Julie

I was diagnosed with hip dysplasia as an infant (1983) when doctors were not so informed on the issue, I did not begin to have problems until I hit adolescence and that is when I had my first hip surgery. I experienced popping and clicking with pain and had some bone shaving of the hip socket and some cartilage replacement done, my right leg is a quarter of an inch longer than my left leg and I have to wear a heel lift in order for my body not to be leaning to the left too much which causes more pain.

I am now 32 years old and have osteoarthritis in my right hip and just had my third hip surgery September 25th to repair a laberal tear which could not be repaired because my laberal muscle is pretty much gone from my surgery 3 years ago, the doctor who did the surgery shaved some bone off of my hip ball joint to prevent anymore tearing of that muscle (which hopefully works).
I have tried physical therapy, injections in the hip which only lasted about a week and stayed away from sports and was told to stick to swimming. I have learned that being informed on hip dysplasia could have prevented most of my problems that I now experience.

Many doctors even now do not know much about hip dysplasia and there were many times where I was brushed off by doctors, which was very irritating and took me almost 2 years to find a doctor who finally did some x- rays and an MRI and found that I was not lying about my symptoms. I found out that my niece who is now 8 years old also has hip dysplasia and I am trying to gain as much information as possible for her and her mother so she can prevent problems. She was diagnosed as an infant and wore the special brace where her legs were to her sides like a frog.
I am terrified that I will have to have a hip replacement in the next 10 years and hopefully from doing research I can help my niece from experiencing pain and multiple surgeries as I have. I am hoping that this last surgery will provide some relief but I am not too sure. I have learned that hip dysplasia may cause mild scoliosis of the spine depending of the severity of the dysplasia.




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  1. clare b says:

    Your story is similar to mine except that I didn’t experience problems until my late 20’s and am only just getting doctors to take notice of me. I hope you don’t end up needing a hip replacement and hope your niece an easier ride.

  2. Analiese rocca says:

    My mum found out I had hip dysplasia when I was about 18 months old,,I had more than 7 hip surgerys by the age of 18. After I started to give birth to my 3 children my hip joint started to deteriorate rapidly and painfully, until I became house bound,,at the age of 33 I had my now last hip reconstruction and replacement done,,and I have to say it has given me a better quality of life,,,I no longer have hip or leg or back or even neck pain like I used to in the past…I surely would recommend anyone suffering from this, to have the hip replacement done asap,,at least in my case,,,I was born on the year 71,,,now we’re in 2016′,,,now a days medicine has come a long way,,,we can make a good use of that,,,,

  3. Frances says:

    I was born in 83, too, but my dysplasia was caught then. I had dozens of ops before I was 4 years old to correct severe joint faults and another when I was a late teen to correct my right leg post-puberty changes. 33 now and my right joint still drives me mad… Just waiting for the day I’m told I need to start the replacement process.

    Found this post while googling about for recent improvements. I still get the brush off from Drs, despite my history.

  4. Stacey says:

    I was also born with hip dysplasia in 1983, my baby sitter told my mom I was walking with a limp and she might want to take me to the doctor to look into it. As a child I was in numerous casts, my dad made adjustments to my crib for traction. My parents were were told by my orthopedic surgeon then that I would have arthritis at a young age. When I was in middle school I had a surgery to stunt the growth in my right leg at the growth plates in my right knee. The following year I needed an osteotomy, I was in middle school, homeschooled after my surgery, I was in a full body cast for 6-8weeks. After that surgery I went on to do what I wanted, dance. Being active all those years really helped. I started having pain again in my hip in my 20’s. One doctor I saw told me to stop running because I was irritating my hip, all I wanted to do was work out, I knew I needed to keep my weight down and I wanted to stay active, I was 28 then. I am now 33 and have had multiple opinions, a lot of opinions were “your too young”. Being young is quite obvious to me, I am a nurse, I know how this works but it doesn’t make it right to have a poor quality of life until I am in my 50s. My pain is real everyday, I can no longer work out, I have had 3 steroid injections in my left hip in the past year, which were debilitating to recover from. My last injection in July took me two weeks to recover from. My doctor thinks the steroid was relaxing everything around my hip which was giving me a loose hip and was difficult to walk on. I was truly blessed to cross paths with my moms physical therapist, he referred me to my new orthopedic surgeon who I have been with the past 2.5 years. I am very happy to say I am scheduled for a hip replacement in January 2018. I am hoping for a new life, I know I will have to relearn to walk as I have walked with a limp for years and learned how to compensate. I am most anxious to see how fixing my hip will effect my lower back. My sacroiliac joint has arthritis already and is very painful everyday but I am hopeful everything ties together. Thank you all for sharing, I have been reading a lot in preparation for my surgery and hearing how others have done with my same diagnosis is most helpful. Good luck to all.

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