Whitney’s Story

Whitney is a young teenage girl who was diagnosed on Valentines day with hip dysplasia. Whitney is a very active girl. She loves volleyball and has played school and club ball all year. She water skis, hikes, bikes, etc.

In the fall Whitney was at a volleyball game and dove for a ball. When she got back up she was in terrible pain. We were told through x-rays and MRI’s that she tore her labrum and had a cyst. We have been to 5 doctors since that time, two sports medicine doctors saying she also had hip dysplasia. We were referred to a surgeon who agreed Whitney had hip dysplasia in both hips, and needed to have a A Periacetabular osteotomy surgery .

Our journey has just begun. I am worried about signing my young daughter up for a surgery that may cause her more pain and additional surgeries. Right now if she is not playing sports she does well, and has only infrequent pain. I don’t know if doing it early will spare her future problems, or cause them. Please share your experiences!

Worried Mother!

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  1. Suzie says:

    I am also a mother of a young teenage girl with a life long history of severe hip dysplasia and multiple surgeries. Of course there are no guarantees in life, but our surgeon and experience through research has led us to believe that generally speaking, sooner is better. By the time they are teens, the amount of pain they are willing to endure usually dictates the next step. That is where we are right now. My heart breaks with you, as a mom, I totally relate to the worry!

    • Julie M says:

      Thank you Suzie for your response. What types of surgeries has your daughter had. Have they been sucessful in helping her or just causing more issues? How old is your daughter. Do you live on the West coast? I am still trying to find out about second opinions.
      Thank you for replying. This is a scary journey for all of us, but being informed helps us make the right decision for our girls! Blessings, Julie

  2. Tanya says:

    Dear Worried Mother,

    My daughter is getting ready to go thru her second surgery for the same thing. The first one was before her pelivs matured, now at 12 1/2 it has matured. We have been reassured that this will lessen the pain greatly & either prolong hip replacement or “maybe” no hip replacement at all. My husband & I feel that this is something we must do or our daughters pain will worsen. We have know since birth that she has hip dysplasia, and she is in constant pain when running & with cold weather. Arthritis is going to be something she will have no matter what, but as long as we can prolong hip replacement that’s a plus!! Feel free to write back if you want to chat. It’s a very hard decision, but after research & confidence in our pediatric hip doctor we feel it’s a good option.

    • Julie M says:

      Hello Tanya,
      Thank you so much for Sharing! I will be praying that your daughters second surgery goes well for her! Is she having a PAO? Do you live on the West Coast? We live in Oregon and still trying to research doctors? It is so helpful to talk to different people and become informed as I can before making a choice on this big PAO surgery! I am frozen between being to afraid to do it and to afraid not to!! I am hoping to be able to make an educated decision before this summer! Blessing, Julie

  3. Tammy Green says:

    Whitney’s mom,
    I know how you feel. My daughter was 19 when she was diagnosed. Shelby was always my active child. She played softball as a catcher from age five until 18. Never had a problem with her hips in all that time. She was a sophmore in college living 2 hours away from home in the dorm. She was climbing down from her lofted bed and thought she pulled a groin muscle. I of course laughed at her because she was athletic and there was no way she pulled a muscle getting off of the bed. She came home two weeks later still having pain. I called her knee surgeon (yep knee surgery at 16)for suggestions. He must have known then because he got us in with the only hip surgeon in our area that does PAO. My husband went with her to the appointment. I’m a nurse so I wasn’t worried that it was serious. She was diagnosed with bilateral hip dysplasia. Apparently since birth. He called me to let me know she needed the surgery. The doctor agreed that as long as she was ok he would wait until summertime to do the surgery so she wouldn’t miss school. She had her surgery one week after college was out and one week before her birthday. She did have pain but she did great. She moved back to school into a second floor apartment before fall semester ever began. She has been doing great for the past two years. She says she doesn’t regret it at all. If you would like to email me or Shelby with any questions, please feel free. It’s scary but in the long run its better than hip replacement at a younger than necessary age. Good luck and God Bless, Tammy Green,Oakboro, NC

