was in a hospital as a baby and wore a cast for 6 months. I’ve one hip surgery(left)at the age of 10, and haven’t seen an orthopedic in ages. It was always one leg shorter than the other and now my right side hurts lately. I’ve been reluctant about another surgery too. I’m alone caring for 4 children. I’m not sure what to do. It seems as I get older the pain gets worse.

  49. Sue says:

    My hips have always bothered me. I was diagnosed with hip dysphasia when I was carrying my fourth child. I can rennet crying at night if I had to turn over because the pain was so bad. Noatter what I did (standing,sitting,lying down) the pain was horrible. It lessened some after my child was born, but I think I’ve just accepted the every day pain. It’s not a nice way to live.

  50. lisa says:

    Hi guys. Its good to read your stories. Im 39 amd have been having hip pain for about a year in the last month ive been diagnosed with mild bilateral hip dysplasia and a labral tear on my left hip which is causing the pain otherwise im guessing i would still be unaware of this. The surgeon gave me two options a hip replacement but says im too young for this so wants to do a pelvic osteotomy my head has been spinning since as i didnt expect to be told any of this.. im actually scared..

  51. Rita says:

    Hello everyone, saw my ortho surgeon today and confirmed it is time now for a right total hip replacement, after nearly ten years of putting up with this pain and now got really bad I can barely walk, sleep, drive, and continue normal life duties. I have been diagnosed with hip dysplasia and tried so many different remedies and alternatives but to no avail. I am 52 years of age, always very sporty and active, had two children but could not deliver on my back, that is when I realised there must have been a problem, I then began with pain in my right hip, and for years I went to many many different medical practitioners found a small tear on my hip. My fear to have surgery now has gone, only desperation for relief.

  52. Comi Neuburg says:

    Hi Everyone! Good luck and compassion for all. Can anyone recommend a highly specialized surgeon for total hip replacement of congenital hip dysplasia. I’m 58 and may need replacements redone. Thanks. I live in South Florida but am willing to travel.

  53. Soap And Cosmetic Classes says:

    Nice Post!

  54. Loopy says:

    Omg there are more people out there that know exactly what I’m going thru. I have bilateral hip dysphasia since I was born. Weighing at 1 lb 10oz my chances of survival were very slim. Due to steroids which are needed to improve the function of lungs. I had a bad side effect that caused no blood flow to my hip bones and made them go septic. I had septic hips with necrosis. My mother was told I would have over 15 surgeries and maybe not even walk luckily I had one surgery was done to correct position of hips and let them hold on to socket since I was still growing up. The second surgery was done to remove metal plates that were placed to keep joint and socket closed together for attachment and strength . But year by year for the passed 29 years doctors just did the wait and see game. And you can only imagine how upsetting and frustrating that was for a child/ teenager. I had a good life aside from all the staring from people or the pity looks and being excluded from the sports. I am now experiencing a lot of stiffness and pains for the pass 2 years and doctors say it may be due to me being over weight but how on earth can you exercise and lose weight when you struggle just to walk to the next room in the mornings??? How do you keep up when your children need so much from you?? Pain has change me, made me bitter impatient and just a moody person.

  55. Winifred says:

    Hello everyone. I am. 55 yrs & was born with left hip dylasia. My left leg is also shorter than the right leg. I know the pains you all go through. I have problems sleeping on my right side & my left side. Try Sleeping on the back as it helps with an elevated pillow under the thigh. I get through each day with stiffnes in leg, aches & pains all the time & most of all with GOD always our helper.

  56. shohra qaderi says:

    hello this is shohra qaderi 23 year`a girl, I live in afghanistan I have bilateral hip dislocation. and it is because I born by feet. nowadays I feel so pain of my hip and waist until I can`t sit. some times i think about operation but I am afraid because of prosthetic bone because they can`t last long time and i am so young. doctors said if you feel pain operation is the only way.
    I can not make decision.

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