Phil

Hello my name is Phil, I am a 32 year old male who lives in Oregon, US. I have experienced some past hip pain – but only after competing in athletics – basketball, and running. So I have always attributed it to being “sore” or part of the “recovery process”. Over the past 6 months or so it has become more debilitating with general activities, walking hiking, etc. and I have seen multiple doctors. I was just diagnosed with Hip Dysplasia a few weeks ago after demanding an x-ray, so I have just begun my journey and I am getting educated. This forum has been a blessing.

Over the past few weeks I have seen multiple physical therapists to help strengthen my body around my hips – but I am trying to ultimately get to the long-term resolution and get my life back. I had an MRI just yesterday on both hips (was diagnosed with bilateral dysplasia). I see an orthopedic doctor for the first time next week.

I have two young children (7 months and 2.5), and a lot of unanswered questions and anxiety around this issue – caring and supporting my family. I think about it most of the time every-day. I have always competed in athletics at a high level – I am 6’2, 190 lbs, and very healthy. This prognosis came as a blind-side and has triggered an initial depression within me – but hoping to see the big picture.

I look forward to connecting with folks on this site, and connect with the community as this journey into the unknown begins. I appreciate all of the shared stories and feedback.

Phil




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  1. ramona says:

    Hi Phil! I’m 48 and used to be athletic and active like you. I’ve been in pain for 3 years and finally just today found out that I have bilateral dysplasia. Over the 3 years my health has deteriorated and I’ve gained a lot of weight due to a suddenly inactive lifestyle. I’ve been really depressed, doing all the physical therapy I was prescribed and beating myself up because it wasn’t working, so the diagnosis and the solution have actually had the opposite effect on me. I’m scared, for sure, but hopeful for the first time in a while. I really hope a hip replacement will take me back to where I used to be – active, healthy and pain-free. Thanks for sharing your story. It helped me to read about other people in my situation.

  2. ramona says:

    Oh! And I live in Portland, OR! ramona

  3. Phillip B says:

    Ramona,

    Thanks for the response, and happy to hear that you have found a diagnosis, and are on the way to a healthy and HAPPY future.

    It is nice to hear from you, and connect. Especially in a world of so much (too much) information at our disposal via the internet. Thank you so much for reaching out.

    After much reflection – I have come to the realization that We can only control what we can control in life – and we are living in a world of amazing medical technology, the best ever. What an amazing time to be alive.

    Prayers and all the best to you on the road to your recovery.

    “Our greatest glory is not in never falling, but in rising every time we fall”

    Phil

  4. Nikki says:

    Hello,

    I am 33 years old and I was diagnosed with adult hip dysplasia about two years ago. I was also treated with a harness at birth, but that is another story. I am currently recovering from my first pao surgery which I had on my right hip about 5 weeks ago. I would be happy to connect and answer any questions I might be able to help with. I also had a lot of anxiety around choosing the best treatment options. Good luck to you!

    • Phillip B says:

      Nikki,

      Thank you for reaching out – I turn 33 in 2 weeks. I would definitely be interested in connecting, as we are similar in age and timeline. Happy to do so on here, or off of thread.

      Hope the recovery is going well.

      Phil

  5. Claire says:

    Thanks for sharing your story! I’m a 39 year old wife, mother, and teacher who was just diagnosed with bilateral hip dysplasia. It came as a complete surprise as I never had any pain or issues until my 30’s. I’m having my first PAO surgery this fall. All the best to you!

    • Phillip B says:

      Claire,

      Thank you for reaching out and connecting. Best of luck with your upcoming surgery. Amazing to see the similarities in some of these stories, and how little I knew about this prior. Let’s keep in touch. All the best to you as you heal this fall.

      Phil

  6. Joan says:

    Hi Phil. I am almost 50 and I started about 5 years ago with pain and discomfort. It was 3 years ago I found out that DDH was my issue. I’ve had bilateral femoral osteotomies by a surgeon in NYC. I was also blindsided by everything as my kids were younger when I was going through the initial pain, not knowing what was causing it. My advice is to get as educated as you can and chose the correct surgeon if you chose a procedure. Time goes by fast and knowledge is power. Good luck and this site is a great reference. God won’t give us what we can’t handle!

    • Phillip B says:

      Joan,

      Thank you for the words of encouragement, and advice. SO MUCH appreciated. I agree with you, nothing in front of us that we cannot handle. Just gotta keep moving, and conquering what is ahead. THANK YOU.

      Phil

  7. Nikki says:

    Hi Phil,
    I would be happy to exchange stories via email. What is your address?

  8. Claire says:

    Hi I’m Claire, I’m from the UK I guess things are probably handled slightly differently here.
    I was diagnosed with hip dysplasia at 27. I was the polar opposite of you I was always very unfit and struggled to exercise but most people (myself included!) Put it down to laziness! I had 2 children with no problems or concerns and just randomly got pain so severe I could barely walk. It took months of appointments to final get my diagnosis.
    I had a triple pelvic osteotomy in 2015, I was in hospital for 14 days and off work for 6 months (nursery manager) I found the healing as emotionally draining as physically. I really struggled, I felt helpless to my kids and felt like a nuisance to my husband. In 2016 I had my pins removed which was a minor day operation. I was sore for 6 weeks after.
    But now I am fit and health, my hip sometimes aches a little tiny bit but on the whole I am happy with it. I just completed my first 5K which I would never have dreamed I could do.
    It does get really tough for a while but there is always light at the end of the tunnel. Stay strong you will get through it all.

