Rachelle

image1

I am 40 years old and I was diagnosed today with right hip dysplagia. I had a Labral tear in my R hip that was diagnosed by my orthopedic and he sent me to a specialist… they took X-rays and BOOM, new diagnosis. I’ve had problems with my hip for years, but have had 2 ACL surgeries on my R knee and thought the pain was related to the knee. I am apparently too old for an Osteotomy and too young for a hip replacement. But my question is wouldnt it be better to get a replacement now and have 30 good years and then have it redone at age 70, than to live in pain for 10+ years waiting it out??? Not sure just would like to hear what others who have gone through the same thing have to say. I have always been very active, athletic and the pain is dragging me down. I have 2 young boys and it breaks my heart that I can’t do things with them, heck I can barely get up our stairs. Any advice would be appreciated. I am going to start PT (again) and get another cortisone injection, but not sure if I can keep going like this much longer. Thanks for reading, any advice or thoughts are appreciated.




Is this your story? Log in to reply to comments.

28 Notes

+ Leave A Note

  1. Patti says:

    I’m 42 and I’m scheduled to have my hip replaced in September.
    I’ve known and dealt with my hip pain for 20yrs and I’m done. I’m having hip replacement now, so I can enjoy life again.
    Even if the replacement only lasts 10 years, I’d rather have that 10 years pain free, then dealing with it. I’ve been on vicodin (an opiate) and naproxen (an nsaid) for that past couple of years to help manage the pain. I hate to think what the long term effects of those drugs will be if I continue without the surgery.
    I’ve found that you just have to tell your doctor that it will happen and you want it done now. Your body, your right.

    Good luck!

    • Rachelle W says:

      I am going to see Ortho #3 next week, Ortho #2 thought they may be able to repair my labrum. Thanks for the comment, it helps so much to hear everyone’s stories.

  2. Shelby Erickson says:

    Rachelle- Your story so closely resembles mine…. please feel free to reach out so I can share my story with you.. I turn 40 in August and had my THR 7 weeks ago.

  3. celeste says:

    Hello Rachelle,

    My DR. has told me that is not right to go for a hip replacement when you are young because it become a circle, this replacement had a limit use life (10 years I think it is), so once you start you need to be ready for more operations.

    I was diagnosed with congenital hip dysplasia 2 years ago, and I was in so much paint but I have been able to get better with therapy that have helped my muscle get stronger.

    Good luck and don´t dispair.

  4. Brenda says:

    I struggled with hip pain since giving birth at age 23. I had a labral tear repair on the left hip at 41 and then finally diagnosed with bilateral hip dysplasia. My life was shrinking, i couldnt do much, going from sitting to standing was so difficult, so at age 43 I had bilateral total hip replacements and I love it!! I LOVE it!I’m now 47 and love being pain free. my hips are so quiet and smooth and trustworthy. I do still have some muscle pain but the more active I am the better that is.maybe try getting a second opinion because my doctor said he would not do any other surgery on me except thr because that was the root of my problems. I could of looked into an osteotomy but chose not too. Didnt seem right for me. Keep searching because you have to live life! Yes I will probably have to have them replaced in my 70s but who cares I’m living now and not guaranteed I’ll be alive till I need them redone. Keep searching. I’ll be praying for you! Feel free to contact me if you have questions I wish you the very best!

    • Rachelle W says:

      I feel the same way! Would rather have it done now and Hopefully get some relief than keep limping around unable to do much for another 10 years. I go see Ortho #3 next week, will keep y’all updated. Thanks for sharing!

  5. Letizia says:

    Hi Rachelle!

