Tom

Hi, I’m Tom (25)
I was diagnosed with hip dysplasia last February and have been struggling to come to terms with it ever since. My left hip is deformed and my right hip is very shallow resulting in early wear and tear, it feels like there is very little cartilage left. I try hard to live a normal life as im an outgoing person, I have cut down a LOT on running and playin football. I Stretch most mornings, also swim and cycle 2/3 times a week but it’s not the same. I also go to the gym a couple of times a week and still find it hard to keep my leg muscles and joints strong and healthy. I had to stop working in construction, it was causing to much pain. I have been offered work but had to turn it down as it would put too much stress on my hips, its hard to find a suitable job because of this. Doctors say they want to preserve it until it gets to a certain stage, I’ve been questioning their beliefs, would it not make sense to operate and let me get on with life ?, In my opinion 25 years old is too young to be living a limited lifestyle.

Does anybody have any thoughts or advice?, Please…It Would Be Much Appreciated…..Thanks !!!




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  1. Regina says:

    Hello Tom
    I was diagnosed with the same thing @ 33 yrs old March 28 2012. I have multiple surgeries on my left hip. I just a total hip replacement for the first time @ 35 years old. May 19 2014 and it was the best choice I made. Over time that what it leads to. Feel free to email me anytime you have questions. My email is hinesregina@yahoo.com

  2. Natasha says:

    Hi Tom,
    I’m 26 and in a similar position to you. Was diagnosed with hip dysplasia in my right hip about 6 years ago and was told to give up running.. It has deteriorated recently and feels like it is time for a hip replacement as I was told that I am not suitable for hip resurfacing but am told that I should wait it out for as long as possible. I’m wondering is the life span of hip replacements still 12-15 years or has there been any advancements in this area-if anyone knows?!

  3. Tom Kavanagh says:

    Hi
    can i just ask did you give up running when diagnosed ? I still play a little bit of football No Where Near as much as i used to ! I don’t wanna give up completely just yet …it’s the only thing im good at ! I have a smile on my face when i have a football at my feet ! But i guess if it’s time to stop it’s time to stop …all advide welcome THANKS

  4. Tom Kavanagh says:

    I read a while back that THR’s last up to and beyond 20 years in younger people !

  5. debbie says:

    hi everyone i am 45 so older than most of you , had a hip resurfacing done on my right hip just over 3 months ago.I think the reason for not giving you a hip replacement Natasha and telling you to stick it out for as long as you can is because if they do a hip replacement at your age you will need another one doing in your life time ,and i do believe it is a more complex operation to have a revsion on a hip replacement than it is if you have a hip resurfacing. Do feel for you being told you are not suitable for hip resurfacing as my pain in my right hip as gone ,just got to have the other hip operated on but i’m trying to hold it out till next year if i can. As for you Tom i would ask your doctors about the hip resurfacing as they mainly do them on men depends on your bones and build i think, at least you will be out of pain. good luck to you all and hope you find the right treatment.

  6. Julie says:

    I was 5 when I was diagnosed so have always known it would come up one day..(I’m 37 now and Finally going bionic next year). My problem has never stopped me doing anything except bungee jumping and sitting cross legged! My advice, Do what you can and when the pain is too much, get the THR.. Good luck!!!

  7. Elizabeth says:

    I am 16 years old and was diagnosed at the age of 14. I lived with the pain for three years prior to that though. I had a procedure called a Ganz Osteomy, basically a hip replacement with your own hip. I was on bed rest for two months and on crutches for six months, which killed me because I am an employed student athlete. But, having that procedure done has been one of the best decisions I’ve made. I now am still an employed student athlete with no pain. Yes, the recovery may be long, but it is worth it!

  8. Tom Kavanagh says:

    Hi Elizabeth
    Are you fully active again (running) no restrictions ? Or do you have to take it easy on the impact sports ?

