Linda Bleck

My story brings me to writing this post. It is imperative that awareness and early diagnosis of this condition becomes noticed to avoid my current situation.

Let me begin by saying that I am a very positive, faithful, and try to be a humorous person. These are my greatest blessings. They give me immense strength.


I am almost 50 this year. I was born the 7th of 9 children in a northern US city Waukegan, IL. I grew up on a tree farm, my father was an architect and my mother was an illustrator for Hallmark. My whole life I was told how strong I was. I climbed out of my crib at 9 months, carried my newborn brother at the age of 2 and half, and became an athlete of some competitive success. I did it all playing tennis, badminton, raced bicycles, hiked, golfed, played volleyball, and ran until I couldn’t. At 12 I complained of knee pain after volleyball season. Mom brought me to a doctor he said there was nothing, so I carried on. At 13 the pediatrican noted I had bowed legs, but I wasn’t going to be a model ,right? ( and you will never wear that toupe correctly, I thought) In my early 20’s I began my career as an illustrator. I moved to NYC and had success. I grew my business. I met my husband there too. The next 20 years I sat working long hours and exercised in between. I became a pretty good golfer too, that was in the nuptials. I had my children in my early 30’s. It was after that I started to have real pain and back spasms, but I carried on with high level activity. I just though it was from over use and that was normal for a person who can’t sit still. I will remind you I was 7 of 9 kids.

So I am going to flash forward to my early 40’s. The pain was now pretty much a constant in my back, but I didn’t want to see a doctor because I might be labeled a pre-existing condition and my husband was just about to finish his residency and change jobs. ( He went back to school at 30 . It was his third career. A chemical engineer in sales, and to top it a masters in business from Northwestern, and yes I supported the family!) I took it upon myself to do some things to help. I lost weight and exercised everyday. In 2008, I couldn’t take it any longer I went for a MRI because the pain in my back was getting worse. It revealed very little. The doctor said I had weak core muscles and gave me some Meloxicam and sent me on my way.
My friend, a personal trainer, suggested she could help me. So I spent two years building my core. Sure I was getting stronger, but things that never hurt started to become problems. I had terrible pain in my feet. Once my foot became swollen and purple on a vacation from walking long distances. By the time I saw the doctor he said it had corrected and no need for any x-rays. He diagnosed me with metatarsalargia and gave me some foot pads. It was like walking on glass. I would also have occasional knee pain. By 2011 my right hip started to become a problem. I started yoga , but I couldn’t even get into simple poses. My hip was locked up. The straw that broke me was that I couldn’t walk anymore. I had terrible pain in my hip flexor and I could no longer walk. My good friend who was 13 years older had absolutely no pain and we were doing the same activity. I asked, “Do you have any pain?”, she answered “No”. “Something is really wrong with me”, I said.

In 2012 I asked for a PT consult. They sent me for 2 months treatment. The PT suspected something more than a torn muscle, but she was able to restore mobility to the hip. She urged me to seek an orthopedic consult if the pain returned. In March of 2012 it did. I had just completed redoing my basement. I trimmed out the entire room, I was building sets for my daughter’s theater group, and in the middle of a doing a children’s book. I had pain right in the joint. Yikes I am wearing myself out just writing this!

Finally in March of 2012 I had a correct diagnosis with a simple x-ray. “You have bi lateral dysplasia” the doctor told me. “What?” I responded. I was quite calm. I took it all in. He explained that eventually I would have the hip replaced. “Would this fix my back pain too?”, I asked. “Maybe and I hope”, he said. In the meantime he gave me a kenalog shot with cortisone and ordered an MRI. He called me back in May of 2012. “Well he said, your hip is gone.Bone on bone with arthritis.” They found cysts, tears in the labrum, subluxation of joint, and a tendon tear. “Now I did it!”, I thought to myself. He couldn’t believe I had gone this long with no diagnosis or pain. “You never were in a harness?, he asked. “Only to keep me from running away. True.” I replied. How about pain?, “Yes my whole life.” He told me all my hyper activity probably gave me many extra years. The labrum was three times normal thickness on both sides. “A monster”, he said. He said he would have me come back in August at the end of the summer and I could think about what I wanted to do for the next phase of treatment, which was a THA or cleaning out and repair, but THA was inevitable. The other hip would be probably in 5 years. Okay I’ll see you then. I walked out called my husband and started to cry, but I got it together.

