Rosie

I was diagnosed with DDH at 9 months old. At the time I was close to be an early walker but I still loved to crawl around which was how my parents noticed I would drag my right leg along. Despite a family history of DDH and numerous assessments I wasn’t diagnosed until this point. The severity of it led to me being referred to a Hospital in London, a world renowned children’s hospital. Whilst I was in the best place, it understandable concerned by parents that had to be treated at a specialist hospital.

After 9 months of wearing the harness I showed little sign of improvement which led me being placed in a cast which meant undergoing anesthetic, again unpleasant for my parents. Fortunately after being the cast I was deemed strong enough to be without and before long I was walking! Every year for 16 years after I attended Great Ormand Street annually for my check ups which were always positive.

My point for posting is that I am now a fit and healthy 23 year old who lives life completed normally and even runs half marathons! Not bad for someone’s who’s life outlook was disability in the worst case scenario or life long hip pain in the best. I understand I am a lucky, but for parent’s facing this with their children, keep hope.




Is this your story? Log in to reply to comments.

2 Notes

+ Leave A Note

  1. Cheryl says:

    I had the same experience as Rosie 59 years ago, except I was put in a full body plaster cast (from under the arms to my ankles, with my legs turned out)at 9 months and had the cast on for 9 months. I think I had a few cast changes over this time. I am so fortunate that it worked and has not hindered my life at all. Now I am about to turn 60years old and I suffer hip or joint problems.

  2. Judy says:

    I had the same experience as Rosie too. I was diagnosed at 9 months of age, and placed in a half body cast for 9 months. My walking was uneventful most of my life but now I am 58yrs old and am experiencing pain with walking more than 15 minutes. Diagnosis so far only mild arthritis and mild bursitis from my slightly altered gait. Would love to hear from other how they treated these problems as they got older.

Leave a Reply

  • Call to Action Buttons

  • Email Sign Up

    Email Sign Up
  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    Submit a Story

    Society of Support

    Feb 14

    The IHDI is pleased to announce the creation of our first Giving Socie...

    The American Academy of Pediatrics is making great...

    Jan 25

    The Orthopedic Section of the American Academy of Pediatrics (AAP) has...

    Investigating New Opportunities for the Treatment ...

    Dec 18

    The International Hip Dysplasia Institute (IHDI) continues to i...

  • Latest Stories

    Latest Stories

    Submit a Story

    Tina

    Feb 13

    My Patient Story Hi, my name is Tina, I am an academic working in t...

    Ema

    Feb 12

    Hi, I am 44 and only been diagnosed with hip dysplasia. It make so muc...

    Natalie

    Feb 11

    My name is Natalie and I am 20 years old and I've been diagnosed with ...