Hi, I’m KC and I’m 35. My mom told me that my hips were dislocated when I was born. I was treated for hip dysplasia when I was 3 months. The treatment seemed to work, however, I always felt that my hips would slip in and out of socket.

I didn’t have much time to worry too much about my hips, because I was diagnosed with Scoliosis at 11 and had surgery for it when I was 12. I also had really loose knee caps and had to wear knee braces, in addition to having flat feet and having to wear custom orthotics in my shoes. Despite all of that, I played basketball in middle and high school. I also went to the police academy and was a cop for 5 years.

It wasn’t until I was 25 or 26 that I started having pain in my left hip. The sports specialist said that I had bursitis and prescribed ibuprofen and exercises. It wasn’t too long before I was able to go back to the gym to run and lift weights.

I had some pain in my hips when I was pregnant in 08 and 2010, but I assumed it was normal. It wasn’t until November & December 2013 that I couldn’t ignore the pain in my left hip anymore. I went to see a Rheumatologist for fibromyalgia that I was diagnosed with in 2012 and I told him about the hip pain. After seeing the X-ray he immediately referred me to an ortho surgeon. Before seeing the OS, my right hip started to hurt too. I ended up having to borrow one of my mom’s canes.

The OS confirmed bilateral hip displasia with mild bilateral osteoarthritis. If this is mild arthritis, I’m afraid to find out what major arthritis feels like! The OS told me to work on losing weight Without Exercising, but with cutting carbs. Keep in mind, I didn’t start gaining weight until I couldn’t exercise because of the pain. He Did Not prescribe meds, cortisone shots, or physical therapy. He just told me to take some supplements and lose weight! In the mean time, my pain is getting worse and I’ve had to buy my own cane to walk with daily. I went to my GP for a physical and told her about the pain. She did order PT and told me to increase my fibromyalgia meds. Increasing the meds did help a bit. I’m going to my second appointment with the PT today.

Having so many health issues at such a young age, even though I’ve always been active, really had me thinking that this can not be a coicidence. Through research, I think I may have hypermobility syndrome. All of my diagnosed issues fit perfectly. Has anyone been diagnosed with hip dysplasia and hypermobility syndrome? I’m planning on going to a new OS next month and I will definitely bring up my theory of having hypermobility. I’ll keep you guys in the loop as to what happens.

Like many of you, I am definitely going through a grieving process. Cardio was my stress reliever, now I don’t know what to do. The looks that people give me when they see me walking with a cane is so depressing. I want to be able to run and play with my four year old. Instead, he’s always running to my side when I cring in pain.

I am glad that I found this site and know that I’m definitely not alone in this struggle. I welcome any comments or suggestions. Thanks for listening to my rambling! :-)

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  1. Jen says:

    I can so relate! I’m 34 and have just been diagnosed with bilateral hip dysplasia. I have had low back and pelvic pain issues since I was a teenager, have been in and out of physical therapy, on all sorts of different medications, given up so many activities that I loved (running, hiking,met and finally was sent to an orthopedic hip specialist who had X-rays done. She said all of the issues I’d had were probably due to this and I’ll be doing a high-resolution MRI soon to see if there are labral tears causing an increase in my pain or if it’s just the dysplasia. I’m encouraged when she says that I don’t appear to have OA too bad yet, so I may be a good candidate for hip joint reshaping that may help me avoid full hip replacements. I had a lot of hip pain when pregnant too and during postpartum- I wonder whether that is common for women with dysplasia? Good luck- I hope you get more help and relief than just from your cane!

  2. Candy says:

    I TOTALLY feel your pain. I’ve always had issues with my left hip. I’m 35 now and just found out that it’s left developmental hip dysplasia. My ortho doc put me on mobic initially for the pain (which only helped a little), then @ my follow up visit he put me on tramadol and ordered a steroid injection for the pain. The steroid injection only relieved my pain for about a week (which my doc was expecting it to last 3-6 months!). So needless to say, I’ve seen my surgeon for my left hip replacement. The dysplasia has caused OA which is the reason why the pain is a lot worse. So I’m scheduled for THR in 3 weeks…..good luck on everything….I’m so glad I found this site with people that can relate to the condition.

  3. Kate says:

    Hi I can sympathise with you I have exactly the same

  4. Kate says:

    Hi I am 32, had pavlik harness when first born, had it on for 3 months was a new thing back then, had no scans or X-rays, just had a nurse check my legs by moving them and say yep! They seem better, the pain started in my teenage years, hips would lock, sciatic pain and struggled to walk further than a normal days walking. Had 2 children, my youngest being 2 now and have had SI joint problems, pelvic problems, pins and needles in both feet most mornings, knee, ankle and shin pain. Recently been to the physiotherapist who confirmed and said hip dysplasia and hypermobility. Now need to strengthen muscles around my hips, my body also pulls to the left and have less movement in my left side. Doctors have been useless I’ve been palmed off left right and centre. Had one X-ray which came back clear. Been offered steroid injection for SI joint but can’t help but feel this was down to the pavlik harness and no follow up afterwards I’m frighten I will be crippled by the time I’m 50. Would like to have an MRI scan to finally tell me what’s going on but seems impossible to get one. Feel deflated by it and by the general lack of concern by the doctors. Years ago I gave up pestering them but now I’m planning on making myself a pain until I finally know what’s going on. Xx

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