My mother was very I’ll and I didn’t want to have it done. I was walking around bone on bone and just using Aleve for pain control. It didn’t keep me down I played golf all summer. I also kayaked on Lake Michigan, surfing the waves. I came to visit my mother often. No doctor really ever thought I was in pain or that bad, because I just kept moving forward.


I walked into that doctor’s office on Aug. 17th. That day I had a hole-in-one and two birdies on the other par 3s. I beat the club champ. I shot a 32 on the front nine of the golf course. A course record, and all with crappy hips and crappy back. I signed the waiver and on October 15th I would have a THA reconstruction and tendon repair. I told my doc of my golfing achievement. The doctor said, “Now you are making me feel bad.” He never really told me what was going to be realty. Maybe for the best. Four days later on August 21st my mother passed away. She told me she was afraid I’d be in a lot of pain. In September I completed my last work obligation. A video scribe for Abbott Labs.

On Oct 15th my life changed dramatically. I didn’t know what was to come. Man that replacement hurt! They loaded me with oxycodone and muscle relaxers. I had spasms that felt like a knife was being jabbed into my hip. I went to my daughter’s play 4 days after replacement too. Sitting in a wheelchair grinding my teeth. Sarah got the lead as a freshman. It was really unexpected and I wasn’t going to let this keep me down. Two weeks passed and things got better. They put me into PT right away. I spent the next three months in PT. They supported me physically and mentally. It was really rough and I was trying to raise two teens. Thank God I was an athletic person. I had a lot of other muscles to keep me going. I also had a strong mind and good sense of humor!

Now I am almost three months post op and my back is crazy in pain. I kept telling my PT and she would send notes to the doctor. But nobody seemed to be that concerned. He gave me another shot in my other hip, because pain was increasing on that side. It helped a bit. Shortly before Christmas I got up and my legs buckled I couldn’t walk. The pain in my back was excrutiating. I wheeled myself into the PT and I was crying. I NEVER cry.:)
The doctor ordered a pain management consult asap. They ordered an MRI and an epidural. Luckily there was a cancellation and I got in. “ I don’t think you’ll need surgery” the pain management doc said.

Three epidurals later I had some relief ,but when those babies wore out, ouch! Back to square one. It’s now April 2013 and I cannot function, I can’t get the muscles to work to get my new hip rehabbed. They ordered an EMT test to make sure. Yes indeed I have significant back problems. I have stenosis and degenerative disc disease. Yahoo! Tell me more. “If it walks like duck, talks, like a duck, it is a duck”, the hip surgeon said. “Quack, quack, get me to the spine doctor please!”, I said. The spine surgeon became the team quarterback at my request. A great surgeon Dr. S gave me a decompression and foraminectomy on May 14th.

I am now 8 months out from back surgery. I had an MRI of the other hip and it is stable, but plagued by tendonitis. My SI joint continues to have pain. They marked it moderate in the MRI report ,but you are kidding me right? Somedays it’s terribe pain. Lordy Lord! I see a wonderful PT a couple times a month. Today I exercise everyday strengthening and maintaining my core. I mix up my daily exercise routine with aqua walking, swimming, stationary biking. I have to be very cautious as too much causes tendonitis to flair. I am off all pain relievers. I take Celebrex 2x a day and Gabapentin. I rest a lot too and ice. The exercise keeps my mind sharp and my overall mental health stable.

I continue to be very positive and focused on healing. I know someday I will be functioning. I will never be the athlete I was, but I still have my blessings. My dear husband is a great guy. He is very patient. We have been married 24 years and I will tell you that the last two years have made our marriage rock solid. I told him today that I will require more maintenance this year as my crappy hip is limiting and he is to smile and just do what I ask. It’s a perfect marriage. ☺

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  1. Tammy Johnson says:

