Oh the pain! In 2012 thinking the pain was from carrying too much weight on my hips. I tried losing weight but I could not exercise at all because of the horrible pain going from my back to my legs. I was first diagnosed by a rheumatologist. I had figured it was just arthritis and x rays later… congenital bilateral hip dysplasia. At first I figured I’d lose weight to alleviate the pain and limp. I worked through the pain and kept working at my Housekeeping Coordinator job at a hotel. This involved a lot of walking and running up and down stairs. I had terrible insurance so I settled for terrible doctors.

I’ve been on high doses of Ibuprofen, Naproxen, Etodolac, Tramadol, etc. and they still have not helped with the pain. One day I collapsed in a stairwell at the hotel and subsequently quit because I could not take the pain anymore. I was able to stay home for a while. I went back to my child caring job and that too became to demanding. I also ,as a result of the pain from the hip dysplasia and osteoarthritis, developed fibromyalgia. This comes with wide spread pain, pain at tender points, fever/chills, joint pain, etc. I would cry myself to sleep at night.

Fast forward and at 36 (with my now husband’s great insurance and prayer) the first orthopedic surgeon and I thought I was too young for hip replacement. He gave me crutches and more medication. I went to get a second opinion and was told the hip replacement would be my best option considering the pain and severe limp I’m living with. My hip replacement surgery (right hip) is scheduled for May 11th 2016.

I have shared my story with detail because I want to let whoever is dealing with the pain (yourself or a loved one) that you are not alone in this. Don’t settle for crutches and etodolac like I did. Get a second or even third opinion. We don’t deserve to live with so much pain. I will keep you posted about my journey.

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  1. Susan says:

    Hope you are having a “easy” recovery from THR on May 11th. My congenital bilateral dysphasia was discovered as a toddler, due to the fact being unable to walk/crawl properly. Casting. Open reduction right hip. More casting. The surgery wasn’t a cure all but I was a determined kid.
    About your present age-I had a thr with pelvic bone graft at Columbia Presbyterian. This was in 1991.
    Fast forward to present day-I’m getting ready to schedule another thr now on my left hip at Columbia Presbyterian. My orthopedic surgeon tells me there have been many advances in thr and that I should not hesitate having the surgery.
    It would be a great help if you could share some of your hospital/surgical and recovery experiences with me.
    Addition to above: the 1991 thr/bone graft right hip at Columbia is still perfect condition-no loosening/minimal wear. Be confident with yours.

    • Iris G says:

      Dear Susan:

      Thank you for the response!
      My recovery has been good. I’m going through physical therapy now and it can be painful at times.
      It’s amazing and comforting that you had THR with pelvic bone graft at Columbia Presbyterian. Amazing because we connected in a serendipitous way.
      Dr. Macaulay and NP Emily are simply great. The attention I received at Columbia is really amazing. Thank you for your story. It has invoked great confidence in me.

  2. Susan says:

    It’s great to know you’re having a good recovery. I believe Dr.Maculay trained under Dr. Nas Eftekhar, who did my 2nd hip surgery in 1991. Nas Eftekhar trained with John Charnley(who initially devised THR). So the chain of knowledge has been perfected to your present day surgery.
    I’m in the process of deciding when to have surgery at Columbia Presbyterian and exactly which surgeon. THR has advanced since my last surgery(minimally invasive incision,etc)so I need to update my knowledge base.
    Thanks for responding

  3. Beth says:

    Thank you for your story I’m also having hip replacement surgery on July 11 can’t wait to get rid of the pain

  4. Leah McCauley says:

    I’m so glad I found your story. I was diagnosed first with fibro and then it was found out I have dysplasia in my right hip, possibly the left but they have put that on the back burner for now. I had one doctor tell me both and another tell me we need to wait until we get the right taken care of. I’m going on Monday to talk to a doctor about a total hip replacement. In your opinion how does fibro affect your pain levels? Over the years I have taken so much Ibro that my stomach is messed up and it causes GI bleeding if I take it. So I am left taking norco and muscle relaxers. Right now my whole life is at a stand still. I have a hard time to just take care of my personal needs. I’m very curious how one affects the other. Or was I misdiagnosed with fibro?

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