Heather’s Story

I am now 23 and just graduated from college: Mine is a story of amazing grace and miracles, yet it is still difficult for me to share. I do want to invite you to take a walk in my shoes. Largely because of my pride, I have never before shared all of these feelings and emotions with many people. I pray that throughout this journey you will see God’s powerful hand at work. He is the Author and Perfecter of all things, including my life and my story. Sometimes it is difficult to see God’s fingerprints; but those are the seasons through which we must search for them ever harder. With each of my steps, there have been tears of joy and tears of pain. There have been reports of hope as well as gloom… but through it all, God has worked miracles. –

After hours of agonizing labor, she was a mother for the first time. She waited and waited for the doctor to come back and hand her a beautiful baby girl. The doctor returned and declared that there was something wrong. “She has bilateral hip dysplasia.” These words were foreign to the first-time parents. “What?”

When I was born, neither of my hip sockets developed. Usually with braces, traction, body casts, etc., the sockets eventually form. As a result of the immediate treatments, my mother was never able to hold my bare body until I was almost six months old. Thankfully the left socket developed on its own – not normally, but it was functional. The right one hung limply by my side like a rag doll. “She will probably never walk, you know,” stated the doctor matter-of-factly. I have one of the most severe cases in the entire country… Thus began a series of treatments, doctor’s visits, 400 mile round-trip drives to seek help; thus began a nightmare. By God’s grace and help, my parents navigated graciously through my first three years.

They got pregnant again. At the age of three, there was not much about the birthing process that I could comprehend. Mom said she was having a baby, and that I could have one too. I was thrilled! My baby was going to be “born” on the same day as my baby brother. It was going to be a girl, and her name was Oscar, yes Oscar! Amidst the excitement, my parents encountered another blow as the news that my precious baby brother was to be born breech; a sure sign that he would have hip dysplasia as well. They could do nothing but watch, wait and pray. October 12, 1992, my little brother was born. Unexplainably, he was born completely healthy and without any complications. Just after we brought brother home from the hospital, I went in to have a major surgery. This would prove to be only one of many.

When I was younger, it was incredibly hard to understand why I had to be “different.” I wanted to run and play with my friends at recess, but I couldn’t keep up. I wanted to go sleep over at a friend’s house, but I was embarrassed because I would have to bring my leg braces. Around age three, I had a serious surgery that left me in a body cast. I a fiberglass cast held me hostage from my toes to the top of my ribs. I remember one of my aunts entering the hospital room. “Don’t look at me,” I told her. She said, “Oh, sweetheart, why not?” “Because I am ugly…” and the tears began to flow. I just could not understand why I had to be different from everyone else. I hated going out in public. A four year old should not be in a wheel chair! The stares and the glares were burned into my memory.

While I did have a serious disability, I was never allowed to act like it. I applaud my parents for how they raised me. They told me that it was ok to hurt, but I could not take my hurt out on anyone else. They also said that it was ok to be mad and frustrated with God; I just could not stay that way. Following a surgery in 3rd grade, I was recovering at home playing a game with my little brother. I was losing and decided to throw a temper tantrum. My mother still disciplined me and sent me to my room. I was shocked “But Mommy, I am hurt,” I whined… sternly, she sent me down the hall on my crutches to my room. At the time I was oh so mad! Now, I thank her and my father for not allowing me to use my disability in a manipulative way. As I grew older, I began to understand that my parents could have easily babied me through my childhood – heck, it was traumatic! But in their great wisdom, they did not. I was special, but not a brat; I was given attention, but was not a drama queen (well, maybe just a little bit!)

My sweet little brother has always been there to take care of me. We attended the same school, and although he was three years younger, he was the first one to help me, to defend me, and to check on me. He never voiced it, but I know he has dealt with his share of jealousy and frustration. Instead of getting angry or envious, he became my friend. After every surgery he was the first one waiting for me. As soon as I was awake, he would be at the side of my bed ready to play dinosaurs or color with me. He has been one of the greatest blessings of my life and I don’t know what I would have done without him!

The summer before my 5th grade year, my family and I were on a vacation to San Antonio, Texas. We had such a great time at the zoo, at sea world, and the Alamo. On the last evening of the trip, we ate in a small diner next to our hotel. Sleepy and full, we stood up from the dinner table. That is, everyone but me. I tried to stand and with an explosion, my right hip dislocated. I cried until I could not breathe. My Daddy carried me back to the hotel. When we got home to see a doctor, there was no doubt that my hip had snapped. Fifth grade was a difficult time. I had to walk with at least one crutch; I could bear no weight on my right leg without some kind of support. Nearing the end of the school year, we went to see my doctor in Albuquerque, New Mexico. Dr. Frederic Sherman agreed that something had to be done. My right hip was completely dislocated, and as a result was almost 8cm shorter than my left. Surgery was indefinite that summer.