    I can SOOOO relate to this story. I’ve been a “strong” person my whole life. As a teenager I did something everyday to break a sweat, whether it was jumping rope, shoveling gravel, riding my bike, etc. This continued into my 20’s with jobs that required strength. In my 30’s I became an industrial mechanic, very hard on your body! Lots of walking, standing, bending, stooping, lifting and somtimes strained, odd positions for a prolonged amount of time. At first I was having back spasms for which I saw a MD at first who just gave me muscle relaxers and pain medication. Next, I saw a chiropractor, I had pains throughout my upper and lower back. After several adjustments over the course of 2 years, I asked if there was anything I could be doing besides my normal work duties because it seemed to me that my muscles must be weak or else this wouldn’t be happening and his reply was “there’s nothing weak about you”. So why on Earth was I having all of this pain???? Finally after 2 years of treatment with little to no results, I went to a pain management clinic where I was told that I had compressed discs in my lower back. I did therapy with the elictrical thingy and used the Vax D (or as I called it “the torture rack”) for several weeks, 2 to 3 times a week. Eventually my back felt better but I still had pain with prolonged standing and walking, in my groin area and tender points on the outside of my hip. This eventually turned into an almost constant limp, horrific buttock pain and occasional “drop to the floor” kind of pain right at the joint in the center of the crease at the top of my thigh. I’m not a wimp but I was constantly being harassed by coworkers for my absences and complaints of pain. I had my son with only one shot of demorol about 5 hours prior to his birth! I can handle pain, this wasn’t normal pain!!! It tore me down mentally and physically. Long story short: several anxiety/depression meds, 6 yrs, 2 mri’s, several Dr.s’ and an exorbant amount of pain later, I’ve been diagnosed with hip dysplasia, a cam lesion and osteoarthritis. I am to see a surgeon about the next step in 2 days and I can’t explain the relief I feel, that someone has finally diagnosed my pain and I’m about to get the help I need!!!

  2. Linda says:

    Oh Tammy I totally understand!! If a hip replacement is in order get the best reconstructive surgeon you can. I had spine surgery to correct stenosis that formed on the foramins. The overgrowth had pinched the nerves. I am 9 months out of spine surgery and 1.5 years out from hip replacement. I still have pain but no where near before. My other hip is dysplastic but it appeared to be stable this past summer after an extensive MRI.
    Through this sight I have found friends across the country who have dealt with similar issues. A great forum to know you are not alone. One day you will be strong again. I believe mental stamina and determination will get you through the next steps. Push for PT from your surgeons and whatever you can get your insurance to cover. The hip was pretty good after about 5 months. The back well that is ongoing saga. Perhaps if you can get that hip fixed you will slow the disc deteroration.
    I started with a routine of swimming after I was cleared for exercise. I used kick boards, buoy aids, a buoy belt to help myself at first. Then I began aqua walking. I also strongly encourage finding a very good massage therapist to help break up the tissue in back and hips. All those spasms and pain in back were pain responses and they simple just tightened up to hold me together. Try to get to the lowest pain meds you can. I was on alot following the hip replacement and back surgery. Today I just use Celebrex and Gabapentin, one each a day. A daily stretch routine and strengthening routine is optimal. For now get a good surgeon and be patient. That’s what I was told. Please use this site as a forum to reach out. You’ll need it. Please stay in touch.:)

  3. Rosa says:

    Hi Linda,
    I related to your story, as mine is very similar. I am 3rd of seven children and also was very active, I play tennis and also a pretty good golfer. I am 57 and in the middle of menopause. I have always had pain in my joints, my orthopedic surgeon often wondered if I suffered from lupus. The test always came back negative, other then on one occasion when I got a false positive. The pain was always in my knees. I was told it was from over use and diagnosed with osteoarthritis. In 2003 I had surgery to repair a slap tear (torn labrum) in my right shoulder, which I attributed to changing my serve. Since then I have suffered on and off from lower back pain and pain in my neck. I was told I had bulging disks and at one point went to see a pain management doctor, who injected my back, I guess the same block I had when I gave birth to my first born after 12 hours of labor. For the last year I have been sidelined from tennis because of pain in my left knee. I had a contrast MRI which showed a sprain and bone contusion. I have never heard of that, one year later I still have the pain. The latest is pain in my left hip. Over the winter I trained doing golf specific exercises. I started feeling pain in my left shoulder, had an MRI that revealed a slap tear of the labrum and a partial tear of the rotator cuff in my left shoulder. I have been able to rehab it, but the knee is still a problem. Here is the last straw, for a couple of weeks I have been feeling a pain in my upper left thigh (hip) I don’t know what the next step should be. Most orthopedic surgeons just want to give a cortisone shot or pain meds, but I just can’t help feeling everything is all connected. Thank god I am still able to play golf. I am even able to walk the course. Last year I was only able to play with a cart cause of my knee. I pray that my hip gets better and does not effect my golf, cause that would be very depressing for me. Any advise on how to best research a hip specialist? I am in Westchester county in NY.