    • Phillip B says:

      Claire,

      Hello from across the world, your words are INSPIRING wow. Amazing. I am so glad to hear that you found a solution and are living your best life. Thank you for the words of encouragement, they are a boost in my day. A good reminder that “mind over matter” is real. Thank you for the perspective.

      Phil

  9. Ann says:

    can we email directly instead? my story is very similar to yours as well and still looking for answers after 2 yrs and 6 doctors.

  10. Eliška kohout says:

    Hi Phil, yes I know all too well what u going through. Diagnosed with hip displasia this past April at age 39. Went on sick leave because of the pain and couldn’t walk. I’m going back to work cause need to support my family but it will be a different kind schedule. Seen two orthopedic surgeons so far. I will be needing a pao which is a preservation surgery. They wont do hip replacement cause of my age. So it continues. It took ten years of going to different doctors and etc to get me to this point. Hang in there. There is no one easy answer to this complex condition. All the best. Hugggz

    • Phillip B says:

      Eliska,

      Thank you for your story, and hopefully you are nearing a solution to help with everything you have been through. Keep in touch, and let me know how things go. I appreciate the words of encouragement, and lifting me up. All the best to you, and may we both look back on this time as a speed bump in life, and onto better things.

      Phil

  11. Cydney says:

    Hang in there! Fortunately your found this great resource!My 13 yr old daughter was diagnosed 3 weeks ago with bilateral dysplasia and can barely walk! Pain was triggered after a 3 day Purdue volleyball camp, during which she felt no pain! She used to play court and beach volleyball with her sister and ballet around our house. Now she moves from her bed to the couch. We are shocked at the diagnosis and lack of info sharing from the first sport medicine orthopedist, just a PT script. PT was too painful, but it was the Pt therapist who urged me to seek more specific care. Went to pediatric rheumatologist, all blood work came back negative for arthritis. Going to see pediatric orthopedist tomorrow for a better care plan and pain management. Tylenol and/or Ibuprofen knock pain down from a 10 to 7-8, but the pain is constant! Any other insights

    • Phillip B says:

      Hi Cydney,

      So sorry to hear about your daughter, and hopefully she is able to experience some relief soon. I would continue to push hard and be aggressive with doctors – demand an MRI, and look up some research on specific hip doctors for this. I’m happy to email you off the thread with what I have found.

      In regards pain control, I have found some relief with physical therapy/stretching, ice/hot tub, icy hot, CBD Oil (although this may not work for 13 yr. old), and my most relief has come from this brace. https://www.amazon.com/Hip-Brace-Hamstring-Quadriceps-Compression/dp/B072JNDKQK

      Hope this helps a little bit, and thank you for your message.

      Phil

  12. Susan Reed says:

    Hi Phillip, I started having pain in my right hip when I was 26. I was diagnosed with hip dysplasia at 33. I wasnt a candidate for PAO so at 35 I had a total hip replacement. I’m 44 now and I haven’t had any problems with it and I have absolutely no pain in that hip. About 6 months ago I started having pain in my left hip. I wasnt to concerned because I had it checked in December of last year. Went in for a xray and I had developed some arthritis so my Dr sent me for a MRI to get a better view. I was shocked to hear I have a torn labrum and a stress fracture in the acetabulum. On October 16th I will have a total hip replacement on that side. I know what your going through. My best advice to you is make sure you have a really good orthopedic and research all your options. I wish you the best of luck.

  13. Anne-marié says:

    Hi Phil and the rest of you. My middle daughter(32) has been running between 5-8 k’s 5 times a week. Very fit and sporty.
    She suddenly started such severe hip pain she couldn’t sleep or run. One leg is longer but with all the medical check ups and physio she is still in much pain. More than a year now. We’re in South Africa. My youngest daughter was born with a dislocated hip and treated immediately.
    I wonder if my other daughter (32), might have tje same and it has never been picked up. Hoe do this condition gets diagnosed.
    Please advise.
    She is desperate, feeling anxious and depressed because it’s not getting better.

    All the best to all of you. What a great support.
    Anne-marié

  14. Phillip B says:

    Susan,

    So sorry to hear this and I am thinking about you during your time of surgery mid-month. The upside is that it sounds like your first procedure worked wonder and really helped improve your life – and this one as well.

    Good advice on the research and options. I have been taking the approach of going ALL IN on everything to conquer this.

    All the best to you.

    Phil

  15. Phillip B says:

    Anne-Marie,

    I am so sorry to hear about this, and I know exactly what she is going through. I think the first step is to get a diagnosis. From what I have read, dysplasia is a family trait – I had both my young children tested right after my diagnosis. Since there is clearly pain, as well – I would demand an X-Ray as a first step. Hospitals seem reluctant to do this. Keep pushing on them.

    In the meantime, it sounds like she is active and disciplined – I would do some physical therapy. Stretching, Swimming, and some yoga has helped me feel better. Also – for pain relief I have found some in this brace – https://incrediwear.com/products/incrediwear-hip-brace

    If you’d like to send me an email with any questions let me know. I have been on a similar research path and one thing for sure is that Knowledge is Power.

    Best of luck on the path, and hopefully this is not dysplasia (or a minor case).

    Phil

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