In June of 2001, I was admitted to Carrie Tingley Hospital in Albuquerque. Originally I was going to have to wear a traction boot to help pull my leg (which was 8cm higher than it should have been) back into place. Upon arriving at the hospital, Dr. Sherman entered my room and announced that a simple boot would not be enough to do the job; my leg was far too misplaced. That evening I had a simple surgery to drill a rod through my right knee. The ends of the rod stuck out of my skin. Weights were rigged to the rod in my knee, and a week of hell began. Never have I been in such incredible pain. Sudden movements or jerks would send me into shock with pain. Of course, while in traction I would have a dream about being on a roller coaster. Vividly, I still remember what happened: the ups and down, the curves, twists and turns, and then the jerk. My body did exactly what my mind was telling it. It jerked violently as the “roller coaster” rounded a corner. I woke up screaming in pain, my mother who was sleeping in the chair next to my bed woke equally startled. Nurses came running into the room and have to give me a shot to sedate me and get the pain under control.

However, the worst of the pain was not over. It was the morning of the surgery, and I had to be unhooked from traction. Knowing the pain would be unbearable, I had already been given sedatives and pain medicine. The doctors come in to my hospital room and began to remove the weights attached to my knee. The traction had worked and my legs were now of equal length again. Yet, when they removed the final weight, my hip dislocated once again. Like the snap of a rubber band, I felt my hip jump up to my ears! Screaming with pain, the room went black and I was unconscious.

The fusion was successful although it did take away all motion in my right hip joint. I had to swing my leg to walk and was not able to put my shoes and socks on by myself. It was an adjustment but I did feel better than I had in quite some time.

Two years later, knowing no boundaries, I decided to try out for the cheerleading squad. Against all odds – mind you, I can’t jump or tumble due to my hip – I made it. The next four years I spent burning with passion on the sidelines. For the first time in my life, I felt normal. I felt as if I fit in.

My junior year of high school I began struggling with chronic, intense hip pain again. Concerned, my parents and I packed up for another trip to Albuquerque. My appointment was the day before my football team was to play for the state championship. A welcomed distraction, my mind was on the team and getting to the game! However, upon holding up my x-ray, the doctor jolted me back into reality. “How in the world…” The confusion and fear on his face alerted me that something was seriously wrong. He then pointed out to my family and I the giant crack in the metal rod in my leg. Yes, this is a tough, thick piece of metal that due to my “active lifestyle” I had managed to not just crack, but break in half. My heart broke as the doctor looked at me and said, “Maybe you need to give up cheer.” Pleadingly, my sweet Mother looked at me with tears in her eyes begging the same thing.

My head is as hard as a rock and I was just determined to ignore it, work through the pain, and get to the state game. Upon arrival at the football field, my squad embraced me inquiring of my appointment. “It was fine…” We had a job to do and at this moment – I was still cheering. The boys won and we screamed in victory and posed for pictures. As we climbed back on this bus, I had the sinking feeling that this could have been my last game to cheer… ever.

Through some prayer, my Mother’s desperate plea to have me stop before I do more damage, and basically my stubbornness, I was decided to finish out the season. After all, state cheer competition was only five months away! The pain was intense and I consumed prescription pain pills as if they were M&M’s. We went to state cheer and won 2nd place, losing by only one point! I did not cheer my senior year… it was difficult to let go of my passion but I worked as a youth league coach to compensate for my sweet sorrows.

After graduation, I moved to Texas to attend college. The rod in my hip totally severed, I walked around with bone grinding on bone. The pain was now excruciating and began to interfere with my social life. As a college freshman I declined invitations to play sand volleyball and ultimate Frisbee simply because I was in so much pain – let me remind you, I am a stubborn person. For me to admit that I “can’t” do something is HUGE.

Unfortunately, we were at the end of the road and without many options. I had already had eleven surgeries and those held a minimal success rate. The only option left was a total hip replacement… at the ripe age of twenty, the last thing I wanted was a hip replacement. Wanting desperately to enjoy my college experience, I put off making the dreaded decision. The doctor and my parents were patient and complied with my wishes, however in December of my freshman year of college, the broken portion of the rod had to be removed from my femur. The surgery was minor – the goal being to allow my femur to build back bone before a total hip replacement was possible. I returned to school in January on crutches and finished the semester.