  4. Linda Bleck says:

    Dear Rosa ,You poor thing!! The fact you can still walk is encouraging. If you have a tear or tears in the hip labrum you would feel a sharp pain in the groin or trouble in the hip flexor area. Hip pain ,as I have become aware , can develop from the si joint area too. You’ll need to seek a very good spine doc like I did. They did a series of tests IMG to make sure nerves were compressed before surgery on my back. As for the hip find a really good surgeon. Ask around. Sometimes as in my case it is good to be in an orthopedic hospital where docs can share information. My two docs work together. The spine doc writes scipts for pain meds and PT. It’s also a very good idea to find a doc who believes in PT. Especially in your case when you want to remain an active athlete. I don’t know any specific docs in your area. Here’s a tip though go to a gym in your area with a therapy pool and you’ll quickly find out who the best surgeons are in your area.
    The nerves rain down through the hip and can cause pain right on the outer joint. In my case, even after a decompression and hip replacement I still have pain in both hips.I manage with several approaches and lately pool therapy and hot tubs twice a day is best. Managing multiple ortho issues is tricky and I have come to find out it’s a self exploration and trial /error situation. I had bone spurs form on the foramin bones L4,5, and si joint. Those were routed out last May. The radiating buttock pain and intense sciatic has lessened quite a bit. I did play golf last week and can handle about 9 holes. LOL my handicap is still a seven. How am I ever going to get 20 rounds in to get it up about 18 which is what I play like now?
    Rosa some other thoughts do you use a foam roller to roll out hips and thighs. I would highly recommend you start. Injections are temporary relief and may help put off any surgery in your near future. Finally I am a big proponent of theraputic restorative yoga.
    Docs try to avoid hip replacements and spine surgeries contrary to what people think, at least the good ones do. Be patient as hard as it is. I am guessing you hit that ball about 220? :) My athletic endeavors and goals have changed I enjoy the days when I feel good. Feel better and keep searching for answers. Keep me posted.

  5. Lindsey says:

    This is a great blog but I just wish there was someone with a closer situation to my mom. Basically at age 45 she was working at a school and while on a field trip she fell and tore her hamstring in half. She told the doctors that she thought something else was wrong too but they insisted that a torn hamstring is very painful and can radiate pain elsewhere. After a year of pain and no doctors helping her. She slipped while mopping the kitchen and couldn’t move. Turns out originally on the field trip she had broken her neck and since it went a year untreated it had caused major spine deterioration. So they reproved 3 vertibre in her neck and built a cage instead. She seems to be doing somewhat better after the surgery but about a year land a half later they decided they needed to replace four more vertebrae in her lower back because of the deterioration. They also inserted toe rods on the side of her spine for support. While in surgery her spine began to swell dangerously so they had to inject her with high doses of steroids to stop the swelling. After this surgery about 8 months out she was walking and finally starting to feel good. But she was having some hip pain. Within 6 months she was completely wheelchair bound again and in excruciating pain. She went back to the surgeon and after an MRI they determined that the steroids along with never diagnosed hip dysphasia had completely killed her hips . We saw several orthopedic surgeons throughout the country that would not do anything for her because they didn’t know if her bones could handle any type of surgery. Within another three months she no longer had any hip left at all her entire ball was gone and her acetabulum was paper thin. Her femur was basically sitting in her pelvis. She lost 4 inches in height from bone loss. We finally found a doctor that would try a total hip replacement. Her first one in November went well she was not allowed to put any weight on it for 3 months and then they did the other side in March since she was bed ridden anyway they figured might as well get it over with all at once. Well this surgery went well but a month out her hip dislocated. They have now done 5 revisions on that hip since March… It is only September and it has dislocated 13 times. They don’t understand why it won’t stay in socket. They just did her last surgery about 3 weeks ago and they said if it dislocates again they will completely remove the hip all together!! I wish someone could help my poor mom she is still so young and has so much life left in her. Also I believe I have hip dyplasia as well… I am going to an orthopedic in a few weeks to find out. I’m do scared to go through what my mom has.