    I was diagnosed with Right hip dysplasia when I was 29 years old. I know the frustration and pain you must be feeling. I also have two small children and wanted so badly to be active and to just feel normal. I saw several different specialist and was told over and over again that I was too young for a hip replacement and too old and had too much damage for an osteotomy. However, I finally found the right doctor and he took one look at my x ray and knew I was ready get a new hip! It was a difficult and scary decision to make! I had the surgery done at age 32. At the time, I had a toddler and an infant at home. But I can honestly say, it was the best decision that I have made! I finally have my life back! I had forgotten what it was like to not be in constant pain. I can go to the grocery store by myself and not have to stop and take a break to sit! All the little things!
    My advice to you would be to try to seek other opinions and find the right Doctor. You will just know who you find them. Don’t give up and don’t be scared! Best of luck to you! Thank you for sharing your story! ❤️

  6. Krista Kulp says:

    I was diagnosed with hip displaysha when I was 6 weeks old. I had my first hip replacement at the age of 31 and because the doctor made my left hip a 1/4 of an inch to long I proceeded to Have my right hip replaced two years later. K ow the hard time I was having getting my left replaced my mother wrote my insurance company and I had a surgery date with in 6 weeks from the time they got her letter. I went in with right hip pain and the doctor asked me why I was there I told him I was having right hip pain and showed him that my left leg was kicked out. He said wow!!! I was in the OR 6 weeks later at the wonderful age of 31
    I am now almost 40 and have no hip pain because I had them replaced. Just thought I would share my story. Don’t let them tell you that you are to young. I now have 2 hip replacements and feel 20 years younger..

  7. Linda says:

    Hi Rachelle,
    I was misdx many years. It was mostly back pain and told sciatica. After a broken foot from walking at 46 I was sent to a hip specialist because I said my hip hurt worse. I had my first hip replacement at 47. The hip was beyond PAO and I was discouraged. I had no problem replacing it because my life experiences greatly diminished. I was very active and athletic. I had a spinal decompression in between the the two THRs. My thought is of course it is a personal choice but for me I wanted to get on with my life. A couple more years in bed was becoming an unbearable thought . It’s a chance I took and I am glad. I still have spinal pain but I am back to living again. There are many support groups on FB if you want to ask more questions. We are routing for you fellow hippy!

  8. Nadine says:

    You are not too old! See a HD specialist. I had PAO at 39 and 41. No regrets. Good luck!

  9. Lucy says:

    Hi Rachelle,

    I am in the same position as you, I’m 41 diagnosed last year with bilateral dysplasia, I really don’t know what will happen to me, I’m waiting for an appointment at the Children’s Hospital of all places! The Hospital that have dealt with me so far have said if I get referred back to them I will most likely have THR but I will have it done as I’m in a lot of pain and can no longer do activities with my children, I have to ‘sit it out’ I feel like I’m 80 years old. I too am having another cortisone injection in 2 weeks, but this is not a solution forever. Whatever you decide to do good luck, and do keep us posted.

  10. Danielle M says:

    Hi Rachelle,

    I just had my right hip replaced a week ago today and I won’t lie to you, the recovery has not been easy so far but I can tell already that once all of the surgical pain is healed, I will feel like a new person! I felt the same exact way about it that you do, I did not want to spend any more time being miserable and in pain; unable to walk far distances. I say go for it if you can do it. Just make sure you have plenty of help and you can make time to just concentrate on your recovery. I chose to do it in the summer because I knew my kids would be out of school so there would be no homework or activities to deal with. It’s still a lot on my husband but I must say he has been a huge support to me through all of this. Good luck! :-)

  11. Janie P says:

    I am 46 and currently deliberating the hip replacement. I have hip displasia, a labral tear and trochanteric bursitis. I have gained 20 lbs due to lack of activity due to the pain and I am miserable. I have been getting cortisone injections, but they don’t work very well. My doctor said he could repair the labral tear but that it will just tear again until I get the replacement done. The root of all these problems is the hip displasia, so I am starting to think going forward with the surgery is not a bad idea.

