Danielle

I am 37 years old and was just recently diagnosed January 2016 with Hip Dysplasia and Osteoarthritis in my right hip. I have been suffering with pain for the last 5 years since my daughter was born in 2010 but apparently was born with this congenital defect.

I was lucky to have made it through 32 years without pain. Although I did have a painless limp that many people would ask me about. I had no idea what they were talking about since I felt fine. It was really more embarrassing than anything else. After my daughter (second child) was born and the pain started, I just shrugged it off thinking it had something to do with childbirth. After 5 years passed and the pain was getting worse, I really couldn’t just ignore it anymore.

After all the ‘baby” was no longer a baby anymore. So I finally decided to go for the X-ray that told me exactly what’s been wrong with me all this time. I have to admit I freaked when I first heard the diagnosis. I kind of knew right away that it would mean surgery. I then went on my hunt for a good orthopedist and saw a couple of different doctors. The first one is a surgeon and he basically said that I either had to try to live with the pain or have the Total Hip Replacement surgery. Of course they always try to get younger people to hold off if possible because of the chance of needing to have a second Hip replacement later in life. I then went to another doctor for a second opinion who suggested the steroid injections. I had one and it was wonderful to be out of pain but unfortunately it only lasted about 5-6 weeks and here I am, back to square one.

I went back to the orthopedic surgeon because he is without a doubt the doctor I want to perform my surgery. I have heard so many great stories about him from people I know, he came highly recommended. He was very honest about all of the risks and what the recovery will be like and he doesn’t pressure you to make a decision. He doesn’t recommend getting too many of those injections though because of the increased risk of infection and to be honest, it’s not something I really want to have to do every couple of weeks.

So here I am at the point where I decide whether to continue living in pain or just suck it up and have the surgery. To be honest, my tolerance for the pain has definitely decreased now that I know how it is to live pain-free but I’m very leery of having such an invasive operation. I have never had surgery before, not even a C-section so this is quite frightening to me. I really have no issue with my age. I understand that I will most likely need to have another THR in the future. I would rather have a good quality of life now and not feel 87 at the age of 37. We are also planning a trip to Disney next year and I want to be able to enjoy that instead of hobbling around and not being able to keep up with my kids.
By writing this, I am hoping to make a connection with someone who is going through the same thing as me. I have great family and friends, a lot of support but nobody that truly can understand what this is like. I would also like to hear some success stories from people that have been through the Total Hip Replacement surgery.




Is this your story? Log in to reply to comments.

76 Notes

+ Leave A Note

  1. Danielle M says:

    Update: I decided to schedule the surgery for July 6th, fingers crossed I made the right decision but I feel like I have!

  2. Janet Falter says:

    Danielle, I can make a suggestion to you based on my past. I also was born with bilateral hip dysplasia but had no problems until I was 46. At that time I was diagnosed with labral tears in both hips most likely caused by exercising. I was very fortunate to be referred for a resconstructive surgery called periacetabular osteotomy which relieved the impingment that was causing some of my pain, and also rotated and moved the socket to cover more of the femur head. It was major surgery, but I would recommend it to anyone with the problems that I had, which sound similar to yours. I am now 61, and it has been 10 years since the surgery on my left hip, and it has been a great 10 years. So many doctors want to go directly to a replacement but I personally want to keep all my bones as long as possible. I am more fearful of needing a second replacement since the odds of success decrease.

    • Danielle M says:

      Thank you Janet, I appreciate you sharing your story. I am so glad to hear you are doing better. My right hip is in pretty bad shape and I’ve been told by two doctors that the replacement is really my only option so I’m going with it. I totally hear you about not wanting a second replacement but I’m just trying to take each day as it comes. The surgeon did tell me that my left hip looks like it will eventually be causing me problems as well and after we deal with the right hip, we will be addressing the left hip with preventative measures. I have a feeling that may be the PAO surgery.

  3. Heidi says:

    Going through the same thing:( I’m 36 with two young kids and tired of limping around and having the kids see me in pain. I’m scheduled for a pao on July 5th. I alternate between panic (and thinking about cancelling the surgery) and knowing that I have to do it. It’s tough

    • Danielle M says:

      Good luck with your surgery Heidi! We’ll be going in at the same time. I know what you mean, I am terrified but I think I’m more afraid of what’s going to happen if I don’t do it. I can barely walk througn the grocery store or Target anymore and forget about taking a walk outside with the kids. I’m sure you feel the same way, we’ll both get through it!!

  4. Kim says:

    Hi there
    I’m reading your story, Danielle, and I have a similar one! I’m 41 years old. 3 kids. I was fit and active my whole life. I gained weight, lotsa weight with the babies, and life changed, so I didn’t really notice the changes in my gait. By baby number 3 at age 40, I had a pronounced limp. There has been hip pain on and off throughout my 30s. Nothing that lasted more than a few weeks. This past year, my limping became severe. My pain increased in my groin. A physical therapist friend told me he thought I had torn labrums, and wanted me to see an orthopedic surgeon. My GP doc said xrays from 2 years prior had showed arthritis and bone spurs in my hips, so she didn’t repeat xrays, instead she sent me to physical therapy. After 6 weeks at PT, I was referred to an orthopedic surgeon. Finally, a diagnosis. Bilateral hip dysplasia. Osteoarthritis so advanced that total hip replacement surgery is my only option. I’ve been waiting 6 weeks to meet the hip replacement surgeon. 2 more weeks 2 go. I cannot wait!! I walk so terribly. I fell down some stairs yesterday. I wish you and all others good luck
    I will be following your success here!!!

  5. Heidi says:

    I could probably live with not being able to grocery shop, but giving up Target, not happening!:) We can’t let these hips ruin shopping!

