Lauren

Hi!

My name is Lauren, I’m 18 and I’m from Scotland, UK. I was diagnosed with hip dysplasia when I was born. In the UK, the health system is very different.

When I was born, doctors told my mum that I would be okay and I would grow out of it. My hip joints at this point were not completely formed meaning my legs were stuck in the air all the time! Over time, my joints formed and I was a normal happy child. It wasn’t until I was around 12 years old that they really began to hurt.

At primary school, I loved running and was a keen cross country runner. When I started to feel the pain, I had to stop. I visited my GP and they just gave me painkillers. This didn’t help at all and I couldn’t climb upstairs at all. I spent a lot of time in bed as I couldn’t move. I visited again and was giving physiotherapy. The physio made the pain a lot worse and by this point, my hips were starting to dislocate and wear away the tendons in my legs. I was referred to a child orthopedic who said they cannot do anything for me until I have grown fully.

Six years on, I have been given five rounds of physiotherapy, a round of hydrotherapy and ultrasound therapy as well as countless prescription drugs. I am constantly at my GP but they refuse to send me to a specialist. It is affecting me daily and the pain in my hips has moved into my back and my knees which is really quite horrific. I now use crutches most days to get around. I joined my local gym to try and keep myself active and healthy but as I can’t do any cardio, it is a real pain. I spend most of my time on weights but even the weights are a painful ordeal.

I found this website today and I love it. It’s great to see everyone helping each other as here in the UK, I don’t know anyone else with this condition. I’m stuck in a rut with my GP, but my advice to anyone who’s child has hip dysplasia is to keep on at doctors etc and get it sorted while they are young. If my doctor had done his job properly, I would not be in this position.

Lauren :-)




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  1. Lauren Hurley says:

    This is so strange! My name is also Lauren, I’m 18 and also from the UK. I have had almost the same experience as you with hip dysplasia.

    Doctors just seem to keep telling me to wait and that I’ll ‘grow’ out of it. You’re not alone!

    Lauren

  2. Emma Ferrier says:

    I’ve no idea how old this post is but I’m 19 and also from Scotland and was diagnosed with hip dysplasia when I was about 12 months old I think – quite late on anyway. My case was severe as my hip was actually dislocated.

    I got hip pain every now and then but nothing serious, however right now I am in a fair bit of pain which I just feel is related to having hip dysplasia! I’ve never realised that there is a site about this and never realised how common DDH can be!

    Emma!

  3. Becky says:

    Hi, I’m from the UK too, the Midlands. My story is similar to yours. The doctors flagged it up when I was a baby but said I would grow out of it but at 20 years old the pain got too much so I went to the GP and
    got referred to an orthopaedic specialist. My specialist told me I needed a triple pelvic osteotomy to realign my hip. Now at 21, I have just undergone my surgery (10 days ago) the recovery time is long but it will hopefully result in me being pain free! Keep on at your gp’s because something can be done about it! Good luck:)

  4. Emma says:

    Becky, my daughter suffer from hip dysplasia, and she is a soccer player and 18 yrs old. She loves to play but always in a great deal of pain and I think surgery is the only options left. I would love to know how you are doing???

  5. Becky says:

    Hi Emma.
    I would definitely recommend the surgery it has changed my life! For me, It felt like it was the most terrifying thing i have ever done but now i look back and i shouldnt have been so scared because it was worth it, as soon as I came out of surgery I felt much more positive! recovery itself is not very painful at all, it is just a long process with a lot of physio therapy to rebuild the strength in my hip.
    I am now 3 months post op and feeling great, I should hopefully be returning to work soon and been pain free.
    Let me know how your daughter is getting on :)

  6. Clare says:

    Hi Becky

    It is great to hear your positivity and that in October you were making good progress. My 18 year old daughter is due to have a triple pelvic osteotomy later this year. We will need to plan how long she will be away from university and wondered how long it was until you felt confident in walking unassisted? Also on a practical level how long were you in hospital and were you able to climb stairs on discharge home? Any practical advice would be grearly appreciated.

    Hoping that you are still making good progress.

    Many thanks
    Clare

  7. Hailee says:

    Hi Lauren! My name is Hailee and I’m doing some research on hip dysplasia. I was wondering if I could ask you a few questions about your experience, thank you for your time.

  8. Marie says:

    Hi Lauren, my daughter Emma is 20 and has bilateral hip dysplasia, unfortunately she continues to persevere with this and is very limited to normal daily life.
    We have been advised to have the surgery we are in Hobart Tasmania.
    Postoperatively were you ok and how long did you stay in hospital?

    Thank you
    Marie (Mum)

  9. Becky says:

    Hi Lauren I hope you are doing well.

    My names Becky, I’m 20 and was diagnosed with bilateral go dyplasia at 18 months and have had 3 bilateral femoral osteotomies and a shelf put in my left leg, the last surgery I had was when I was 10 as if I didn’t have it I wouldn’t have been able to walk again.
    The last 2 years I have been experiencing pain in both hips, the last 6 moths have been awful I take tramadol 3 times a day which doesn’t work and the only drug stronger would be morphine. Currently seeing a specialist to get my hips replaced.
    I had the same problem as you, being so young no doctor wants to operate or anything as there is more risk. My gp was awful with referring me I kept pushing her to get me to see a consultant and in the end went privately. Just keep telling them about the pain and ask for a referral to your local hospital. The NHS does take forever though which is why I went privately, at least I’m not the only one who’s gp wouldn’t refer them.

    All the best
    Becky

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