Suzie

I am 44yrs old now and was only 18mths old when I was diagnosed with Congenital Dislocation of the Hip (RHS), I cannot remember much of the treatment as I was only small, but my mum has always discussed that time with me.

Last of 7 children I was trying to walk when my mum really noticed an issue, I initially would crawl dragging my right leg and when I did try and walk I would fall over and cry, a cry my mum could tell was pain. Despite numerous trips to the doctors, my mum was told that I was just a lazy chubby baby and that I would walk eventually. My mum demanded a second opinion and eventually I had an xray at 18mths old where they discovered my hip problem.

After being in traction, undergoing surgery to cut the tendon in my groin to allow my hip to move into place, two pelvic osteotomy and a final operation to remove pins, I was up and about by 4yrs old. Check ups took place annually until I was around 14yrs old. I have led an active life, selected to represent my school in 100m hurdles, years of aerobics, step, combat and long distance cycling sports, my hip has never stopped me from doing anything I wanted to do (other than long distance running).

For the past 3 years I have started to have a burning pain in my right buttock when I walk, sometimes this happens when only walking for short distances. I can also tell when the weather is on the change, I often will say its going to rain before it does as I have an ache down the back of my thigh. I have recently mentioned my burning pain to my doctor and she arranged an xray which showed little degeneration of the socket since my previous xray, however I have now been referred to a specialist in UK to discuss why my hip has started to burn. Would be interested to hear from others of my age on how their hips have faired at this stage in their adjust lives. Am worried to learn if I need a replacement.




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  1. Susan says:

    My daughter is 30 and was diagnosed with DDH when she was 23 she has had PAO surgery on both hips. She has had the same pain that you described and was recently told that she will need to have a THR. Not what you want to hear but the replacement joints keep getting better and it’s better than walking in pain.

  2. Jen says:

    I’m 43. Diagnosed with hip dysplasia at 1 yr old.
    After a year of treatment and surgery, I began to walk again and was able to lead a very active life. As a teen, I competed in many sports including cheerleading, track, tennis and basketball. I stayed active as an adult with working out and have no issues until recently.
    My right hip was affected but my left hip now has bursitis flare ups now and then. I treat with ice, rest and anti inflammatory and it’s manageable.
    Thanks for sharing your story and being an encouragement to others!

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