  6. Sarah says:

    I’m so glad to have stumbled across the patient stories here. I share some commonalities with both Danielle and Heidi. I was first diagnosed with hip dysplasia when I was 28. The ortho I saw at the time recommended weight loss as a way to relieve pain. I lost 30 pounds and noticed significant, but not total, relief. Eleven years later, I have a 7 yo I didn’t have before but those 30 pounds that I did. Weight loss after a child and closer to 40 is…slow. My ability to exercise is nil, and I am in constant pain at this point. As a teacher, I stand and walk all day. It is embarrassing to feel so grumpy and old all the time because of the pain. In the last year, I have seen two orthos who both recommended enduring the pain as long as possible. I just don’t know how much longer that will be. Good luck to you both with your procedures, Danielle and Heidi!

  7. Wendy says:

    I am going through the same! In 2014 I fell HARD on rollerskates and that set into motion everything! I fractured my cocyxx and 7 months later while picking up a large stone my leg just gave out. Pain!! I went to an Orthopedic surgeon and after xrays, he diagnosed me with bilateral hip dysplasia, hip impingement, and possible labral tear at the age of 45. After seeing a PAO specialist it was determined I had too much OA in my joints, so to make a long story not so long, I see a 9th doctor in 2 years to hopefully get my surgery date!! Good luck to all of you!!!

  8. Verna says:

    Danielle, I have had full hip replacement on both of my hips. The first at the age of 42 and the second at 56. I am a runner and began to feel pain in my shins. Doctors could not find anything wrong. Finally I went to an orthopedic surgeon who told me I had hip dysplasia. The mind is powerful. After hearing that I began to feel the pain in my hip. I am so very, very glad I had the surgery. The pain from the surgery was so much easier to bear than the pain from my hip bones rubbing together. It’s also a matter of quality of life. You will enjoy doing more with your young children after the surgery. I wish I had done the surgery earlier. I recommend that anyone with this affliction not wait for to get older, the pain only gets worse, and sometimes in my case the bone on one leg wears down quicker causing a shorter leg than the other. I wish you the best of luck, but trust me, you will feel so much better.

    • Danielle M says:

      Thank you for the encouragement Verna! I’m glad to hear that you had successful operations and I have the same problem you do with the difference in leg lengths. My right leg is shorter than my left.

  9. Heidi says:

    I have the leg length issue too. I feel like it causes me a lot of low back pain and just adds to the misery. I’m also really glad I found some women dealing with the same stuff. I’ve seriously considered canceling my pao but hearing these stories has helped me realize that I’ll probably regret it down the road.

    • Danielle M says:

      Yes Heidi, the leg length difference is certainly an issue. I put one of those Dr. Scholl’s pads in the shoe of my right foot which is the shorter leg. It helps a little but I definitely have lower back problems too. I noticed that when I sleep on one side for too long, my hip, leg and lower back hurt. The pain is always the worst when I first wake up in the morning. Does anyone else have that experience?

  10. Heidi says:

    Absolutely! Walking first thing in the morning is rough and I wake up a lot during the night to adjust my position. My left hip is the one with the tear and I can only lay on that side for a short time before I have to turn over. I haven’t tried the shoe insert, maybe I would have less back pain at the end of the day if I got one..thx for the tip!

    • Danielle M says:

      No problem, glad we have a forum like this where we can be of support to each other. It sounds like you and I are having very similar experiences. I toss and turn all night long trying to get comfortable and it’s actually painful and hard to roll over. There are some mornings I would love to just lay in bed but it physically hurts to so I get up. I feel like I’m 100 years old some days :-(

  11. Alice says:

    Hi all I have just been diagnosed wit acetabular dysphasia in my right hip but now my left hip is paining me when I sit down I havnt seen a specialist yet as der is a 18 month waiting list

  12. Heidi says:

    It definitely sounds like we are having similar experiences. Hopefully 6 months from now we will be in much better shape!

  13. Julie says:

    This is so interesting and informative ladies, thank you. I am going through the same thing and are due to see hip specialist mid June after suffering for 4 years. Good luck ladies

  14. Kristine says:

    I became painful after running a 5k at age 41. The discomfort became worse and within 6 months I was losing range of motion, I could barely lift my leg past 90 degrees. Shaving my leg and trimming my toenails was becoming impossible. I was diagnosed with hip dysplasia and messed around with exercises and injections for a few years then finally had a total hip replacement at 45. Best decision I ever made, actually wish I had done it sooner. I was limping pretty badly and after surgery my limp disappeared along with the pain, my range of motion is great, I can touch my nose to my knee:) Recovery wasn’t bad at all, I was back at work for 2-4 hours at a time after 2 weeks. I’m 50 now and my other hip is becoming painful, I’ll have another total hip without any hesitation. I’m not worried about the revision surgery I will need in 20 plus years, I love being pain free and happy:)

  15. Allison says:

    I had hip dysplasia that was not caught until I was nine, while doctors were looking for something unrelated. I had major surgery at that time, and was doing well until a few years ago, when I started having pain. I tried to ignore it, but, long story short, ended up having a hip replacement when I was 29. I’m SO GLAD I did it. I will be praying that your surgery goes as smoothly as possible!

    My story is on here also, if you’d like to read it.
    https://hipdysplasia.org/patient-stories/adult/allison/

  16. Iris says:

    Dear Danielle:

    I am so happy I found your story and read it! I too was born with a (bilateral though) hip dysplasia. Oh the pain! I was first diagnosed in 2012 thinking the pain was from carrying too much weight on my hips and x rays later…bilateral hip dysplasia. At first I figured I’d lose weight to alleviate the pain and limp but I could not exercise at all. I had terrible insurance so I settled for terrible doctors.

    Fast forward and at 36 (with my now husband’s great insurance) the first orthopedic surgeon and I thought I was too young for hip replacement. I went to get a second opinion and was told the hip replacement would be my best option considering the pain and severe limp I’m living with.
    My hip replacement surgery (right hip) is scheduled for May 11th 2016.

    Thank you for sharing your story. You have made feel less lonely in this condition and inspired me to share my own story.