    • Julie M says:

      Thank you Tammy for your response to Whitney’s story. I was glad to hear from you because Shelby’s story was so helptul to us both when we read it on the web page! We are still trying to decide if we need a second opinion or if we just need to trust this opinion. Some how becoming more informed and talking to different people I hope to be able to make the right choice for my daughter! It is so great to hear that Shelby is going well! I know I would like to correct this issue so she does not have do deal with these things in college! Yes I would love to email you or Shelby ! Dlmendenhal@msn.com Thank you and God bless! Julie

    • Julie M says:

      Hi Tammy,
      Is there any chance you could email me. I would love to be able to talk with you about Shelby’s surgery. I am trying to make the decison about having the PAO done this summer. So scary to sigh a 14 year old up for this.
      Thanks Julie

  4. Susan says:

    Hi. My daughter who is 19 has been diagnosed with hip dyspepsia. She had hip surgery at 17 for a torn labrum and the dr had to shave her ball joint to help it fit properly. Now, 2 years later we are facing PAO surgery…we were referred to Dr Kim at Boston Children’s Hospital in Boston MA. We have been told the surgery is tough and long recovery…I’m very nervous to go through another surgery.

    • Julie M says:

      Hi Susan,
      sounds like we are in the same situation. Whitney also had a torn labrum, but they have not fixed it because they say the underlying cause in the dysplasia. I know what you mean it is very scary to sign up for this surgery, and just as scary not to!
      keep us posted. I am still going though the process of making the decision.

  5. Claire says:

    Hi, im 15 and for the past 2 years or so, my hips have had a dull ache. Then, last year during the track season, i was doing sprints and randomly my leg fell limp and i tripped. It hurt quite a bit, but i kept going. After that point, the same thing occurred almost every time i sprinted and i worried me. (also when i stand and tilt to the side, i can feel my hip moving/popping out of where i think it is meant to be.)I looked up stuff like that online and found that the most likely thing that it was was hip dysplasia. Now though, my dilemma is that i can’t find a way to tell my parents. My parent know me to never get hurt and they won’t believe me.(just like when i got glasses it took my mom over a year to book an appointment for the eye doctor because she didn’t believe me… my eyes turned out to be worse than hers) How can i tell them if my hip doesn’t hurt much now?? I don’t think they will believe me. As a parent, can you give me come advice?? Thanks!

    • Julie M says:

      Hi Claire,
      I just know if you were my daughter I would really want you to talk to me about you worries. You need to tell your parents your sypmtoms and get an e-xray. It may be something else. There are a lot of hip issues I am finding along the way. I asked my daughter to keep a pain journal on a calendar of how and when it hurts. Using a scale of 1-10 and activity she was doing. I hope it goes well, you will be in my prayers.

  6. Nadine says:

    Hey im 24years old and was diagnosed with hip dysplasia a few years ago.. The long i had to wait for surgery the worse the pain got.. It was ubearable. I was not able to do any excersize that caused me to put on weight and affected me whilst in work.. I had my big operation that your all worried about on the 13th febuary and was the best thing ive had done.. Yes theyl say youll be bed ridden for around a month and generally you will but you can move around on crutches at egg shell pressure on the leg u have done! I am now able to start to apply pressure and the pain i was in previous has gone its just the mending pain thats not as bad! I think if you wait to have your young childs surgery the pain will get worse and i wouldnt wish that type of pain on anyone.. I hope you get it sorted x

  7. Julie Mendenhall says:

    Thank you for your comments. It helps to hear your experience. I guess it would be easier if she was in a lot of pain to make this decision. Hers comes and goes. I just worry about it causing new pain. I am glad to hear that the surgery helped you out!!Do you just have to have one hip done? How long do they tell you ther surgery will last? Who did your surgery? Thank you for your advise. :-
    ) Julie

  8. Katherine Jans says:

    I just wanted to tell you all how much your stories have helped me. I am 21 years old and was diagnosed with congenital hip dysplasia when I was 9. Because I was so young my parents and I did not act on the diagnosis. I have been living with constant pain for years. My hips have caused me to walk a little funny. People have commented or made fun of me before, not understanding my diagnosis. Simple things like walking all day at the mall or walking around an amusement park would cause me so much pain that I would begin to limp or have to stop walking altogether. Despite this, I was a star athlete in high school. I was captain of my high school volleyball team and played club in the off season. I refused to let the pain stop me.