  6. Dixie says:

    I can relate been a runner my whole life. This year while training for a half ,marathon I started having hip issues. Went to the doctor was told my problem was running here you need to do PT. Did PT for four weeks. Still no relief. Went back to the doctor and was told I needed to just stop running. Not giving up found a new doctor went last week and there it was plain as day on my X-ray. Got shots in my hips and back in three weeks to see if it is any better. Toady is day two and the pain is worse than ever. Hope it gets better

  7. Linda Bleck says:

    In my up and downs. The pain sometimes get better with shots and sometimes it does not. There is a lot of shifting and compensation that sets up in your body.I use a battery of approaches. I have tried everything! Accupunture, painkillers, heat therapy , colod therapy, PT, yoga, etc.The seem to be my best bang for my buck lately. Chiropractic adjustments( find someone recommended by surgeons!) , massage therapy, theraputic restorative yoga( very specific not traditional yoga which can aggravate or injur), pain killers, I use low dose at specific times of the day, e-stem( in my spine). But most importantly I adhere to you rest -activation approach throughout the day. I work from home so that is a blessing! Hope you find relief soon. It does get better.:)

  8. Mandi says:

    So sorry to hear about the pain you are all suffering. We’ve recently found out our little girl (just turned 4 years old) has bilateral dysplasia, grade 4 with no false acetabulum. Currently we’ve decided, after various consultations and much reading of research, not to put her through probably repeated surgeries at this early stage. This has been a really hard decision to make because my husband and I are both “fixers” and we’re left with a very uncertain future for her. Plus one consultant has repeatedly told us he thinks we’re making the wrong decision. But she is currently pain free (except in her car seat) and a happy, confident very active little girl, looking forward to starting school in September. My biggest concern is whether this will lead to problems with the spine because she has a very arched back as a consequence. We saw a spinal specialist who thinks the lordosis is just at the top end of normal so shouldn’t become a problem in itself. But from reading stories here, there obviously are back related issues associated with hip dysplasia. Please could you tell me if you know what caused the back issues – was this definitely an effect of the dysplasia, was it due to limping, or to a pronounced back arch etc.? Any suggestions that we should be considering would be greatly appreciated, thanks

  9. Linda Bleck says:

    As a parent this decision must be agonizing. I was O% angle on right ,but it was also noted that maybe just a a bit more tahn that in my med docs. I have mild dysplasia on the left but that’s causing me a lot of pain now so I expect a replacement in near future. I had knee pain at 12 and was told it was growing pains. With increased activity and building my core and glutes I corrected the knee pain. I always felt like could never stand still because standing still fatigued me even as a child.:) There were nine of so my mom would frequently tell me just to lay of the ground if I couldn’t take it. My parents were so surprised that I was dx with dysplasia in my 40’s. No history either side and I was a high performance athlete. I am not a medical doctor, but I am sure if you are seeing specialist for dysplasia they have seen a lot of cases they know what they are talking about. So with out knowing degree angles of hip sockets etc. I will not advise as that is a medical question only to be answered by your docs.
    My uncle was the chief orthopedic surgeon at Stanford for 25 years through 1990. He was worl reknowned in the field of reconstructive surgeries for children with celebral palsy. He said the reason why he chose working on young people is that were great healers, more resilent than adults, and seemed to bounce back to normal life faster after surgeries.
    As an adult I was told my back issue was independent from hips by a spine ortho ,but then told by a PHdPT that the back takes the load when hips are nor formed correctly.
    Things you can do for your child right now is to encourage activity that doesn’t cause pain, but increases muscle tone. I am a huge fan a bicycling. I also encourage yoga. In fact yoga may be the most important approach as it promotes spinal alignment and balance. My hip ortho was absolutely amazed I got to 47 with the amount of dysplasia, but I have spinal issues that a permanent now and will have two total hips before I turn 52.
    I had a labrum 3 times normal thickness so that was my saving grace.Running never was my favorite and I abandoned in my late 20s. Everyone is different but yes there seems to be a coming thread in people dx as adults most end up with some sort of back issue.
    Take care and please let us know how your decision proceeds.