  17. Sarah says:

    I’m so happy to have stumbled upon this today! Thank you all for sharing your experience. I’m 35 years old and have been having right hip pain for maybe 2 or 3 years that has become much worse lately. I had an x-ray today that showed possible hip dysplasia, and I will have an MRI scheduled soon. I realize I’m in the early stages, but your stories sounds so very familiar to me. I’ll be following, and please keep us posted on how surgeries, etc. go for you!

  18. Michelle says:

    I am glad I found this site! It’s making me feel better about having my hip replacement on June 13. I too can only sleep so long on my left side before it starts hurting and have to turn. Standing for any length time hurts not only my hip but me knees too. I am trying to lose some weight before surgery but its not working to well. Thank you.

  19. Rebecca C says:

    Hi Danielle – my situation was very similar to yours, except my left hip was the troublemaker. I was not a candidate for the PAO on the left side as I had virtually no cartilage left. I had my THR on 3/30/2016 and I was cleared for a full return to activities on Monday! I feel great! I got my life back and my husband got his wife back!

    • Danielle M says:

      Hi Rebecca, that’s awesome! So glad you are feeling well! I am so grateful to read your comment today as the anxiety has really started setting in. Today is officially one month to go until my surgery and I’ve been having second thoughts. I know I just have to be strong and stick with it because it will all be worth it in the long run. I’m particularly worried about the recovery. So it wasn’t bad?

  20. Kathy says:

    I have had pain in my left hip, with limited range of motion and “popping” for as long as I can remember; I am now 67 years old. I am otherwise healthy, and can walk for about 15 – 20 minutes a day, but can’t keep up with my family. My Internist would never take it seriously. Finally I went to a “Sports Doctor” who said I had a “tendinopathy,” which doesn’t seem to mean anything. Then recently my older sister told me about her similar hip problems, and the term “dysplagia” came up. After reading what you ladies have written here, I am going to look for a doctor who will take my hip pain seriously and perhaps find me some help. It seems so unfair to have to go through life like this. Thank you all for the information–whether or not I have dysplagia, it is a starting point!

  21. Leslie says:

    Hi this site appears to be very informative and most of all enlightening. I am a 44 year old female with recent diagnosis of right hip congenital dysplasia on 03/2016. I have never experienced any pain or discomfort to my right hip and lateral portion of right leg until October 2015 as I assumed it was sciatic nerve pain accompanied with piriformis syndrome per my research on the web. As my unsuccessful attempts to self treat with the use of stretches,rolling pin down the lateral portion of leg, tennis all on the buttocks and over the counter Motrin my desperation led me to chiropractic care that was effective for several months but in Feb. 2016 when I had to use my left hand to lift my right leg and then had stiffness in my inner groin I knew it was time to seek orthopedic treatment, with the assistance of my chiropractor he was able to obtain an appointment for me in two weeks which led me to March 2016. I was not very fond of the orthopedic doctor I had met with which his diagnosis was congenital hip dysplasia with osteoarthritis with his words being a total hip replacement is in your near future. I did seek a second opinion in which the diagnosis was same but the second doctor was a bit more seasoned and proactive as his suggestion was total hip replacement. I am just a bit apprehensive at my age to do a total hip. I guess it may be denial on my part but no more than ten years ago the big trend was to wait as long as you could (age wise) due to the the longevity of the replacement. I greatly appreciate the time you have taken to read this.

  22. Susanne says:

    Your stories are similar to mine. Thank you so much for sharing. It validates how I am feeling. I am 48 and just found out that I have congenital hip dysplasia that I was born with. I had problems here and there throughout life but the last three years have gotten severe. I don’t even feel like walking 1/2 a block, I have so much pain. Quality of life really is nil right now. I go for injections tomorrow for the first time and am really nervous, but know that it is the last step before surgery on both hips. Thank you for sharing and making me feel better about my situation. Best Wishes to all of you.

  23. Heather says:

    For some of you in your 30s, why not a PAO? Why total hip replacement surgery? Just curious. I am 33 diagnosed with labrum tears and right hip dysplasia and contemplating PAO surgery

    • Danielle M says:

      Heather, my Dysplasia is too foregone for the PAO. I’m okay with having the replacement though. I’ve made peace with the fact that it’s not going to last forever.

  24. Ruth says:

    Hi, I’m so happy to have stumbled across this site. My daughter who is a passionate 13 yr old dancer hit her hip whilst in training. She developed a pain in her right side which steadily got worse over a few weeks resulting in my decision to get her checked out with a doctor. We were then sent to have X-Ray’s, an MRI and Ultra Sound. The results were that she had damaged the cartilage between the ball and socket of her hip joint and that she has hip dysplasia. His words were, ‘I can’t tell you what to do but I would be asking myself how important dance was.’ I can’t begin to tell you how devastating this is for her and at her age how do I go about making her understand what the impact of this may mean in the end. It’s not only the dance that is important to her but all the friendships that go along with it. Can’t sleep just worrying about it.

  25. Danielle M says:

    I truly appreciate everyone’s comments, haven’t been able to answer all of you but you are all in my thoughts and prayers :-)

  26. angela g says:

    I’m so happy I just found this site. My surgery is coming up June 20th, so just a couple weeks away. I am a single mother how to very active girls. We went to Disneyland last year and I was miserable. I even have a hard time shopping. It’s depressing I can’t wait to have some relief.

  27. Crystal says:

    Oh man ladies! I feel your pain! I’ve been through a lot and deal with pain easily but this pain is exhausting, Went to the dr today and I have hip dysplasia and possible tear. I’ve always had a walk that everyone noticed and have had clicking/popping/instability….now I just can’t stand it anymore! The pain keeps me up most nights and I am like a rollie pollie! I’m 32 and have three little ones I need to keep up with. I had ankle surgery for avascular necrosis in December and now see a surgeon tomorrow to see what he recommends for this. I hate surgery but I definitely can’t live with this forever. I just can’t take the pain anymore and want to feel 32 instead of 90. :) you ladies give me hope! I couldn’t walk after an injury in the military and I am grateful to be walking now…. it’s just tough going through all of this. If any of you want to keep in contact, I would love to listen and be there for you through your journey. My email is smilingbecauseyousmile@gmail.com.