  12. Kathy says:

    Hi Rachelle. I feel your pain. I’m so sorry you have to go through this. I also have hip dysplasia in both hips. I was diagnosed ten years ago at age 39. I was a very active person and enjoyed many sports. My journey also started with diagnosis of a torn labrum. My pain started after the birth of my second child in 1994. It took seven yrs for diagnosis of torn labrum. It took five more years for diagnosis of hip dysplasia. I’m sharing my story in order to persuade you to have your hips replaced as early as possible. I just had my tenth hip surgery three weeks ago. I had both of my hips replaced in 2014. The arthritis was very severe in both of my hips by this time. As I’m sure you know, you have a very high pain tolerance when going through this and learn to physically compensate in many ways. Due to the fact that I waited so long to have my hips replaced, many of my hip tendons and muscles had been used incorrectly for years and were therefore damaged. I had to learn how to walk correctly. My physical therapist had to teach me a new gait. This last surgery has been my only one since replacements. I had a bursectomy, it band release and psoas muscle release. These were damaged due to the burden put on them from my arthritis. I don’t want anyone else to have to go through this because of prolonging hip replacement. There has been a drastic improvement in my life since my hip replacements. However, I wish I didn’t have to go through the suffering I did from the time of diagnosis to the time of replacement. Also, I wish I didn’t incur the damage that happened due to my hips not being replaced soon enough. This is just food for thought for you. I wish you the best on your hip journey. ☺️

  13. Paula H says:

    I have been in pain for many years and told it’s just arthritis and I couldn’t have a hip replacement at 45.I am now 52 and pretty sure I have hip dysplacia, can hardly move at times, sitting, standing, stairs all agony, and right arm and leg of that hip sore and spasms. sadly NHS in England won’t operate, I’m too young. I was very athetic, but getting more sedentary because of this, putting on weight too. So depressing, I just want to be able to keep fit. What good will a new hip be when I’m 80?

  14. Judy says:

    Hey there-
    I, too, was diagnosed with DHD at the age of 46. I had been active my entire life- as a classical ballerina when I was young to my current passion- rock climbing. My OS thought I would be a good candidate for a periacetabular osteotomy and referred me to a OS in San Diego. When I got there for my surgery (I am from WA state) the surgeon changed his mind and recommended a THR. This was in 2000. At the time the standard THR was metal and plastic and my research indicated a short life for those and failure after about 10 years. Not willing to take a chance I went home and continued my research- this time learning about hip replacement. In 2002 I learned about hip resurfacing and became convinced that this was for me. At the time it was undergoing clinical trial in the US. I could have received the operation in the US but repeatedly heard of an outstanding OS in Belgium. I contacted him and had hip resurfacing done in Sept 2002. He gave me my life back. I was climbing hard and cycling 200-400 miles a week. In 2010 my hip began to give me problems again. I found that my hip had failed. Unfortunately I am a small very slight woman and they had since found that the angulation in the placement of the prosthesis must be more acute for small women. After consulting with OS in the US I decided to return to Belgium. I have had my fully ceramic THR for 6 years and at the age of 62 I am STILL rock climbing and cycling. Even though my story is not perfect I feel that my life style has not been compromised. However it is IMPORTANT to do your homework about the device and the doctors who install them. Be picky. It is your life! Good luck to you!

  15. Judy says:

    Me again! Judy- I should mention that I am a total advocate of early detection and prevention of hip dysplasia in children. My oldest grandson and daughter were x-rayed as a preventative measure after my return from Belgium and my youngest grandson is going in for an additional screening next week. I teach healthy swaddling at every opportunity!

  16. Kristin A says:

    My name is Kristin. I’m almost 37 and have lived in pain for the last 3.5 years. Pain to the point that I can’t do anything a 37 yo usually can. I take medication, and sometimes that doesn’t even help. I’ve been diagnosed with bilateral hip dysplasia, have a labral tear, and tendon damage. Had an arthroscopy but they couldn’t fix the labral tear. 9 months later and the pain is just as bad. Now it’s been recommended I have the PAO surgery…which is very invasive and scary. They said I’m too young for a total replacement, that it won’t last and a 2nd total replacement has no guarantees. Has anyone had the PAO? How hard is the recovery? I don’t have short term disability or FMLA, and don’t want to be off work so long that I lose my job. This is so stressful, but I just want my life back so bad.