  10. Girard Tunney says:

    Thank you for sharing your experience!! I have a very similar situation and also just found out about my hip issues this month at 49 years old. At first about 12 months ago I was told my doctors my pain was due to back issues from three reduced discs in my spine, one more than I had when I was 28, the first time I had back issues. I am still figuring out and understanding my hip issue, but one thing I know for sure is your back and hip issues are more than likely two very distinct and separate issues. When i was 28 years old I woke up and went to sleep every day for several years with intense back pain. At that time I reached out based on a recommendation from a friend to Dr. John Sarno, an NYU surgeon who had a new approach to back pain called TMS. I called Dr Sarno at the time and he required a phone interview with me and he recommended that I read his book “Healing Your Back” and if things did not improve to then set an appointment with his office. I read his book, understood TMS and was literally cured for 20 years until last year. For many years I have been playing Adult Lacrosse and last year i went down to Florida and played 5 games over 2 days and I thought i had a hip injury. After MRIs and x-rays the doctors said it was my back and the pain was due to the reduced discs. Frustrated after months of PT and shots and the like, I ultimately read Dr Sarno’s book again after 20 years and I got my situation back to normal 90% of the way. Yoga and stretching and PT just would not get me the rest of the way. I went to another doctor (and I think my hip spacing dramatically was reduced further) after 12 months of thinking it was my back, but clearly now it is my hip displacia – BTW my sons has it but we caught it on day one of his life, my nephew has it and my father had it. It has a tendency to reoccur in families (I am learning).

    Bottom line in my experience, muscle soreness can occur from the hip issues, but continuous back pain, that has a good chance to be what Dr. Sarno calls TMS. My recent back issues are gone, unfortunately I have to now deal with my hip (which what I thought was TMS related) which will likely require surgery if I want some of my active life style back. Dr. Sarno’s book is worth the read, I have seen it work for me and with multiple A-personality friends.

  11. Linda Bleck says:

    Thank you. Yes I was also told by my back surgeon that the two are unrelated but you will find many with hip dysplasia have back issues. My current situation is sij issues. The spine was taken care of by the bone spurs being removed. I stabilized my spine and disc issues through daily efforts. Currently the left hip is degenerating and the back back is increasing. The biggest problem arises from compensatory patterns to elevate pain. Once you recognize those patterns it a bit easier to tackle the pain. Yes muscle soreness is from the hips but back pain in the spine is a whole other issue. I have two very good surgeons that understand that complex so I am thankful for their guidance and care.
    I will look into Dr. Samo’s book. I am fortunate that I have close family members in the orthopedic area, a surgeon at Cleveland Clinic and a sister who is a spinal PT, that I can consult. I have gained a better understanding of this condition and how to manage it on daily basis. Actually I feel pretty lucky that I got to 47 for my first surgery after reading so many peoples stories. . :)

  12. Linda Bleck says:

    Oh my goodness…. . I briefly read Dr. Sarano’s TMS theory. Yes I have been told my whole life that it was nothing! Perhaps some issues are, however pain was not what brought me to the doctor in 2012. It was after a misdx at age 43. It was a lack function that brought me in. I was literally dragging my leg and could not walk, but I continued on with life! I was coaching volleyball. I continued to play golf until 4 weeks before they replaced my hip because I was told my back issue was weak core! I also swam up until the surgery date.They missed the dysplasia. It was pain doc that dx me too at age 43!!!!
    Please be careful chalking up this condition to psychosomatic reasons! Perhaps I could have avoided tendon tears and a dislocated hip. It has taken me a long time to rehab and I am a very complient patient and of sound mind, verified by my PTs! No disrespect ,but I don’t regard Memet OZ as a credible pain doc.
    I’m glad that you found something to help you and perhaps there is some component of lingering nerve pain responses. I use daily meditation to calm my nervous system these days because pills alone don’t help.

  13. Ana G says:

    I am so grateful to have found this blog. I have always been an active woman. I liked to travel and do cruises. I also have always worked out and used jogging as my main form of cardio. At age 33 I started having back problems. After an X ray I was told I had a bit os scoliosis ( nothing major) and a bilateral, transversal megaaposisis of the L5. Basically, I was told swimming and stationary biking were the best options for me. Nothing could really be done. It was a “back problem”. Seventeen years later my pains got me to see other private specialists. When I mentioned the sharp pain in my groin area only one thought it might be a hip problem. He ordered MRI’s of both hips. The results were very hard for me to hear: congenital bilateral hip dislasia. Cysts, tears in the labrum, osteoarthritis, you name it. On the one hand I was finally relieved to know what was causing my pain. It was too far gone for resurfacing of the socket. So now at age 49 I am told I am a bit you to get hip replacement surgery as they do not last forever and are never as good as one’s own. I try to manage my pain without too much medication. I have reduced my activity levels somewhat to not experience pain. I am OK with this. However the prospect of getting both hips replaced I find very hard. And even more so that they might only last 20 years tops. I was wondering if any of you could give me the names of the best prostheses on the market and if any do in fact last a lifetime.