    • Danielle M says:

      Crystal, I can completely relate to you. I always say I feel like I’m 90 too! Yesterday, I had to take a class at the hospital on what the surgery and recovery will be like. I was the youngest one there by decades and I felt so alone and isolated. I am so grateful for this site that we are able to come together and be there for each other because there is quite a stigma that comes with having this problem.
      I am also completely overwhelmed by the amount of information I was given. It’s going to be a long road but it’s great that we all have each other to get through this.

  28. Jenni says:

    My story is similar, 37, diagnosed with hip dysplasia. Talked to several Drs about options and was thinking PAO was the way to go, but I just found out yesterday that my cartridge in my right hip is too far gone. He recommended talking to another Dr. about hip resurfacing though. Anyone have experience with this bc if I can get insurance to not fight me on it, I am thinking it might be the way to go.

  29. Lucy says:

    Hi everyone, I’ve just been reading your stories an awful lot are similar to my own. I’m 41 disgnosed with hip dysplasia last year, right hip mild left hip moderate. I’ve had 4 children and over the last 20 years I’ve had general low back pain but have had no symptoms of dysplasia until 2 years ago. I found out from my mum I had it but docs said at the time it wouldn’t cause me problems as it was mild, well they were wrong. Initially the specialist I seen thought I had labral tears so i had an MRI, I don’t and no arthritis, so I’m currently waiting for an appointment to be seen at the Children’s Hospital possibly for a PAO, I really don’t want surgery, I’ve not had surgery before and am scared, but I’m in constant pain and now taking codeine every day I can no longer cycle or jog which I love, I’m putting on weight and have had to cut back on working too, generally life’s a bit rubbish at the moment! Thankyou for sharing all your stories, it has helped me immensely in figuring out just what to expect in the coming months.

  30. Danielle M says:

    1 week to go before surgery, so nervous! Please send prayers!

  31. Heidi says:

    So did you have your surgery as planned? I’m now 10 days post PAO. The pain is pretty tough but being dependent on everyone to help me might be more difficult. Just wondering if all went well and how you are doing.

    • Danielle M says:

      Hi Heidi, yes I had my surgery a week ago yesterday. I know exactly what you mean, it is so hard to be dependent on others. I think that part is even harder then the surgery was itself. My husband has been very supportive and so helpful but I’m just afraid of what it’s going to be like when he goes back to work. I feel like I’m getting a little stronger every day though so there is a light at the end of the tunnel. I hope you are too! Good luck with your recovery and please keep in touch.

  32. Tasha says:

    Hi Danielle,
    I was dx this past December. I will be having my PAO surgery 8/26/16. Just wanted to know what type of devices you ladies have used to help post surgery?

  33. Danielle M says:

    Hi Tasha, I needed a few devices. A lot of them I bought through the hospital such as a walker and a hip kit that includes a grabber to pick things up off the floor, long shower brush etc. I also bought a commode through the hospital, you will definitely need to have some kind of raised toilet seat. Also you will need to purchase a cane. You will advance from the walker to the cane to eventually no aide. I stopped using a cane or a walker by 3 weeks post-op

  34. Heidi says:

    Hi Tasha, I had a PAO, it’s a different recovery from a hip replacement. You will be non weight bearing for 6 to 8 weeks. You will need crutches during those weeks, but the hospital should supply them. You will also definitely need a shower seat. I would ask your doctor about what else you will need. I assumed I would need a raised toilet seat and bought one…then my doctor tells me I’m not allowed to use it. He didn’t want me using it because he wanted me to push myself to use the full range of motion on the surgical hip. Every doctor has a different post op plan. They should give you all the details before the procedure.

  35. Carol Priest says:

    Hello Danielle.

    I’m having to make a very quick decision about scheduling my THR. Reading your story has helped. I wonder how you are doing now ? Could you manage stairs ( I live in a house of stairs) and my spouse would be gone 3 days of the week. Could I manage without him during that time ?
    Mostly — how are you ??!!

    • Danielle M says:

      Hi Carol,
      I’m so glad to hear that my story has helped you. I am doing well, it’s been 7 weeks now since I had my surgery. I have to be honest, the first 2 weeks were really tough. I would make sure you have someone there to help you if your husband isn’t available. My husband was literally doing everything for me those first couple of weeks. When I was able to take a shower, about 5 days after surgery…he had to help me. You will see though, it won’t take long for you to become more independent. I stopped using my cane after 3 weeks! It is def worth it to do this if you are experiencing a lot of pain.

  36. Julie S. says:

    Thanks for your post! I am a 37 year old, mom of 2, and just had a posterior THR almost 5 weeks ago. I was diagnosed with hip dysplasia which led to osteoarthritis in my R hip. I also had a tear in my labrum and 3 large cysts that were found on the MRI.
    I was nervous about surgery, but was ready to be out of pain. I found a great surgeon where I live and felt very confident that I was in good hands.
    My surgery took about an hour and a half and I was in the hospital for 1 night. The day after surgery I was up slowly walking with a walker and slowly walking up stairs. Our bedroom is upstairs, so before I left the hospital, I had to walk up and down stairs to be discharged. I did it and was able to sleep in my bedroom!
    The first week after surgery was tough because I just hurt everywhere. My arms hurt, abs, feet, head, and of course my incision hurt. I had 39 staples in my incision. Recovering from a major surgery like this is exhausting.
    I arranged for PT to come to my house for the first 2 weeks after surgery and that was one of the best decisions ever. I have continued going to PT 2 x’s a week and that has really helped my progress.
    With time, my pain level has come way down, my energy has gone up some, and I am walking without my cane this week!
    I can honestly say it was worth and I’m on my way to being pain free. When the time comes to have surgery on my left hip I’ll be ready.