The pain continued to increase and also continued to negatively impact my friendships, relationships and mental health. Living with intense, chronic pain is not something I wish on anyone. The summer between my sophomore and junior year of college, I made the decision to have the hip replacement. Reason and logic told me to wait until I graduated, but desperation, pain and love made the decision easy.

One of the most difficult surgeries I have had, I came through with a long road to recovery. Because my hip had been fused for almost ten years prior, all of the muscles, tendons and ligaments surrounding my hip joint were beyond atrophied… some the doctor even considered, “dead.” It was going to take over a year for my body to recover and build muscle that never existed prior. My surgery was June 25, 2010… in August, I returned to school to take 16 hours worth of classes and serve as the Director of Freshman Orientation for the university (this was a bad idea). Thanks to God’s grace and the help of many friends, I went to physical therapy three time a week and managed my class load.

My hip just celebrated its two year anniversary. Yes, I celebrate June 25th every year. In addition to it being my best friend’s birthday, it was the day God gave me my life back. It was the day that He used a doctor to heal my body. This healing has been long awaited… many tears and many arguments with God. I desperately believed in and desired a miraculous healing, however through my pain, so many more people were able to witness Christ’s faithfulness in my life. It is my testimony. No longer do I run from my pain, but rather embrace it as Paul did his “thorn in the flesh.” If this is the very tool God chooses to use for His glory in my life, who am I to stand in the way and argue?

I was in physical therapy and worked with a trainer for over a year and a half. God has been faithful and has used my story to help other people. I have a very special place in my heart for the Ronald McDonald House… ask God for divine appointments and He is more than happy to oblige! Today I am healthy and well – there still is pain and stiffness and some limitations, but trivial compared to my younger years. I help coach a cheerleading squad, scuba dive, compete in pageants and even skydive!

 




Is this your story? Log in to reply to comments.

15 Notes

+ Leave A Note

  1. Kyle B says:

    To my sister,
    You are a source of inspiration to me! I am so blessed by the example you have set even in th face of an adversary like hip dysplasia! God bless, Heth.
    KB

  2. Rhonda B Johnson says:

    Heather,

    I never knew your story, never knew of your tremendous pain and suffering, had no idea you were born with no hips! What an amazing your woman you are! However, even with all you’ve gone and grown through, the most special thing about you is your love of our Lord and Savior, Jesus Christ! Your smile and your eyes always share His love with those who see you. . you are a precious example of a woman who God has many plans to perfect His glory in. . I am honored to know you!

  3. Kirstie C says:

    Heather, you are so strong. I’ve always looked up to you, and when I didn’t always know all the details, we prayed for you always. God has shown His love and wisdom through your life, and I’m so encouraged by His work in you.

  4. Ruben Caban says:

    Dear Heatheruska:
    I hope I’m the only one who call you by that name. You are right about your parents, they are the most awesome people I ever known. Even through all the trail and difficulties they were generous and kind to my family and I.
    And I’m aware that they gave to many others as well.
    Thank you for shearing not only your story with us but your family as well. Connie, the boys and myself were in constant prayer for you and Don, Terry, and Kyle (aka..Karluchi to me). You are a great example of courage, persistence and determination. You have turn out to be a beautiful woman inside and Out. My prayer is that God continue to use you to His glory and honor. Love Always,
    Ruben, Connie, Gabriel, Jared and RJ.

  5. Sonya says:

    Heather thanks u so much for sharing your story. It was truly touching. I’m so glad you are doing so well and so very sorry for all you have gone trough. My little girl will be 3 in January and we also go to Carrie Tingly. She goes in just 3 days after her birthday to have her plate and screws removed from the left leg pelvic osteotomy and femoral shortening that was done in march. Your and inspiration and I will tell my daughter all u overcame! God bless u

  6. Lori says:

    Heather thank you for sharing your story. I have a few questions. Did your parents or you receive any help with your medical bills? Have you or do you recieve disability? I was born with hip dysplasia 42 years ago. I had surgery 11 hrs. after I was born. I was in a cast for the first six months and braces after. I have five older brothers, none have hip dysplasia. I have chronic arthritis in both hips. The surgery was rare for 1970. The information and follow ups were none existent for me.All of these years I have experienced pain and just thought it was a side effect of my birth. When I turned 40 I thought I pulled a muscle in my hip area. The pain would not stop. So I went to see my doctor. He told me I had chronic arthritis due to my hip dysplasia as an infant. I need to get hip replacements, so I am trying to find out info. from people who are younger than I am. Maybe this will help me.I am so happy for all the support from family,friends and the health care field you have recieved. God bless you and I know you will have a bright future.