    I’ve lived with untreated hip dysplasia for so long that the pain has become normal. It’s not good. I can’t clean my apartment for a day without severe pain. I have been so scared to treat my hip because I didn’t want it stopping me from doing the things I love. But I’m at a point where I know I need to do something. As I am typing this my left hip is aching and I’m lying down!

    I’m telling you all this because I’m scared. I’ve recently transferred from South Carolina to a University in Scotland. If I pursue treatment in the UK, my parents will not be here to help me. I’m scared to go to the doctor and find out my hips are much worse because I’ve put this off.

    Thank you for sharing your stories. They have helped me gain confidence to go to the doctor and face reality. I’m praying for each of you and your families.

    – Kat

  9. Julie Mendenhall says:

    Hi Katherine,
    Wow, it sounds like you have so much in common with Whitney. Whenever i take her shopping at the mall she is in pain by the time we are done. She would also be in tears at the end of each volleyball game that she would power through. She played club and school VB all year.
    I hope youo are able to get the treatment you need. Keep us posed on how you are doing!

  10. Ashley Shearer says:

    Hi my name is Ashley, at 15 in 2010 i was a freshman in high school and i ran track and did triple jump and also ran crosscountry, played volleyball and softball. at the end of my crosscountry season i started having severe pain in my hip and my sophmore year they told me i had a labrum tear. the surgeon told me that i was going to need major surgery on my hip because my socket was twisted wrong. but being 15 my parents and i did not want to have that big of a surgery. so i have the labrum fixed up and went on with my sports and my life. i never was the same. now i am 18 and a freshman in college and my pain has came back and been getting worse. so i went to 2 different surgeons to see if i actually had to have the major surgery. iv been through many mra and xrays. and they all said the same thing. I have to have PAO surgery and a surgery wear they cut a little bit of the femur bone off. If i dont have this done then i will have arthritis and a total hip replacement at a young age. My surgery is set up in august. they have told me that it is a 90% chance that after the PAO surgery that you will be back to a normal life doing whatever you want. So my advice is that if it is that severe get it done when you can.

  11. Julie Mendenhall says:

    Wow, thank you for sharing Ashley!! All of these stories help to fit together the pieces of the puzzle for Whitney’s future! We do have a PAO scheduled for August also. We are just trying to come to peace with that decision. Your story helps so much. I hope your surgery helps you feel much better!

  12. Teresa Bayler says:

    Julie-My daughter Shelby 17 is scheduled for PAO and Labrum repair the end of this month. She was diagnosed last fall and wanted to waint until after softball season this year and so she would have time to heal and be ready for her senior softball season. She is beginning to realize that its almost here and is getting nervous. She is in constant pain. The lowest her pain ever gets is a 2 or 3 and goes up to a 6 or 7 frequently. She also plays volleyball and will miss her senior year of volleyball, which is just now setting in. I don’t want her to regret having the surgery but I also know how much pain she lives with daily. I want her out of pain and able to enjoy her senior year. Our surgeon says that if all goes well she may not have to have hip replacement till her 40s or 50s. I hope he is right.

  13. Mary says:

    As I read your stories i am intrigued, as I have a rather unique situation. I am going to start from where I am at right now and move backwards.

    I am currently 49 years old and just had a total hip replacement in my left hip – almost two weeks ago. Recovery is going well! I will tell you I had to get a second opinion, as my first doctor said I was too young to have this sugery.