    • Danielle M says:

      Hi Julie,

      I am so glad to hear how well you are doing! Luckily at this age, we do seem to bounce back quickly. I went back to work two weeks ago and have been feeling a little better every day. How old are your kids? Mine are 9 and 5, they will be going back to school next week and I am happy to say that I am ready to take on the challenges like homework and after school activities. That’s why I chose myself to do the surgery over the summer when I could rest.

  37. Bless says:

    Hi Danielle,

    We have a very similar case. I am now 36. I was diagnosed with congenital hip dysplasia when I was 16 yrs old, but since I don’t feel any pain that time I just shrugged it off and used a heel pad to deal with the leg difference (5cm). My ortho warned me though that there will come a time that my hips will have to be replaced.
    6 weeks ago (20yrs after I was diagnosed), I started to feel severe pain on my hips that I cant bear to walk 10 steps. I went to see my ortho and he told me that its time for a THR. I am now planning to undergo THR on November and im so scared and depressed :(.
    I’m so glad I found this forum.. it somehow alleviate my depression and anxiety.

    By the way, do you have leg length difference after the surgery? I heard it is one of the possible negative result of having THR. I’m so worried my current 5cm discrepancy will be higher.

    • Danielle M says:

      Hi Bless,
      I know we have spoken about our situations before, try not to worry too much. I know it’s a very scary surgery but you will be so much better off in the long run, I promise. As far as the leg length difference goes, I was told that could be a concern as well. Like you though, I already had that problem going into surgery and in my case, it was corrected. The thing is though if I ever have another one, they could become uneven again. It’s definitely a risk but I think worth it. It you need to continue wearing a pad in your shoe, at least you won’t be in excruciating pain anymore. I am here to talk you through this process, no worries

  38. Danielle M says:

    I just want to share that I went on a walk around the neighborhood with my daughter tonight and it felt wonderful! I can’t remember the last time that I took a walk without being in pain afterwards! I am so glad to feel like a normal 30 something old!

  39. Julie S. says:

    Danielle,
    My kids are 12 and 9 and have been great through this entire process.
    That’s great that you took a walk and are feeling good.
    I had my 6-week follow-up with my surgeon and he says I’m walking great.
    I am still sore when I get up after sitting and sleeping (esp. In my lower back). I am working on stretching/strengthening my muscles. I went for a 25 minute walk yesterday and today I rode my recumbent bike for 20 minutes. It feels great to do some cardio and not hurt!

  40. Emma says:

    Hi ladies, again so glad I found this site. I am 30 years old and I’ve currently been off my work for nearly a year. The whole process started with Knee pain, which I went for various MRI scans, intensive hydrotherapy, cortisone injections and a local anaesthetic into the front left handside of my left knee which helped. At this point my left hip was really sore, into my groin and lower back. Everyone just it this to overcompensating. All of my scans were clear and the physio didn’t help so after the LA into my knee helped, he diagnosed me with fatpad syndrome. I had Scope surgery in March 2016. I was only meant to be on crutches for a couple of days. I’ve still got a crutch just now. 8 weeks post op I seen the knee consultant and he was in shock that I was still on 2 crutches and unable to actually bend my knee! I told him my hip was still really sore. He told me,”we scanned your hips and they are clear!” I quickly corrected him and he even checked his computer to confirm I hadn’t had scans on my hips. He sent me for a hip mri scan & to see a paij specialist about my knee. Shortly after he actually phoned me with mri results & that I would be sent an appointment for the hip consultant.
    I saw the hip Dr & he confirmed a labral tear and a cyst but wanted me to go for an Arthroscopy Mri. This wasn’t pleasant, pretty sore tbh. I went back to see him & he believes I have hip dysplasia in my left hip. The radiologist hadn’t picked up on it in his report back to the consultant so he sent me for a 3D CT scan and a local anaesthetic into my hip joint. If this helped the pain then he said we would be looking at PAO. I go back to see him this Wednesday and I’m so nervous. I’ve had surgery before but never as big an operation as this. Throughout this I’ve been on an intensive physio course and I’ve got my knee bending but the original knee pain is still there and my hip pain is so sore. Pain relief medication I’ve been in for months! Tramadol, gabapentin & naproxen. I’m so scunnered by it all, if they had scanned my hip before the knee surgery then I fully believe I wouldn’t have had the knee op.

  41. erin says:

    Janet Falter –

    Thank you for sharing your story. I have been looking for people that have had a positive outcome with PAO surgery. I am 37 and have bilateral hip dysplasia.
    Started noticing pain after birth of my 2nd child. (have 3). Have done a few rounds of PT, but noticed more pain this past year and have had to cut back on my activities. Like the idea, too, of keeping joints I have and correcting them, rather than doing full hip replacement, but surgery seems scary and uncertain. I’m so glad to hear that you had so much success with it! That is encouraging.

    • Danielle M says:

      Hi Erin, don’t be afraid to have the surgery. I’m telling you it is the best thing I have ever done. It has been six months already and I barely give a thought to my hip anymore. Meanwhile this time last year, the arthritis was unbearable due to the cold weather. Our stories sound very similar too, pain started after second child except my second was my last lol. Hope you feel better and don’t hesitate to contact me with any questions.