  7. Dora Willcox says:

    Your story is like wow! You have been through so much and through it all you kept your faith. God restores and you are there. Your parents are such wonderful people and having their support and your brothers also helped with the healing process. You are truely blessed, i am so happy for you!
    GOD IS GOOD!

  8. Rahnuma Amin says:

    i knw how it feels.i am a docotor myself.i hav my rt hip dysplatia.nw a days i am having pain.i may hav to quit my profession,i donno even if i can go through my marriage.still i am fyting.

  9. Tina E says:

    My littleness was born with bilateral DDH and has had a salter osteotomy on both hips. She is 2 now and waiting for November to come to see if they have been successfully. Thank you for sharing your story
    Tina

  10. Deborah says:

    Heather, all I say is that you are hard core. I know how hard it is to walk with bones grinding, i cant imagine doing that with a severed rod at the same time.
    It is awesome that you have done what you wanted even with limitations. Your parents are also amazing people for allowing you to make your own choice, even if I’m sure it was difficult for them to watch their daughter hurt. I too have delt with hip issues from birth, nowhere nearly as bad or dramatic as yours. I am so glad your story has such a happy ending.

  11. Krissy N. says:

    Heather,

    I am so blessed to hear your story! I had NO idea that you endured such trials in your young life! You are a beautiful woman and I am honored that you are in a position to teach my daughter in High School! God bless you!

  12. Heather says:

    Heather-

    How old were you when you finally had your hip replaced? What materials did they use (ceramic vs. metal)? how did the hip fusion work for you (prior to breaking)? My daughter is 17 and has had PAO’s on each side. The cartilage is gone on her left femur and one of the procedures they are recommending is perhaps fusing her left hip. We are not sure if that is worth getting done or if we should insist on replacement. I know she is young, but because she is young I want her to be able to enjoy her youth while she can – am concerned the fusion may not allow enough flexibility. Please let us know what you can. Thank you.

  13. Heather says:

    I am so sorry to hear about what your daughter is going through.
    I was 20 when they finally did the hip replacement, however I had my femur fused to my pelvis at age 12. The replacement is made out of a special metal – I have very small bones and am allergic to most metals so it’s something creative in there but it is a type of metal. The fusion was amazing. The doctor was confident that without it I would have been in a wheel chair. I agree with him. Of course, my body had to learn to compensate, so if anything, prior to it breaking, all pain I experienced was from compensating with my knees or back. The fusion bought us time. Although I had no motion in my right hip joint at all, it still didn’t stop me from being active. I cheered for four years and was a scuba diver. God created the body to do some amazing things! I am glad that I was able to put of the replacement for a while. I would be happy to talk with you more personally if that is helpful! My email is hmariebullock@gmail.com – Blessings!

  14. Allison says:

    I know I’ve read your story on here before, but for some reason I didn’t comment on it, apparently. It’s amazing what God can bring us through. I have my story on here too. (I’m the only “Allison” in the adult section) I know I would not have made it through as well as I have without God. My hip story is not as bad as yours, but I am a member of the “young hip replacement” club. I had mine shortly before I turned 30, after having surgery for DDH at age nine. They didn’t even catch my DDH until then! Praying that things continue to go well for you!

  15. Danielle M says:

    Heather, your story is so inspiring! I was just recently diagnosed with Hip Dysplasia and have been contemplating whether or not I should go ahead with the full replacement surgery at age 37. I have severe arthritis in my right hip and experience periods of pretty intense pain but it does come and go so I’ve been trying to push through it as much as possible, I have limited mobility on that side but I still wonder how long I can put off the surgery. I feel better after reading your story and truly believe that God will see me through this. He is always faithful! Thank you!

Leave a Reply

  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    view all

    Sips for Hips WA sponsor, Glassbaby, has extended ...

    Aug 15

    Glassybaby generously donates 10% from each sale to a select charity....

    Pavlik Harness Study

    Jul 31

      Femoral Anteversion Angle Influence on Severe Grades of Develo...

    Summary of Activities of International Hip Dysplas...

    Jul 21

    Hip dysplasia is the most common abnormality in newborn infants and th...

  • Latest Stories

    Latest Stories

    view all

    Julie

    Jul 06

    I am amazed at how many stories on here are so similar to mine -- so m...

    Stephanie

    Jun 09

    My name is Stephanie and I was diagnosed with Hip dyspepsia at age...

    Grey

    May 24

    On February 27th 2017 at 38 weeks pregnant my water broke and I went i...