    Your testimonies are very comforting. I need to be in contact with people who “feel my pain”.

    Thanks for listening,


  14. Barbara S says:

    I can relate to all the above. Had severe groin pain and put it down to overdoing weighlifting. Pain got worse and I have been diagnosed with bone on bone osteoarthritis. I love scuba diving and hobie cat sailing but both a no for the moment. I have taken up Iyengar yoga – early days yet but helping with movement at least as has the 2 stone weight loss. I have been told THR is unavoidable and am dreading it… Is there any way I can manage without the op and get my life back? (losing another 2 stone may help!) Thanks for listeing. Barbara

  15. KB42 says:

    One week out after bilateral THR, age 56. Super active runner, swimmer, yoga practice for years, pain finally took a big turn for the worse this past year. Diagnosed with bilateral dysplasia 13 years ago, helping me understand origins of the pain. Right hip was worst, left was catching up so with offer of bilateral anterior approach by excellent surgeon, decided on one surgery, one recovery. So far manageable. Still twinges of SIJ pain but hope to manage that by relearning how to walk without compensation etc.

  16. Jill says:

    Thank you. I stumbled along on this post and of coarse started crying. It was almost as good as the day I was finally diagnosed as Ive never met anyone with hip dysplasia. I also have suffered a decade of undiagnosed, debilitating pain. Very hard as I raised my 3 kids alone and I am a pediatric intensive care unit nurse and cld barely work 2 shifts a week. I have had both hips replaced this year. I suppose I hoped for complete pain relief, tho the nurse in me knew that wasnt likely. What Ive found now after starting to walk a few blocks is that I need to remind myself to relax my lower back. I am so used to ALL of my hips and back being spasmed and my back arched from that, that I am unknowingly holding it that way. I also had bowed leg/knees turned in, calf turned out that was actually caused because my backed being spasmed into and exaggerated arch/anterior pelvic tilt, that after this last surgery, when it all relaxed,my legs turned also and are now facing straight! Very huge since after this the last thing I wanted were knee replacements. I also had knee and calf pain and felt like I was walking barefoot on glass! That reference is what started the crying. God, for one person on this earth to finally understand! I was of coarse misdiagnosed with fibromyalgia, multiple sclerosis or the kicker ” maybe your just depressed and achey”! Oh, and being called a drug seeker was also quite the slap in the face. To the parent with the child with dysplasia, there is not only one correct answer. Knowledge is power. If / when your child starts to get pain, you have the diagnosis in your pocket and can act. I personally know younger pts and teenagers with dysplasia and had the PAO surgery. It is a lot longer recovery and can also have mixed results. New techniques are perfected each year, changes and studies. If she is not in pain and it is something that you can monitor,you are doing absolutely no harm in waiting. My pain had me visiting many dr.s and really the most awful part was not being believed and being misdiagnosed.Thank you all so much!

  17. nan says:

    I can relate to this. I was born September 1977 with hip dysplasia. The doctor didn’t discover it for 3 months. My mom said that when the doctor did find it my hips would just dislocate. I was put in the hospital and had surgery to cut my tendons then in a harness with my legs in the air while they healed for first 3 months. Then I was put on cast from hips down both legs for the rest of the fist year of my life. as a child and teenager I was active but was told that as I had children and aged I would probably need hip replacement by the time I was 40. I really didn’t have any problems untill I was 37. I started having pain whenever I walked. It would feel like my hips were dislocating. The pain got so bad I was getting hard to walk very far then my back has started hurting also, mind you in my 20s I had herniated my to lower disks in my back. So the hip pain was making the back stuff flair up. After a year I went to an orthopedic he told me the spacing in my hips was shallow and that I had osteoarthritis. He wanted to do a surgery but he got a second opinion and that doctor said no. So I went home and just dealed with the pain for 2 years then I went back in cause I couldn’t take the pain anymore. they had me see a orthopedic nurse practitioner. she did updated x-rays and said I was just bone on bone now and recommended trying cortisone injections to see if it helped. It didn’t work and was painful so she recommended the surgery. I meet the surgeon and he didn’t want to do the surgery because of my age. He instead wanted to send me to another doctor in another state who could make my hips more open by removing cartilage. First he had to do an MRI to see if I had enough cartilage to do it. The MRI showed that I don’t have enough cartilage but he still didn’t want to do hip replacements. I have been frustrated because he just wants me to be in pain till I’m older. So now here I am in pain. I can’t work or exercise. I can walk still but after a few blocks I’m in so much pain I’m limping. I have no insurance so can’t find another orthopedic. I don’t know how long I can bare the pain when it gets so bad it runs down the front of both my legs making my knees and ankles hurt my thighs hurt so bad. It makes sleep unbearable. I just wish I could find a doctor who would take this pain away.