    38 years ago I was playing at a summer rec program (I was 11) fell and began to feel pain in my hip, but also in my knee. It was strongest in my knee at first, but eventually moved to my hip and was unbearable. I was taken to a specialist who diagnosed me with “Marie Strumple” disease. (perhaps that is not the correct spelling). The doctor felt I needed surgery right away or I would be crippled. My mom took me to another doctor, closer to home, who gave a similar diagnosis, but finally named it hip dysplasia – which was a congenital hip disorder. I had surgery where the doctors put in two four inch screws to secure my hip bone to the socket. I was walking within a week and used crutches for a few months after that. This surgery gave me a pain free and active life for 30 or more years.

    The part that is most interesting is that my mother had the exact same condition when she was 11. Her treatment was to be put in a body cast for a year when she was 11and again when she was 17. They continued to turn her hip during the casting phase. It was unbearable for her, but when she was 35 or so they fused her hip. (She had four children by then and went on to have three more.). She also worked as a registered nurse for almost 60 years of her life.

    The best thing anyone can take away from our story are the advances in technology over the years. We both have dealt with pain over the years, but there are plenty of ways to still have a quality of life. We wish everyone the very best and pray you continue to make informed decisions. There are many good medical professionals who will lead you to the right treatment for your situation.

  14. Yazmin Morales says:

    Hi, Julie.

    I’m 19 years old and when my mother was pregnantshe said she fell while mopping and as a consequence I was born with “messed up” hips. She said the doctors told her I could be fine, but that I would have to wear double diapers and and stay in my crib for most of the time.

    She thought it worked, and so did I until I was about 12 years old. I started feeling a sort of pinching pain in my hips after certain activities, but it was pretty rare. However as the years went by it became more often and stronger pain.

    I feel the pain almost everyday now. Sometimes I wake up and I can’t even get out of bed (like right now). I’ve never been to the doctor about it because I don’t want surgery and I don’t really believe in physical therapy. The problem is that apart from it becoming a daily struggle, I’m afraid that whenever I decide to start forming a family my body won’t endure it.

    I’m honestly terrified and I’ve looked everywhere to see if there’s any technical term for this and hip dysplasia is all I could find that sounds similar to what I feel.

    If you could please reply to this or even email me (yamin.morales14@yahoo.com) with any information or suggestions I would really appreciate it.

    Thank you.

  15. Cindy S says:

    Whitney’s story sounds so similar to my daughter Paige’s. She started having pain in January, but played through softball. The pain continued to get worse. When softball season ended, I took her for an x-ray and was told that she had hip dysplasia since birth (she is 17 now). An MRI revealed a tear in her labrum. She had the labrum repaired by scope this week and is feeling better already. However, her doctor says she has to have an osteotomy and is scheduled for that next month. Reading everything I can to learn more.

  16. Melissa Jackson says:

    Hey I’m 22 years old and a couple of months ago I found out that I have hip dysplasia in both hips. At first I thought it was just my knee cause it would hurt all the time and was turning in. My hips would hurt sometimes but not as bad as it does now. Now my hips and knees hurts constantly no matter what i am doing. It has been so bad I had to cut back on my hours at work. The orthopedic who told me I had it said I need the hip realignment surgery and referred me over to see the specialists in Charlotte who does that types of surgery for hip dysplasia. I am scared but also can’t wait to get it done and over with. How long is the recovery for hip dysplasia surgery?

  17. Andrea Jones says:

    I am 19 and was diagnosed with bilateral hip dysplasia my freshman year of college after tearing my hip flexor and labrum running. I had to get a PAO on my right side over winter break and then on my left during the spring semester. I was in the hospital for 2 nights both times. I only ended up taking a week off of school and resumed classes (on a ton of pain meds) about one week postop. The pain immediately following the surgery is bad, but manageable with the meds they give you at the hospital. It does suck when you’re going through the long recovery period, but the reduction in the pain is well worth it as are the long term benefits. The full recovery time depends on what you are recovering to. I was on crutches for 8 weeks and walked after that. I had to continue exercises to get musculature back in that area for about a 6 months after the second one in order to return to sports. I’m still not close where I used to be, but the pain when I play is a lot better than before. Melissa, are you seeing Dr. Masonis?

