Addison’s Story

Our journey with hip dysplasia started in 2010, one day after our daughter Addison was born. She was born with bi-lateral hip dislocation. She was put into a Pavlik Harness at 5 days old and wore it for 3 weeks. It corrected her left hip but the right was still a problem. She was put into a Hewson brace for 12 weeks and when that still didn’t work they scheduled a closed reduction.

We were devastated! As if having you first born baby in a brace wasn’t bad enough, we were now faced with having our sweet baby girl in a full body cast for 3 months!! What would we do?? How would we diaper, bath, feed, even go to the grocery store!! The day of her open reduction I was a mess! Addison was such a trooper though! She played in the pre-op room and was so happy (even without anything to eat.) All went well and we arrived home to start our journey.

As the days and weeks went by things got easier and pretty soon we were pro’s! I swear I am MUCH better at diapering a casted baby than an uncasted one! When cast removal day came, we were ecstatic!! How great it was to have our smooshy baby back!! Addie had to wear the hewson brace full time for a few more months and then back to nights only. We were optimistic with each Dr’s appointment and really hoped our journey was coming to a close. Unfortunately, her hips were not progressing and a Salter Osteotomy was scheduled when Addie was 15 months old. We were so scared! I couldn’t even think about them cutting my daughter’s hip bones and pinning them without getting sick to my stomach. This surgery was so much worse than anything we had been through! Addie spent 7 days in the hospital and was in such extreme pain! It broke my heart to see her so miserable. At to top it all off…..she contracted staph while in the hospital!! She lost 4 pounds and was very sick! After about 14 days she finally started to get back to “normal” and the task of entertaining a toddler in a cast began! Luckily we only had this cast for 5 weeks.

 

Addie is now 2 years post op and doing amazing! She started walking at 21 months and is now running, jumping, swimming, doing ballet, gymnastics and pretty much everything else any other 3 year old can do! Her hip is developing perfectly and she only sees the ortho once a year now. She is such an amazing little girl. I am inspired by her spirit everyday!

Through all of this, we have been amazed at the lack of information and consistent care in the medical community. Addie actually has CDH (congenital dysplasia of the hip) and her grandma had the exact same surgery in 1960. I’ll say it again, the same surgery 52 years later!!!!! How crazy is that?? There are so many children and adults that have this condition and the standards of care have not changed in over 60 years!!! With all the medical genius in this world, there has got to be a better way to help! I am committed to help One Hip World and the IHDI because I cannot bear to think of all the families that have to face this devastating journey!

What I have learned from this is that my baby girl is the strongest, most talented and amazing child! She suffered through all of this with humor, strength and tenacity! She got us through!
I am the proudest mama EVER!

Of course I have to mention the support I received from friends, family, Hip-baby.org and the Baby Center community chat groups….without you we would never have pulled through this ordeal! God is great and has blessed us in more ways than we can count! We have a beautiful healthy amazing little girl and he pulled us up from the ditches over and over again!

Thank you for listening to our story!
We hope that all your little ones have continued success and happiness through their DDH journeys!

Together we can…..Together we WILL!!!
-Kristy

For more on our journey visit: www.onehipblog.blogspot.com




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  1. Ailish Walsh says:

    Thank you for sharing your story. My daughter is at the start of her hip journey and we are in scary place at the moment. Isabel was born with severe bilateral congenital hip dysplasia . She has been in cast almost 6 months of her 7 and half months, has had 2 failed open reduction and is due to have a pelvic osteotomy at just over 8 months . Our surgeon is one of the best in the world, has never done this surgery on a baby as young as Isabel before and we are terrified !! To read your story, gives us hope and a light at the end of the tunnel, thank you!

  2. Jillian Sinasky says:

    My daughter has a very similar story. She is 4 now & has far-exceeded the Ortho’s expectations. We continue to monitor her growth. I echo the words you spoke, “The medical community needs to do a better job, researching & educating.” The fact that being born with CHD so severe it requires surgery & casting is very rare, is no excuse for not developing better treatments, and programs to educate parents on cast care. We shouldn’t have to spend days trolling the internet to educate ourselves…

    Good Luck on your “Hip Journey”
    ~Jillian

  3. Sophie says:

    Thank you for sharing your story. Just reading it, and knowing other people around the world share my daily struggles with my daughters hips, makes me feel like I am not alone.
    I connected with every word you wrote.Thank you.

  4. McKenzie says:

    Thank you for telling this story. I am doing a project on hip dysplasia for school and have been very surprised with the lack of information about this condition. You really went through a lot to help your daughter, and some parents I have read about are not able to give such great care to their children. It is truly a lot of work to tend the casts and braces. I just wanted to wish you well because you seem like a loving parent. Also, Addie is adorable! All the best to you both!

  5. Gill says:

    My grandson has just been told the harness he has been waring has not bought about the changes they hoped and may need surgery it seems like the end of the world to me as he is so tiny. Reading this and other storiedlike yours have made me realise that it isn’t and that we can have great hope for the future thank you for sharing your story.

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