  42. Amanda says:

    What a wonderful site. So glad your surgery was a success Danielle. I first experienced sudden pain on walking in 2009 which developed into excruciating nerve pain down my leg. Although writing this now, I do remember first experiencing locking in my hip on bending when I was around 17 (around 1985) and occasionally feeling pain but nothing much all through my twenties and thirties. Anyway, in 2009 I saw an orthopaedic surgeon and had an X-ray. Initially on my follow up appointment he said nothing was found. He obviously hadn’t looked at the image because he said ‘oh wait a minute…’ !!! The image showed cysts on the joint but over the course of a year the pain subsided. I had no treatment but was offered exploratory surgery to see what was going on inside. I didn’t feel confident in that particular surgeon and being a horse owner, I couldn’t afford to take time away from the stables so with the pain gone, I decided against surgery. I’ve since experienced different types of pain over the years, lower back pain on standing, groin pain, nerve pain and the feeling of walking on a stub all of which are intermittent and last a few days. The pain is different each time but I take neurofen which helps. Before Christmas 2016 the sudden onset of extreme nerve pain in my groin and down the front of my right leg into my knee led me to visit the doctor again. An X-ray showed showed right hip dysplasia (not sure why this didn’t show in 2009), with considerable deterioration since the last X-ray. I’ve now had an MRI which shows extensive hyaline cartilage thinning and cysts and other findings that I don’t understand the meaning of. The surgeon says at my age, 49, I am not a candidate for any surgery other than THP as the degenerative changes are too far gone. He said I could try physiotherapy but really it is only a matter of time before surgery is needed. The pain over Christmas was so bad and lasted a couple of weeks that I decided surgery couldn’t come quick enough. I’m booked in for 9th Feb. But now typically the pain has died down a lot and i haven’t felt the need for any medication (although I do have a high pain threshold). I get the occasional pain but nothing like it was and i’m able to walk the dog for half an hour at a time and i don’t feel too bad at the moment, although very stiff when getting up in the morning and getting up from sitting. I know the pain will come back but why has it died down? Has anyone else experienced these symptoms? I’m so scared about having the surgery and the recovery after I just don’t know whether I should do it now as planned as the MRI doesn’t lie, or do I wait until my pain is excruciating 24/7 for months on end and my quality of life is nil. Any advice or similar experiences most welcome!!

  43. Amanda says:

    Hi Diana

    What a wonderful site. So glad your surgery was a success Danielle. I first experienced sudden pain on walking in 2009 which developed into excruciating nerve pain down my leg. Although writing this now, I do remember first experiencing locking in my hip on bending when I was around 17 (around 1985) and occasionally feeling pain but nothing much all through my twenties and thirties. Anyway, in 2009 I saw an orthopaedic surgeon and had an X-ray. Initially on my follow up appointment he said nothing was found. He obviously hadn’t looked at the image because he said ‘oh wait a minute…’ !!! The image showed cysts on the joint but over the course of a year the pain subsided. I had no treatment but was offered exploratory surgery to see what was going on inside. I didn’t feel confident in that particular surgeon and being a horse owner, I couldn’t afford to take time away from the stables so with the pain gone, I decided against surgery. I’ve since experienced different types of pain over the years, lower back pain on standing, groin pain, nerve pain and the feeling of walking on a stub all of which are intermittent and last a few days. The pain is different each time but I take neurofen which helps. Before Christmas 2016 the sudden onset of extreme nerve pain in my groin and down the front of my right leg into my knee led me to visit the doctor again. An X-ray showed showed right hip dysplasia (not sure why this didn’t show in 2009), with considerable deterioration since the last X-ray. I’ve now had an MRI which shows extensive hyaline cartilage thinning and cysts and other findings that I don’t understand the meaning of. The surgeon says at my age, 49, I am not a candidate for any surgery other than THP as the degenerative changes are too far gone. He said I could try physiotherapy but really it is only a matter of time before surgery is needed. The pain over Christmas was so bad and lasted a couple of weeks that I decided surgery couldn’t come quick enough. I’m booked in for 9th Feb. But now typically the pain has died down a lot and i haven’t felt the need for any medication (although I do have a high pain threshold). I get the occasional pain but nothing like it was and i’m able to walk the dog for half an hour at a time and i don’t feel too bad at the moment, although very stiff when getting up in the morning and getting up from sitting. I know the pain will come back but why has it died down? Has anyone else experienced these symptoms? I’m so scared about having the surgery and the recovery after I just don’t know whether I should do it now as planned as the MRI doesn’t lie, or do I wait until my pain is excruciating 24/7 for months on end and my quality of life is nil. Any advice or similar experiences most welcome!!

    • Danielle M says:

      Hi Amanda, yes it is very normal for the pain to come and go. I know how frustrating that is when you’re facing a big surgery. You start questioning whether or not it is really necessary but I can assure you it is. This is a degenerative disease and it’s not going to get better on its own. I suffered with on and off pain for 5 years before I even had the X-ray done. I just kept hoping it would get better but it ended up getting much worse and there was really no other option. Believe me though when I tell you, you will be so happy once you’ve done it and are past the recovery. I really feel like a new person and you will too! Good luck!!

  44. colleen t says:

    Danielle,
    I’m 46 and diagnosed with bilateral hip dysplasia at 38. I lived with pain for many years before deciding I could no longer be active (running every day) and raise my 2 growing kids who are now 11 and 13. I had my first THR on the right side last year on Jan 28th. I am now smart enough to know I need the other hip done. It went downhill after a marathon week in Walt Disney World in Nov 2016. I am now limping and in more pain with the left hip than I ever felt on the right. The second surgery, this time replacing the left side, is april 27th, 2017 and cannot come soon enough. It is a bitter pill to swallow at diagnosis, but totally worth the journey knowing there is relief on the other side. I had and will have another anterior approach and recovery is notoriously better than the other surgical incisions. My tiny scar on the front of my upper hip is a badge of honor and will soon have a friend on the other side. I hope your other hip hangs in there and you don’t have to make this decision again. But, if you do, know there are others out there that faced it.

    • Danielle M says:

      Hi Colleen, wow! Your story really resonated with me. Ever since I saw your comment, I swear my left hip has been bothering me lol but seriously, I have my trip to Disney planned for this August. I have a funny feeling that I will be planning another surgery shortly after. You are right, our scars are a badge of honor and I definitely don’t plan on suffering for another 5 years!