  18. Anna says:

    Hi! My name is Anna and I am 20 years old, from NY.
    From the time I was a child everyone had always noticed that I walked “funny” with my left leg, the foot was always pointed in, kind of like pigeon-toed. Finally when I was roughly 9-10 years old my parents decided to take me to my PCP to discuss what this could possibly be from. My PCP referred me to a pediatric orthopedic up at NSLIJ.
    After meeting with the surgeon, and taking a bunch of X-Rays he had diagnosed me with hip dysplasia in both hips however, he did not want me to come in for corrective surgery until 2 years after I started my menstrual cycle, and wanted me to start extensive physical therapy. I was in psychical therapy for about one year before my foot finally started turning out and I could stop coming back. As a child I always knew I had pain in my hips but I guess after having it for so long I became used to the pain and was able to ignore it. I wound up never following up with the pediatric orthopedic and just continued living my life.

    Getting older I have noticed some deterioration in my hips such as, popping/clicking, dull pain most of the time with spurts of sharp pain, favoring my right leg and not able to stand or sit for 5 minutes with out having to adjust my weight or position. I have always been a very active kid, I took karate when I was young and as funny as it sounds, I started professionally figure skating right after meeting with the orthopedic surgeon.

    I have always had a clicking or popping in my right hip, but never thought much about it until I was at work and was leaning against a column and realized that I can pop my right hip out (basically on command)just by putting pressure on that leg, there was a dull pain but nothing unbearable, quite honestly I thought this was almost a cool party trick – like being double jointed. I had also noticed that my left foot started pointing inwards again and started physical therapy again where I found out I can barely lift my left leg a out to side side with out feeling like I was crushing something in my hip as well as not being able to bring my leg straight behind me. Two months of physical therapy did absolutely nothing for be besides keep me in excruciating pain.

    A couple months later getting up from my desk at work my left hip gave out and I fell to the floor my ankle swelled up like a watermelon, and was rushed to the hospital. Thank god it was only a sprain however they also checked my hip and said I needed to see an orthopedic about it. I was forced to use crutches which hurt my right hip terribly that I was unable to walk.

    I went to an orthopedic surgeon who told me I have hip dysplacia with intingements and that I need a pelvic osteotomy, there was an issue with my femor, as well as arthritis, and my pelvis isn’t aligned. He then prescribed me an anti inflammatory as well as a high dosage of pain killers.

    He recommended the Hospital for Special Surgeries in NYC, however they do not cover my insurance so after weeks of searching I settled with Mt Siani, where I received a MRI Authogram on both hips (PAINFUL) which revealed a torn labrium. Unfortunately, this doctor refused to perform the surgery I need.

    Today, a year later from Mt. Saini, I am still unable to find an orthopedic surgeon who is willing to touch me. Every one I have been calling has said they will not see anyone for this under 40 years old. I have an appointment this Friday with a pediatric orthopedic surgeon and am crossing my fingers that he is able to help me.

    Have any of you found it hard to find a willing doctor? If so what did you do?
    I am also quite scared for the surgery and the recovery – just for the fact that I do not know how long until I will be able to drive to work and how will I pay my bills. How long before you were able to return to work/drive?

  19. Maddie says:

    January 2013 I was diagnosed with a torn labrum, Femoral Acetabular Impingement, and Arthritis in my left hip. I am only 16 years old and even after the labral repair I dont feel as though the pain has gotten much better. My family had to move from North Carolina to Texas this summer so I was forced to go to a new orthopedist. I actually met with this new doctor last week and he suggested that I may have hip dysplasia in my left hip after looking at my x-rays recently taken. The pain feels deep and intense and it does tend to give me a “catching” sensation. I play intense softball and have always dreamed of pitching at the collegiate level. I have an appointment to get an MRI arthrogram next week. Any suggestions of what this pain could be? I guess Im just being indenial after researching what the hip dysplasia surgery requires. Praying that the dysplasia is not what I have.