  9. Natalie says:

    So I am 29 and also have had dysplasia all my life. My hips would hurt, click and feel out of place from time to time growing up but i new that as a child i was had issues so i never paid any mind to it. In 2011 after a Labral Tear my doctor explained Dysplasia to me and that it was worst in my left hip than right. Now I am at a point where is it becoming incredibly difficult to walk and climb stairs. I can barely make it through one supermarket trip. My docs recommended PAO surgery but i am fearful of the very lengthy recovery. Also knowing my bones are being cut and screwed back together has been hard for me to accept. I am glad i was able to live an active lifestyle despite my condition for so many years but now I feel hopeless. Like you my docs do not recommend THR because I am too young and will likely need it again in my lifetime.. and THR can last 10 to 20 years but that factor is unknown and varies from person to person. I wish you and everyone else affected by this condition the best.

  10. Emily says:

    Hi Tom,

    I started having hip pain at age 22 or so, and stuck it out until I was having a hard time walking at age 26. When I finally went in to have it checked out, the diagnosed me with bilateral hip dysplasia. I went on to have the super painful and expensive PAO surgery, and then 2 soft tissue labral reconstructions. At age 32 I am in a lot of pain that never was helped by the first 3 surgeries. I am looking into getting a bilateral hip replacement now. Looking back I don’t know if I would have gone with the PAO surgery again…be sure you really look at outcomes and discuss with your doctor about how likely it is that you will experience relief if you choose to go through with surgery!
    Good luck!

  11. Debbie says:

    I had resurfacing 5 months ago and highly recommend it to anyone that is a canidate. I played competive tennis for the last 15 years and was a runner in my earlier years. Please note that I was not diagnoised with dysplasia, I was bone on bone and in extreme pain before surgery. I recommend getting several opinions and going with the best surgeon possible, it really makes all the difference in the world! I did and am extremely happy with my decision. You owe it to yourself to do your homework and then make your choice on what you want done to your body.

  12. Elli says:

    Hi Everybody,

    I am 39 and they told me I have to do a hip replacement.

    dooes anybody know any injections or any other natural method that worked?

  13. Riley says:

    I can’t find what exercises to do anywhere on the web. Please share all exercises especially the advanced ones anything that has worked for you. My trick is the lacrosse ball on the Tensor Fascae Latae all day every day.

  14. Joan says:

    Hello Natalie;

    I thought I was reading my story. I have bilateral labral tears. I just sought out a second opinion of my issues because the pain is debilitating. The doc I just saw indicated I also have dysplasia. more tests next week to be sure of everything, but the same concern for me is post surgery. What is recovery like. Is it a one-two day hospital stay and then up and moving, or is there a period o immobility. My biggest concern is not being able to ride my horse or bike. I bounce back quick, but any recovery stories would be great to hear about. thanks

  15. Chrissy says:

    I would get another opinion. I saw 5 docs before i got a diagnosis but Im 24, 25 in march and they told me i was a perfect candidate for the PAO surgery. Im schedule to have it done in Feb.

  16. Latasha says:

    I was 31 when hip pain started, was diagnosed as having left hip bilateral acetabular dysphasia, had key hole surger 15 months later, but 8 months after pain has returned but in both hips, I have had to give up work, driving and walking. I can only manage 50 yards or so with walking sticks. I have a 5 and 6 year old to look after, but doctors want me to try and stick it out till I’m 40 for hip replacements. It’s depressing enough now loosing your freedom with out waiting another 6 years. My surgeon has mentioned PAO but wants me to wait a bit longer to see if pain settles on its own first. Should I push for this surgery, I mean will it benefit my children as I feel they are suffering more than anyone.

  17. Jim says:

    I was told many 10-15 years ago that I had hip dysplasia that should have been caught in my childhood and I was told I should wait as long as I could. I have walked crocked for a long time and I have held out, but now it is hurting more and more and starting to keep me up at night so now at 65 I guess I have to admit defeat or is it de-hip. Looking forward to a doctors visit as soon as I am sure I have coverage.