  18. Morgen says:

    Wow, I have finally found my people. I was just diagnosed yesterday with Hip Dysplasia. It was like a Mack truck hit me as I was sitting in the doctors office. I too was an athlete and equestrian most of my life. I learned to normalize pain. It was constant, always there but my mind could help control it. I have spine issues as well. Degenerative disc disease. It had gotten to the point where I was too distracted by the pain to ride. I thought, why am I doing this to myself? An MRI revealed labral tears in both hips as well as bursitis and arthritis. And yesterday, X-rays revealed hip diysplasia.
    I was a breech birth in 1967 and have been suffering from chronic back and hip pain for decades. I have to figure this out, I have to ride again. Thank you for sharing your stories. There is much more to mine but I’m still a little shell shocked from yesterday. To be continued…

  19. Linda Bleck says:

    I apologize for such a long story! Too wordy and detailed beyond necessary, but that’s what this issue did to me. I’m on a better course now.
    An update as this was 4 years ago. I had a lot of pain control issues following my second hip replacement and back surgery.
    In late 2017 I had an emergency spinal fusion. My stenosis came back at alarming rates. I didn’t fit a chronic pain patient profile and I guess I didn’t complain enough.
    I have learned so much in the journey and I have been greatly humbled. The upside is I have met so many others just like me. I started a support group dedicated to strategies on all fronts. In March 2018 I was given my last dx pots/ dysautonomia. Postural orthostatic tachycardia syndrome and HEDS, A connective tissue disorder.
    I have met many with dysplasia that got back to regular life and activities, but I guess I didn’t fall into that category. I’m working hard at beating all this!
    If anyone is interested join us. Adult Hip Dysplasia Rehab Strategies on FB.
    Thank you!

  20. Ashley says:

    Thank you for sharing your story. I was diagnosed with Hip Dysplasia at a young age by an amazing orthopedic surgeon in my state. I am now 24 years old and experiencing awful pain coming from my SI joints along with some pinched nerves and arthritis of the hips. My orthopedic surgeon has done PT, shots and asked my opinions on hip replacements.
    Like yourself, I am athletic and a tough cookie. I have never been able to run physically but I have professionally danced for many years. I am a current social worker and most days I fight through the pain. I have tried holistic approaches as I cannot work on pain medications. It’s stories like yours that make me get a second opinion on hip replacements in the future. I can’t imagine the pain your must have endured. Thank you for sharing.

  21. Linda Bleck says:

    Hi Ashley,
    Please join us on our forum on FB. It’s a closed group. I am the admin. There you can ask others their opinion. My story is only one many . My issues with my sijs and spine are related to the hypermobilty and dysautonomia. You are very young and surgeons don’t generally like to replace hips until later. But if the arthritis and pain is limiting you you can have a heart t heart with your doc. Many prosthetics are lasting longer. It is up to your surgeon to determine which prosethetic is best for you. The anterior approach is still a surgery and complications and healing issues are always a risk with any surgery. The anterior approach was less of a recovery time. Please stay in touch with us.:) This is a wonderful resource to connect with others. As far as the spine. My spine did not show much of degenrative changes until after the hip replacement. At 42 it only showed mild arthritis and by 46 I had developed forminal stenosis. One thing about getting a replacement younger is that your brain has not hard wired muscle patterns and there will be less collateral damage. If you are on IG contact @younghipandbionic. She is young and athletic and had two hip replacements recently. Prayers and God Bless you!

  22. Suzanne says:

    I was diagnosed with bilateral hip dysplasia at age 43. I have had 4 scopes, bilateral hip replacement, and most recently psoas tendon release on both hips. I am 53 now. I am still having a lot of pain. I would like to join your FB group to connect. What is the name of the group? Thank you.

  23. Linda Bleck says:

    Suzanne we have @Hipdysplasiastrategies on instagram as well as on FB Adult dysplasia rehab strategies which is a closed forum.

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