  20. Samantha Waters says:

    Hi, my names Samantha and i am 16 and i got diagnosed with Hip dysplasia not so sure on what type. I am an athletic girl doing running and dancing, they told me i have had late development and being so athletic has made the signs more dominant. I Have it on both hips and only a few weeks ago i under went surgery on my left hip. I got told 6 weeks on crutches and 3 to 6 months full recovery. I have healed really well with coming out of hospital early, scars healing fast and being able to walk without crutches on my 6th week. My only concern is my left leg i have the surgery on my thigh is still numb and i’m really concerned on when the feeling will come back. If anyone has any experience the same please let me know. Thank you

  21. Amber says:

    @samantha waters

    I had my first PAO on my left hip about 3 years ago and just had my rift hip done about 5 weeks ago. My left thigh still has some numbness but I honestly don’t even notice it anymore! For months after my first surgery it really bothered me but the numbess has shrunk down to a pretty small area. My right side which I just had done still has a very large numb spot on my thigh and is quite annoying! I’m assuming the spot will shrink down much like my left side did. Hope this helps!

  22. Sheryl K. says:

    Wow I am in awe of this site after reading all the posts from the young gals (as mostly been gals I seen). I am so glad I found this site. We were told Sep 12, 2013 that our now 16 yr old (was 15) has hip dysplasia more in the right than the left. We were seeing an orthopedic specialist for about a yr or so as she supposedly pulled a hamstring left leg in Ph Ed in May 2012 (was diagnosed by regular family dr) but ended up seeing specialist & he put her in brace & crutches & PT it did get better but then it acted up again so back in brace & crutches. Well by Sep 2013 she was on crutches & braces mainly for over 6 months so when it improved again this time she needed very strict PT so went to Mayo Clinic & they “seen” she had to be taught to walk again–which sounded weird I know–but after spending an hour with PT she was out of her brace (even had dr throw it away) and she was given 2 weeks to wean off crutches but we left there with NO crutches. Well to go back a bit before we went to PT at Mayo–the orthopedic specialist sent us to Mayo ortho as he was “lost” to what was causing her knee pain for such a long time but first he took xrays of her hips & when they came back he asked if she was breech & I said no why? He said she has hip dysplasia right being worse then left so he sent us to Mayo Clinic ortho specialist & she told us what it was & what it meant for our daughter—arthritis for sure at much younger age than if not had it–IF she was diagnosed BEFORE 5 yrs old they could have done a surgery but cause she wasn’t now she said we would wait til she started getting hip pain before we would think of a different type of surgery they can do on older children like her—she explained surgery. Than after that apt was when we went to the PT for the hour “training”. Well just recently found out our daughter has been having pain in her hip as it had got so bad that she missed school yesterday & that is when she told us she had been having pain on & off but didn’t tell us as she does not want to go thru the surgery at such a young age. I told her it will only get worse & she can get arthritis in her hips (which Dr told us) & from my experience & her gramps told her she don’t want that. I found this site & been reading all day the different stories & the ones in the posts of the ones whom posted. I asked her to read some but she didn’t want to. But I know she experiences a lot of the pain many of the girls have also. The only difference in her and most of these is that she is not active in sports all she has to do with sports is in P.E.. I notice she can not stand/walk for long either without pain or even sit long either. Mainly the walking/standing pain from before we found out hip dysplasia she always said it was from her knees but I am wondering if it could “feel” like it is from her kneed but really in her hip? I know & understand more form her Dr at Mayo Clinic what could be in store for her future (and now from reading these posts esp from ones whom didn’t have the surgery at young age & how they were at older age)but she don’t realize what her future could be like (she has learning disability). How many of the teen girls went thru the surgery & what is their outcome form surgery & how long ago did they have it & one’s whom knew n was told as teen to have surgery but didn’t what happened to you (more pain/arthritis young/not enjoying life as in pain)? We do not want to put our daughter thru surgery at young age if it is NOT going to help/if she going to be in pain say in a yr or so later/get arthritis young age & IF she WILL have to have another surgery on hip in a yr or shortly after 1st? I know she will have to have it also on her left hip but right now her right is the worst. what does moderate hip dysplasia mean compared to mild? We live in MN. How many years “relief of pain” would she get if have surgery at 16 compared to waiting til hopefully like 30 or so? Please email me at s_kuether@hotmail.com your comments on either positive or negative about surgery as doubt if I will be able to find this site again—as it was “just happened upon”.