  45. Jamie says:

    I am 34 and was diagnosed with hip dysplasia about 3 years ago. The pain has recently become almost unbearable. It runs from my right groin to my knee and sometimes to my foot. It hurts all the time, when I stand, walk, sit or lay down. I am now desperate for some relief and have an appointment coming up with a hip specialist. Not sure what he’s gonna say because like you I have tried the injections and only got a week or two of relief, not to mention the injection is very painful. I have been using a cane to get around for 2 years but it has gotten so hard to walk even the cane doesn’t help. It’s embarrassing to have a limp and be using a cane at 34 years old and the pain from the hip dysplasia is absolutely terrible. I wish you the best and I hope we can all find relief!

    • Danielle M says:

      Jamie, I completely understand what you are feeling! If your doctor recommends the surgery, don’t put it off. It’s the best thing I ever did. Nobody in their 30’s should be suffering in that kind of pain…trust me, I know! Good luck to you!!

  46. Jessica says:

    I just read the story – but not all the comments. EXACT SAMESIES. Except my diagnosis was when I was 34, a year after I had my baby (a year of midwives saying just wait till the hormones ease up when I’d complain of the pain.)

    I’m now 38 and while Hydrolauronic Acid has helped, I just had injections last month and the pain hasn’t subsided. I feel so scared. The pain always is bad anyway, but the gel helped with mobility and tolerance of the flare ups. Muscle relaxers don’t help. Tylenol doesn’t much either. I’m going to now try weight loss and chiropractors and go back to physical therapy. But I am anxious to see what others have shared.

  47. Emily says:

    I am a 32 YO competitive track cyclist and power lifter. I have had some form of hip pain on and off for a few years but it was manageable until this past Spring. By mid-summer it had become severe and I could no longer ride. Ultimately I was diagnosed with unilateral hip dysplasia, severe arthritis, and labral tears. NSAIDs and cortisone injections and PT have not helped and I am now walking with a cane. I have had two surgical consults and surgeons agree a THR will ultimately be the next step…. but while I have severe pain and am developing mobility issues, I do not have bone-on-bone arthritis quite yet, and so they are not willing to consider me a candidate until that time. Meanwhile, I am facing some serious physical limitations including the potential need to change employment.

    Any one else in this boat?

  48. Laura says:

    Hi just stumbled onto here…
    Only just 2 years ago I found out I had bilateral
    Hip dysplasia with labral tears in both hips
    And cysts and bone cyst and osteoarthritis in both.
    I had been limping and just though I had a bad back.
    Was shocked and now just had my new bub and the added
    Weight is not good at all…

    I have seen several surgeons but because I’m 36 they
    All say I’m too young n to hold off longer as I may need
    Another total hip replacement again in another 15
    Or 20 years.
    I walk with a forearm crutch as my hips are unstable
    And painful n they just go on me anytime anywhere
    Its embarrassing but I have to live with it n it
    Makes me cry n I dont know what to do…

  49. Michelle says:

    I am 29 years old, been living with increadible pain in my hips. I have been very active my whole life and in great shape and now struggle to walk up stairs. It hurts to sit, to sleep, to stand and I can’t do anything fun anymore. I can’t focus on work or studying because all i can think about is the pain. I have hip dysplasia and labral tears. I’ve had prp and cortisone injections. The cortisone helped relax some of the muscles that were in spasm but the prp started the clicking. I have SI joint dysfunction and joint hypermobility. I have done 2 years of physical therapy and Pilates and it helps a little. Last year the doc said i don’t have arthritis so i am not a THR candidate but I could do POA. The research shows only 1/3 of POA surgeries are successful and 1/3 make matters worse so I am very hesitant to do that surgery but I can’t live in pain like this anymore. I am going to go back for an MR arthrogram this week to assess and see if I can just do a hip replacement as it seems like the safer option. I just don’t want to have to do it again every 10 years. But right now 10 years of no pain sounds like heaven

  50. Laura says:

    Hi Michelle
    I know how u feel… I got suggested poa surgery
    As well but unfortunately I have kids. One is just turned
    One years old.. and the surgeon told me if I have poa done
    Then the recovery is much longer than a thr … apparently
    It’s almost 4 months or more in a wheelchair per hip as u cant put weight on it after the surgery and that’s not an option for me as a mother.
    I am in the wait list finally for a thr as they said it’s
    My only option now that I have arthritis and tears in them
    Now.
    I know how painful it is to do anything and to be
    Sidelined and watch everyone including ur kids have fun n
    U cant join in…
    I hope I get the relief soon and I hope u do too
    With poa… if u have the time and means to heal from it
    Then take it as I met a teacher that had it done and she
    Said it helped her heaps..
    If u wanna talk I’m here. :)