  17. Allison says:

    I was diagnosed with hip dysplaysia as at age 9, and had major hip surgery at that time. I did well for almost 20 years, but started having pain in my left hip at 27. I can’t said the pain returned, or that I had hip pain “again” because I never had pain as a child! They caught it while looking for something unrelated. Anyway, because of my prior operation, there weren’t really other options for me, and I had a hip replacement at age 29. So you are not too young. Find a doctor who will listen to your complaints. Like you, I decided that even if it means another replacement when I’m older, I’d rather have more good years with a replacement than bad years without. My story is on here also. Feel free to read it here. http://hipdysplasia.org/patient-stories/adult/allison/

  18. JeannieB says:

    I have been living with symptoms for over 20 years. They were mild in my 30’s progressing to moderate in my 40’s and now I’m 50 and still dealing with the pain. I’m waiting for that magical moment when I decide a hip replacement is a good idea!! I might be past that moment and I’ll tell you why…my left glut medius is destroyed!!! I limp almost daily and have a lump where part of the muscle tore and developed a fatty cyst! The question if I waited too long is a good one. I am a physical therapist and advocate for the conservative therapies. With that said, my exercise regime has decreased greatly by being a busy mom and being in pain much of the time!! My advise is this: KEEP EXERCISING!!! Keep it low impact if you can and make sure to include glut exercises and core strengthening so that you don’t get secondary lumbo-sacral issues causing more pain than you need. It’s really a personal choice as to when you’d like to get an operation. And a gamble as to how long it will last!!! Good luck and happy hip health!!

  19. Stephanie says:

    I had a torn labrum as well in my right hip. When reviewing my x-rays closer, they discovered hip dysplasia. Note that I had severe hip pain for more than 8 years without knowing that I had hip dysplasia. Upon diagnosis, I was referred to an orthopedic who specializes in hip dysplasia.

    While the torn labrum could have been repaired, specialists noted that it would simply tear again if I did not address the hip dysplasia. I had a procedure done at the age of 46 called Acetabular Ganz Bernese and have been pain free since! This is an intense surgery and requires a long recovery time period with lots of PT, but I have been extremely pleased and live a full life – running, playing tennis, etc. – with no pain! I have 5 screws in my right hip, but don’t notice them at all.

    When I was told that this procedure was more intense that a hip replacement surgery, I asked why I shouldn’t just look to a replacement. The answer was that I was too young and that the procedure I had done could/should prevent a hip replacement down the road.

  20. Rachelle says:

    Thank you for the info, is this the same procedure that is often referred to as a PAO?

  21. Rachelle W says:

    Hi everyone, thanks for all the comments. It is helpful to know I’m not alone and hear everyone else’s stories. Ortho is really pushing me to wait. My pain is managed pretty well with cortisone injections currently. Ortho said I still have some cartilage left so they want to wait until the cartilage is gone before doing the THR. I have also discovered I may have a fusion in my lumbar spine (congenital) as well. It’s hard to tell from the hip X-ray, so I need another X-ray of the spine. I see a second opinion this week.

  22. ANGELA GERBRACHT says:

    Hi, I also am 40. I can relate as a mom. My kids are 8 and q0. I was diagnosed with bilateral hip dysplasia back in w0q3. My physician said that my rught hip was worse and had less than 10,000 miles left. In January 2014. I had a spinal fusion and the injury that caused made my gait off.

    With my gait being off fir so long…my hip failed. Daw surgeon and he was very hesitant to take my case due to age. And weight…I only gained because I can’t be active any longer due to pain. Anyways, my right hip replaced was June 2016. I still remember that day so vividly… I had to go to the bathroom after I woke up from surgery and I called the nurse and she said get up and go. I thought no way there’s no way I’m going to walk on my new hurt it will hurt immensely. With assistance and very much has it is on my side I got up input weight on my new hip and almost cried. No pain at all… I thought how is this possible and why did I not do this sooner? Recovery was great…I felt like a ballerina with precautions.

    I am now 4 months post op… and already scheduled for my left hip in November 2016. I am excited to be able walk without braces, crutches or cane.