  18. steven says:

    Hi tom, I have the same problem, I would like talk to you about that , it’s my email stevemakt24@gmail.com , im steve btw

  19. Verlynn says:

    I discovered I had bilateral acetabular malformation when I was 16. I was a gymnast and a cheerleader and had no pain, my mom took me in to have my flat feet assessed. The surgeon recommended reconstructive surgery on my acetabulum, essentially to build a “shelf” on to my hip. I was in a body cast for 6 weeks, crutches for 2 weeks,,or until I ditched them. I have had 3 labral tear repairs over the years which were wonderfully pain relieving. I am 43 now and in so much pain sometimes I want to cut my legs off. My knees hurt more than my hips at times. I am glad the surgery when I was 16 helped me make it to this age and would recommend it. I have four boys and try to stay active and fit, but as the pain increases I am working out less and putting on weight, not to mention becoming depressed. Time to see a surgeon, again…good luck hip hommies!

  20. Andi says:

    Hello all,

    I am 41 and been in pain for almost a year now in my right hip. X-rays showed I tore the cartilege in my hip (may have over-did it with squats and lunges)and when I went to the surgeon to seek treatment, it was discovered that I have hip dysplasia. I am on the list for PAO surgery and was hoping for any advice from someone who has gone through it. I am trying plan ahead – working out upper body, trying to do some lower body but cannot find good exercises to strenghten legs and glutes (without the pain that squats and lunges are giving me); plus how should I prepare at home for the recovery stage. I’m a bit of a planner and have been thrown for a loop. Thanks for listening.

  21. Rebecca says:

    Hi Tom.

    I am 34 years old and was just diagnosed with bilateral congenital hip dysplasia this past February as well as a labral tear in my right hip. I am a very active person and have lived with hip pain since I was 17 but for the past 4 years it has gotten worse; which is why I finally went to the doctor.

    I chose to have the PAO surgery starting with my right hip and it is a struggle so far but I am hoping for the best. My advice to you is to get it corrected the pain does not get as bad as it did for me. I am hoping that once I fully recover from both surgeries – although it will take a total of 2 years – I will be able to live life without pain.

    Good luck to you!

  22. Rebecca says:

    Andi,

    I just recently went through my first of two PAO procedures – blessed with bilatal hip dysplasia – and like you I was thrown through a loop when I received my diagnosis (I am 34). My advice to you is to DEFINITELY do upper body workouts and as much as you can lower but make sure to work the hip abductor/adductor muscles (I did not) and those movements with PT are a struggle.

    As far as at home care you will need a babysitter – it is painful and you will not be able to do for yourself. You will need someone to help you shower, get dressed, make food, and do almost everything for you. (VERY FRUSTRATING!!)

    If you do not have to go up stairs don’t and if you can get access to a hospital type bed DO IT! I was lucky enough to be given one and it is amazing! You can get your head/legs in just the right position to reduce pressure on your hips and you rest so much easier.

    I also suggest forearm crutches instead of underarm – SO MUCH EASIER to move around – but make sure you get them ahead of time so you can practice. I have the forearm crutches from Millennial medical (with the springs in the bottoms) and I love them.

    Hope it helps! Good luck!

  23. Kevin says:

    Im 53 yt old msle been suffering with osteoarthritis fot two years now been told i i need a THR thr xray shows dysiplsyis in my left hip but my femoral head is flattened out somewhat am i a good candidate for p a o surgery who is the best Dr in Orlando for adults with this

  24. alli says:

    Hey everyone I’m 35 and was diagnosed in 2014 with ddh I first went to the gp with aching and not able to sleep at night but could not relate it to anything. It seemed to be worse when I wore high heels or was on my feet for hours. I’m just wondering if anyone else just gets the pain at night ?? Also I’m very stiff and find it difficult to put my socks on in the mornings.

  25. Chantel friedrich says:

    Hello!
    I’m receiving a full hip replacement tomorrow , and I’m only twenty three . I had to do a lot of searching but children’s hospital is doing the surgery ! Good luck, if you have questions feel free to contact me

  26. Tom says:

    I hope everything goes well !! Yeah I’d like to hear about your operation and recovery Please . All the best & Thank You !!

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