Lauren

Hi!

My name is Lauren, I’m 18 and I’m from Scotland, UK. I was diagnosed with hip dysplasia when I was born. In the UK, the health system is very different.

When I was born, doctors told my mum that I would be okay and I would grow out of it. My hip joints at this point were not completely formed meaning my legs were stuck in the air all the time! Over time, my joints formed and I was a normal happy child. It wasn’t until I was around 12 years old that they really began to hurt.

At primary school, I loved running and was a keen cross country runner. When I started to feel the pain, I had to stop. I visited my GP and they just gave me painkillers. This didn’t help at all and I couldn’t climb upstairs at all. I spent a lot of time in bed as I couldn’t move. I visited again and was giving physiotherapy. The physio made the pain a lot worse and by this point, my hips were starting to dislocate and wear away the tendons in my legs. I was referred to a child orthopedic who said they cannot do anything for me until I have grown fully.

Six years on, I have been given five rounds of physiotherapy, a round of hydrotherapy and ultrasound therapy as well as countless prescription drugs. I am constantly at my GP but they refuse to send me to a specialist. It is affecting me daily and the pain in my hips has moved into my back and my knees which is really quite horrific. I now use crutches most days to get around. I joined my local gym to try and keep myself active and healthy but as I can’t do any cardio, it is a real pain. I spend most of my time on weights but even the weights are a painful ordeal.

I found this website today and I love it. It’s great to see everyone helping each other as here in the UK, I don’t know anyone else with this condition. I’m stuck in a rut with my GP, but my advice to anyone who’s child has hip dysplasia is to keep on at doctors etc and get it sorted while they are young. If my doctor had done his job properly, I would not be in this position.

Lauren :-)




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  1. Lauren Hurley says:

    This is so strange! My name is also Lauren, I’m 18 and also from the UK. I have had almost the same experience as you with hip dysplasia.

    Doctors just seem to keep telling me to wait and that I’ll ‘grow’ out of it. You’re not alone!

    Lauren

  2. Emma Ferrier says:

    I’ve no idea how old this post is but I’m 19 and also from Scotland and was diagnosed with hip dysplasia when I was about 12 months old I think – quite late on anyway. My case was severe as my hip was actually dislocated.

    I got hip pain every now and then but nothing serious, however right now I am in a fair bit of pain which I just feel is related to having hip dysplasia! I’ve never realised that there is a site about this and never realised how common DDH can be!

    Emma!

  3. Becky says:

    Hi, I’m from the UK too, the Midlands. My story is similar to yours. The doctors flagged it up when I was a baby but said I would grow out of it but at 20 years old the pain got too much so I went to the GP and
    got referred to an orthopaedic specialist. My specialist told me I needed a triple pelvic osteotomy to realign my hip. Now at 21, I have just undergone my surgery (10 days ago) the recovery time is long but it will hopefully result in me being pain free! Keep on at your gp’s because something can be done about it! Good luck:)

  4. Emma says:

    Becky, my daughter suffer from hip dysplasia, and she is a soccer player and 18 yrs old. She loves to play but always in a great deal of pain and I think surgery is the only options left. I would love to know how you are doing???

  5. Becky says:

    Hi Emma.
    I would definitely recommend the surgery it has changed my life! For me, It felt like it was the most terrifying thing i have ever done but now i look back and i shouldnt have been so scared because it was worth it, as soon as I came out of surgery I felt much more positive! recovery itself is not very painful at all, it is just a long process with a lot of physio therapy to rebuild the strength in my hip.
    I am now 3 months post op and feeling great, I should hopefully be returning to work soon and been pain free.
    Let me know how your daughter is getting on :)

  6. Clare says:

    Hi Becky

    It is great to hear your positivity and that in October you were making good progress. My 18 year old daughter is due to have a triple pelvic osteotomy later this year. We will need to plan how long she will be away from university and wondered how long it was until you felt confident in walking unassisted? Also on a practical level how long were you in hospital and were you able to climb stairs on discharge home? Any practical advice would be grearly appreciated.

    Hoping that you are still making good progress.

    Many thanks
    Clare

  7. Becky says:

    Hi Clare.
    I was off work for 5 – 6 months, but that was mainly due to the nature of my work ( working with special needs children)
    I was in hospital for 1 week and I was on 2 crutches, not being able to weight bear for 8 weeks. I think it was around 12 weeks I came off both crutches.
    The confidence with walking unaided was difficult to build. But having determination was the key. I was fully confident after about 5 months and felt almost back to normal.
    I had a long rehab and a lot of physiotherapy which was fantastic as I could feel my muscles and bones getting stronger than ever.
    In relation to the stairs, the hospital physios ensured I could climb up and down stairs before leaving hospital and it took some getting used to but again it was down yo confidence when using stairs. I soon got used to it :)
    Some advice would be to not expect to much too soon and always ask the consultant or physios if you are unsure of anything. Also another tip which I found a life saver was buying a coffee machine and putting it in the living room by my chair so I could make a drink myself, giving myself a little independence. ( I didn’t have much independence for the first month or so due to not being able to weight bear )
    Now I am 9 months post op and I am more confident then ever when walking. Yes I do still have slight stiffness and discomfort but I can ease it by streching/ exercising.
    I can now do things which I only dreamed of before.

    If you have any more questions or want more advice or your daughter wants to know anything at all I will be happy to help as I wish that I could have spoken to somebody for advoce before i had surgery.

    All the best!

    Becky x

  8. Becky says:

    Hi Clare. Sorry I was off both crutches completely at about 4 months. I used to use just one crutch when shopping/ walking longer distances etc. Just for support.
    Also applying for a blue badge was a life saver as I would not have been able to go to any shops without great difficulty due to needed a wider space to open the car door as wide as possible.
    I was driving at about 3 months post op. But that was from the advice of my surgeon.
    Becky x

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