Heather’s Story

I was a breech infant, born naturally, and had a clubfoot and bilateral hip dysplasia at birth due to this. My mother’s OB/GYN and my pediatrician both chose to use the “double diapering” treatment instead of a Pavlik harness or the spica. The double diapers served the same purpose as the Pavlik, or was supposed to anyway.

As I got older, it was hard to tell what was the hip dysplasia and what was my joints (I had very loose ligaments), and so I was followed closely by a physician until it seemed as though everything had corrected itself. At 18 years old, I tore my labrum in my left hip, which is essentially the ligament that holds the hip to the femur. I saw an orthopedic surgeon, who specialized in hip dysplasia, and he explained that this was a very common injury for those whose hip dysplasia went uncorrected.

At 18 years old, I had to have major hip surgery in order to repair my labrum, and this was not a permanent solution. I will likely have to have a hip replacement at a young age, or a repeat of my previous surgery.

My mother was familiar with the Pavlik harness, having worked in health care for many years, and she asked the doctor why they wouldn’t treat me with it. They never gave her any answer other than “this will work better.” She says to this day that she wished she had fought for better treatment.




Is this your story? Log in to reply to comments.

Leave a Reply

  • Call to Action Buttons

  • Email Sign Up

    Email Sign Up
  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    Submit a Story

    Society of Support

    Feb 14

    The IHDI is pleased to announce the creation of our first Giving Socie...

    The American Academy of Pediatrics is making great...

    Jan 25

    The Orthopedic Section of the American Academy of Pediatrics (AAP) has...

    Investigating New Opportunities for the Treatment ...

    Dec 18

    The International Hip Dysplasia Institute (IHDI) continues to i...

  • Latest Stories

    Latest Stories

    Submit a Story

    Tina

    Feb 13

    My Patient Story Hi, my name is Tina, I am an academic working in t...

    Ema

    Feb 12

    Hi, I am 44 and only been diagnosed with hip dysplasia. It make so muc...

    Natalie

    Feb 11

    My name is Natalie and I am 20 years old and I've been diagnosed with ...