Suzanne

What a wonderful site. I think I have you all beat in age. I am soon to be sixty born in 1959. I have an interesting story to share as it was told to me. My parents were stationed in Germany and I was born there. My mother noticed that when she changed my diapers I didn’t kick my legs. I was the third child so she was an experienced Mom. The Canadian doctor on base told her there was nothing wrong with me and it was all in her head. A young officer, who was also a translator, took my mother aside and offered to take me to a German Doctor off base. At this time in history I don’t think medical knowledge was shared internationally as it is now. At 6 months of age I was put into a body cast which apparently allowed blood flow to the femur head (so I was told), and following that braces for about a year. A side note. My father took me to the welding shop with a few of his buddies and they drilled into my cast putting castors on both knees and one on the chest. Apparently after pulling this heavy cast around for weeks I’d built up a good set of guns. When he set me down, all proud of himself, I miss judged and heaved so hard I went careening down the hall and crashed. My mother, furious no doubt, made him take me back and removed the castors. I think I needed a new cast at this point. Men! LOL
I ran and jumped and played like any normal child. I used to have to go to the hospital every year for an examination. I was told at one time that I was one of the first Canadian children cured of this affliction. My mother, grandmother and great grandmother all had congenital hip dysplasia.
Now comes the familiar thread I see in all of the stories posted here. At about 50 I started limping with over exertion or long distance walking. Now I have been diagnosed with “Chronic bursitis”. The Dr. is wonderful but seemed to dismiss my history and says they are not related. I beg to differ. I demanded a full MRI of the hip. Get this. I have also recently had 2 small basil cell skin cancer spots removed and the Doctor in Nuclear Medicine says. “That qualifies you for a TOTAL CT bone scan. Who knew this was policy in Canada? I bet many don’t.
Some times the pain in my hip is so bad I can’t sleep. That wrecks havoc on your over all well being.
Results in a week. I think the disorder also affects the ligaments and soft tissue surrounding the joint. No one seems to talk about that.
I do believe that researchers could learn a lot from my generation or our generation and the future of other born with this anomaly.
This sight is primarily meant for parents and babies born with this and I think it could use a much more comprehensive and in-depth look at adults and their concerns and issues.
Thanks for listening.
Suzanne




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  1. Rhonda says:

    Hi Suzanne,

    It sounds like your hip joint may be deteriorating. You got lucky to make it to 60! I was 50 when mine really went downhill. I thought it was a ligament/tendon/soft tissue injury. Turns out all those things are impacted by our failing dysplastic hips. See what your scans say and see if you can get hip replacements. That fixed everything for me and now my soft tissue issues are all resolving. I’m a year out from my last surgery. You can find my story on my website: https://rhondaashurst.com/category/hip-adventures/. Wishing you well in your journey.

  2. suzanne Hawes says:

    Hello Rhonda

    Wow, I’m impressed and also very grateful to you. I watched your videos and I think I learned there is hope for me yet! I have had an MRI and full CT scan and was waiting results when they called me back and have now asked for a pelvic ultrasound. I too had read that ligaments tendons and soft tissue were/can be involved in Hip dysplasia not just the bone formation. my Doctor kind of Pooh Pooed that.
    I was extremely impressed with your progress and the idea of not having pain sounds heavenly. My problem is trying to get to sleep with achy Rt hip and leg. I am not a drug person and Naproxen makes me sick so I am having a really hard time. I tell the Docs how much pain I am in and the very first words out of their mouth is “we don’t prescribe narcotics”, I get so mad I just bite my tongue. I think they think everyone is an addict….geez.
    I am a little concerned that they now want a pelvic exam and ultrasound. Not your typical hip test.

    Thanks for sharing your story Rhonda.
    I will message you back after results and “the plan” is established.

    Suzanne

  3. LaurieJo says:

    Hello Suzanne and Rhonda – I’m 56 and was born with CDL of the left hip that was surgically corrected at age 3. I had an active childhood with minor physical limitations. At 18 developed neck and back pain on my left side. I discovered modified yoga worked wonders. I chose a medical career in an orthopedic surgeons office switched to neurology and then went to massage school – where I learned about the importance of the body’s fascia tissue, and the part it plays in trauma by creating scar (adhesive) tissue throughout the body that can cause chronic pain through restriction of nerve and muscles tissue. After serving as a licensed neuromuscular/cranial/structural therapist for 25 years I have discovered that sadly – most doctors today are missing very important factors in soft tissue healing because they are not taught it. I strongly encourage educating yourself with “The M.E.L.T. Method” by Sue Hitzmann – she is a pioneer with research on the fascia system. “The Miracle Ball Method” by Elaine Petrone, Structural Energetic Therapy by Don McCann in Lutz, FL, Dolphin Neurostim MPS Scar Release Therapy and for chronic pain – CBD oil works wonders for me. I have used all of these amazing therapies through out my life with positive results and my wish is they help you as much as they have me.

  4. Emma I says:

    Hi, I’m 46 and have just been diagnosed with severe osteoarthritis of the left hip, moderate osteoarthritis of the right hip with a component of bilateral femoral impingement secondary to dysplastic femoral heads.

    As a baby apparently I started walking at 10.5 months and by the time I was 3 and throughout my childhood and my teens I was skiing with my parents, cycling and playing badminton and sailing. At 19 I started suffering with sciatica and went to the docs to find out why. They wanted to give me painkillers and I refused them as even ibuprofen makes me feel high and weird and I asked for a referral to an expert. Doc gave me a referral to a physiotherapist.

    Physio diagnosed me with what is now known as sacro-iliac hypermobility syndrome and gave me exercises to improve core strength and to help prevent my leg “being on wrong”.

    I became a bit of a gym bunny, I also worked as a massage and beauty therapist and in bars.

    In my early 30s I became a mum and that is when exercise became less present in my life, I had a baby in 2004, another in 2006 and then when I became pregnant with twins in 2008 my hips decided to complain a lot. Instead of going to a doctor who I expected to offer me painkillers, I found a chiropractor who supported me through the whole pregnancy and enabled me to walk pain free and give birth very quickly and naturally to two well grown babies at term.
    I maybe should have carried on going regularly to the chiro, but finances and time and energy were in short supply.

    My twins are 10 now and in the last year my mobility has decreased and the pain has increased. I tried walking more, but after the dog knocked me over and a couple off other falling onto my left hip incidents in the last 3 years I thought I’d look for physio help again. My new physio sorted out seized up muscles and sciatic pain and an exercise referral, but 3 months in there’s obviously something not right in my hip, so she advised me to gp to thr doc with a supporting letter to get referred for am xray.

    This week I got the above diagnosis.

    I’m shocked to say the least.
    I also thought I was going to be told that there might be a label tear.

    I used very little pain medication and mostly do exercises, use Epsom salt baths and copious essential oils usage.

    I’ve now decided to be slightly less stubborn and use pain relief at bed times if necessary, if I’m going out, to take the edge off so I can actually enjoy myself, to use a hip support belt for walking the dog, and hovering etc and a stick for walking as it helps with stability.

    I’m going to the gym 2 times a week and I’m trying to walk the dog for a short distance daily, I’ve also asked for help from some local friends, for the dog. I hired gardeners to reclaim my garden and I’m considering getting a cleaner (now I know I’m not just lazy) if I get awarded PIP.

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