  51. Sierra says:

    Danielle,
    Hello my name is Sierra and I’m 37yrs old. I was born a breech baby and neither of my hips were connected. In June of 2013 I was working for Trader Joe’s. The best company and most physical job(in every way) I’ve ever worked for. Now I’ve worked in Automotive retail for 5yrs and I had worked for Safeway as well and other retail jobs that require ALOT of physical movement. Anyhow,it was 2 days before Thanksgiving in 2013 and out of nowhere, my hip (around the groan it had felt more like) started hurting, throbbing just like a pulled groan feeling. Well I was able to get in on an emergency visit with my family doctor of 11yrs(thank God) and she said it was just a pulled groan and go home and elevate it and gave me a prescription for some Valium. Well I never ended up getting that RX but did go home and elevate it and took some 600mg Ibrophen and had Thanksgiving and went back to work a couple of days later. Well I new something wasn’t right(oh this all started with my left hip btw,if I forgot to state that) so I made another appointment with my doctor and I told her I’ve had pulled groans before and at first it felt kinda like one but the pain is different and I couldn’t describe it. So I asked for and MRI and needles to say my doctor argued with me for about 15-20mins before saying that for my own piece of mind, we’ll have an MRI done but she was so sure that the MRI would come back normal. I had told her she was way wrong and that I was very sure that it would come back Abnormal. Well a few days late, sitting in the room,she pulls out the images and the look on her face was actually priceless along with her exact words to follow after I said to her,oh so for your piece of of mind Dr.,we did the MRI that has come back Abnormal. And she says that she couldn’t read the results but could clearly read that the results were ABNORMAL and she needed to refer me to an Orthopedic immediately. So long story short with the left hip,July 31st 2013, I had a total left hip replacement and this July will mark 5yrs already,and I’m actually 1 in a thousand rare cases and never really made a full recovery. I have a Froglatteral x-ray done every year to compare with the right hip and ever since the new hip was put in,the x-ray shows a mysterious black underline area under the titanium hip. Every test you can think of has been done. From checking to see if there is ANY infection,to see if the pain I still endore to this day is caused by the weather etc. Every single test came back negative. So here we are in June of 2019, and long story short,I just had an MRI done on my right hip 2days ago and tomorrow at 11a.m,I see my Orthopedic to go over the MRI results for my right hip.the first issue I had with pain in my right hip,came outta the blue and I figured it was from compinsating for the left hip.it was at that point just an annoying pain here and there. Then about a month and a half ago, the “new” pain came on full force literally overnight and it’s the EXACT same ain I had expirienced in the left right before it was replaced. The pain is indescribable and unbearable and has really put a damper in my everyday life lately. Ieveryday is an extra effort to do anything. I’m a very driven and independent woman and work hard and this is the ONLY time I’ve ever said that everything lately is an extra effort to do. From getting dressed, putting my socks and shoes on, making the bed,even just walking. So all in all Danielle, I totally and completely understand EXACTLY how and what you felt or feel. Hopefully you don’t feel pain anymore and your surgery went well for you and you made a quick and great recovery. Best of luck to you in the future and your definitely NOT alone in how and what you feel/felt and or went through and or maybe still goin through. God Bless you. Stay strong!

  52. Danielle M says:

    Hi Sierra,
    Thank you for sharing your story. I can see you’ve been through a lot and I’m so sorry that you had to go through all of that. I had my surgery three years ago, it will be three years on July 6th and I feel great. From time to time, I do get twinges on the other side (left) but hoping for the best. I wish you so much luck and I hope you soon get the much needed relief that you deserve. God bless you as well! If you ever need to talk, don’t hesitate to reach out!

  53. Carol S. says:

    Hi everyone. Thank u for this thread! I hope I hear from all of you!! Have you ever heard of „Doctor heal thyself“? Well that’s me. I’m a physician in my prime years. Last November (2018) I began to experience intermittent „twinges“ in my left leg. So severe, they would knock me down if walking, or cause me to catapult from my chair. Being the excellent diagnostition i fancy myself, i immediately started physical therapy for sciatica. I got worse and soon mri of my spine was done. Pristine. At my follow up Spinal Surgery consult I recognized immediately how he was going to deliver the good news…. I cried and asked him to help me figure out an alternative diagnosis for the disabling daily intermittent but severe twingy (sciatica-like) pain I woke up with one day in November . Ultimately a hip mri and orthopedic consult revealed hip dysphasia and Labral tears in my left hip…. no arthritic changes…THR recommend. Meanwhile, steroid hip injection helped tons (for 2.5 months, able to „forget“). Helped me limp Through these past 6 months. My fear as a medical person is going through w/THR and waking up with the same symptoms regardless. Sounds irrational but I have never experienced this personally (via friends/relatives) nor in my practice (and I know I may recognize this earlier now, even though I’m not orthopedic). So, in your responses, can you tell me your symptoms w/labral tears plus hip dysplasia? I have deep thigh bone/muscle twinges… pain w/sex, pain with wiping my butt… good days and really bad days sometimes…. am I crazy? BTW, surgeon advised THR and not repair of labrum due to my dysplasia (not enough to work with) and my age of 52. I’m getting second opinions soon, and actually hope they all have same recomm (or I might go super nutty). Thanks again for all of your posts.

  54. dianaizimmer@gmail.com says:

    Hi Danielle
    I am 47 years old and did have hip replacement last year. I have five children. And throughout my life I have been working and living with the pain and it was on bearable. I did not find out until I was Thirty that I had hip dysplasia. My mother knew there was something wrong when I was born. The doctors ignored her. As an adult now with my left hip replaced I’ve had some success. I do have to have my right hip replaced but I have to wait because unfortunately as a result of my previous surgery I have had some financial difficulties. My partner decided to take advantage of my vulnerability after my surgery and now and being faced with foreclosure I don’t have a vehicle and I am struggling to provide for my children. I am becoming more hopeful everyday that this will change and I will have a better outcome when I have my right hip replaced. People don’t understand that the pain is so unbearable that you can’t walk you can’t sit and you can’t stand for extended periods of time. As a result of the vulnerability my partner didn’t get finally arrested for domestic violence. He is currently in jail. And on the day of his sentencing I was told by the local police department that was handling the case that is my duty now to step it up and get a job and if I don’t have a vehicle get on a bike and go to work. I am thoroughly disgusted with that comment. But I did reach out and I did find help to get me through this trying time. There are people out there that will help you you just have to keep asking. The one organization that did help me and is helping me is Catholic Charities. I’m happy to find that this is a new organization that I can reach out to and ask for help. I hope that you will have success. Thank you for your story and I wish you all the best

Leave a Reply

  • Call to Action Buttons

  • Email Sign Up

    Email Sign Up
  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    Submit a Story

    New Babywearing Research for Hip Development

    Oct 22

    Researchers in Spain obtained hip ultrasound studies while babies were...

    New Hip Dysplasia Course in Central America

    Oct 21

    Orthopedic experts from around the world gather in Costa Rica to exami...

    DDH Warning for Teenagers & Young Adults

    Oct 08

    Hip dysplasia may not first appear in the form of hip pain. Many teena...

  • Latest Stories

    Latest Stories

    Submit a Story

    Lucy

    Nov 04

    Hi all, I want to thank everyone who has taken the time to write their...

    Diana

    Oct 18

    I have a condition called hip dysplasia. I have hip dysplasia in both ...

    Mary

    Oct 15

    At 20 years old, I suddenly began experiencing hip pain and had no ide...