    I can understand that the age of 40… We aren’t supposed to fall apart this soon. But from my understanding with hip dysplasia the ware down and arthritis often happen quick. I have been on pain meds for 4 years now. I just want to be normal again. I want to be a normal mom again, one that is cognitive and one that is present. It’s so hard to be a mom especially a single mom and be disabled I’m in so much pain. My surgeon was concerned and that hips only last up to 15 years. But I begin to cry in his office and said I would rather have 15 years of quality of life rather than becoming a zombie on meds and not getting out of bed. So basically if my hips fail or need a revision 15 years down the road that’s something I’ll deal with then. But I’m so grateful I made the decision to have my total hip replacements. It’s been life-changing… Keeping you in my prayers.

    Sincerely from another mother.
    -seattle

  23. Heather says:

    I was diagnosed with dysplasia of the right hip in MAY 2016. I turned 40 in SEPT 2016. My ORTHO Doc is doing a PAO on me in NOV. I don’t have any cartilage damage – which may explain why my doctor is willing to do the surgery on me. However, I’m not sure I would accept “you’re too old for a PAO” if I were you, Rachelle. My opinion – seek a second opinion. At our age, we would be looking at least two hip replacements in our lifetimes without a PAO. It’s worth a second opinion.

  24. lorraine says:

    I am in exactly the same position as Stephanie and I am 48 and waiting for a Ganz. Can I ask Stephanie if she had a very painful knee on the outside when she was driving and what she did about this? As my job requires me to drive a considerable amount of time and I am in a lot of pain just driving a mile, naproxen does not seem to touch it and I am told I have to wait 6 months for the operation. I live in the UK and would definitely advise Rochelle to get a second opinion, we should not be in pain at our age, especially as it is impacting on your life with your children.

  25. Luana says:

    I am 40 and was just diagnosed with hip dysplasia in my right hip. My labrum is also torn and after doing a cortisone injection my pain became unbearable. I’ve been on crutches for the last month as I’ve been waiting to get into see the orthopedic surgeon. I recently learned of another option available to me here in Denver. There is one surgeon in Denver that performs labrum replacement and uses cadaver graft to create a new labrum. This surgery only has a 14% failure rate when compared to labrum repair which was around 50% failure. This surgery is permanent so there is no need to have addition surgeries. I have an appointment with him in one week to discuss this option. It’s another option he encourages for younger adults when there is damage to the labrum. A friend of mine in Denver had this procedure done on both hips and is very happy with the results. The surgeon in Denver trains other surgeons nation wide how to perform the surgery. In fact my sister in law also has hip dysplasia and had this procedure done in Nebraska and her surgeon was trained by the one I’m meeting with in Denver. My sister in law has nothing but positive things to say about her results and highly recommends it. Not sure how many states have surgeons performing it but it may be worth looking into. If you want to learn more information about it, the surgeon I’m meeting with has a ton of information and videos on his website. Very informative! Look up “Dr. Brian White Denver.” Good luck to you.

  26. Lisa says:

    I have always had low back issues (long term ). It’s only been in the last few months I couldn’t take the pain anymore before realizing it’s my hips. I’m 45 and have osteoarthritis bilateral, Labral tears bilateral, along with the bilateral hip dysplasia. I’m devastated and am so glad to have found your responses that I’m not alone in this. I will seek another opinion as well. I’m also told I’m too young for THR surgery. Thank you all for posting.

Leave a Reply

  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    view all

    New Guidelines for Evaluation and Referral of DDH

    Jan 17

    After 16 years the American Academy of Pediatrics has updated and revi...

    A recent study confirms, adults with hip dysplasia...

    Aug 23

    An important research study reaffirming that hip dysplasia is a major ...

    Landmark Research Study

    Aug 18

    A landmark research study from the International Hip Dysplasia Institu...

  • Latest Stories

    Latest Stories

    view all

    Jodi

    Nov 30

    HAVE A QUESTION: I am 43, have left hip dysplasia that was diagnosed o...

    Jen Lesea-Ames

    Nov 10

    Advocate Spotlight Jen Lesea-Ames, Founder, The PAO Project and Edi...

    Emily

    Sep 29

    I am a dancer, aerialist, yoga and Pilates instructor and was diagno...