  23. cindy says:

    My daughter is 14, she has done jui jitsu and Kickboxing for 4 yrs, she also dances and recently made her high school cheer leading team. She has complained for about a yr of hip pain, she is very flexible and can do splits and other crazy things with her legs. She is able to pop her hips out of place on her own. She was just diagnosed with hip dysplacia in both hips, we are now waiting to see an orthopedic surgeon. I’m freaking out not knowing how severe her condition might be and what lies ahead for her. I feel sick that I didn’t realize what was going on with her hips and how serious this condition is. She has had to stop all sports. I guess I’m hoping to hear stories of full recoveries and girls getting back to pain free living and able to have active lives again. Bless all these girls and their families that have gone thru this as we begin this frightening journey.

  24. Julie M says:

    Hi just wanting to give an update on Whitney. I have been reading all of your stories and it is all so similar, but some differences. In August of 2013 we had a surgery at Shriners hospital. We went in to repair Whitney’s torn labrum in her hip. They came out of the surgery and said she did not have a torn labrum. This was confusing. They said they filed down a bone that may have been causing an impingement. Whitney has spent over a year recovering and still having a lot of hip pain. She is not playing sports any longer and just hurts going to school and sitting for long periods of time. Hiking, biking, etc all contributes to her pain. We decided to go back to the doctor who recommended a PAO surgery. He has now moved to Seattle. We have seen him and are going to set up a surgery for June 2015. It has been a process coming to a decision that this just was not a sports injury that might heal, but rather a symptom of hip dysplasia that is going to continue to cause her pain. I have heard some good reports about the PAO surgery reducing pain. My biggest fear it may cause new pain? I am hopeful that surgery will give Whitney some ability to become more active again! Let me know if you agree with this? Julie

  25. Penny says:

    Hi Julie – my 14 yr old athletic daughter was diagnosed with hip displaysia in both hips in spring 2015. We live near Portland, OR and went up to Seattle to see an orthopedic surgeon, that performs PAO surgery to correct hip joints. Is this the Dr that performed your daughter’s surgery? I hope it went well. I’d appreciate any info you can provide on your daughter’s surgeon and how things are going. Thank you.

  26. Andrea Denton says:

    Hello- my 20 year old daughter plays collegiate basketball. She is starting her Junior year. She had tremendous pain all last season & is now being told after x-Rays, that she has hip dysplaysia & needs surgery. I reside in Montana, she in North Dakota. I’m wondering who the surgeons are in Washington or anywhere else close that specialize in this surgery, that anyone has had good luck with. Thank you!

  27. Caitlin says:

    Hi there!

    I am in the exact same position with labral tears, dysplasia, and needing PAO surgery in Seattle. What is you experience with the doctors in the area and can you recommend anyone?? Thank you so much!


  28. Judy says:

    Hello Julie,
    I live in federal way, WA and Seattle isnt too far to commute for my daughter’s hip dysplasia.
    could you please tell us the dr who does PAO surgery in seattle?
    My daughter is four years old and she has complained about pain on her left thigh for last 6 months or a year. Dr diagnosed positional deformity of hip or hip dysplasia at birth since her left side of body from head to toe, including her left hip got flattened. I was informed it was due to lack of amniotic fluid during pregnnacy.
    Her Pediatrician decided to just watch on her but I am thinking about taking her to pediatric orthopaedic surgeon for consult. It breaks my heart to see my daughter not being able to run with other young kids. she has constant pain on her left thigh and I feel so sad to see her alone in the playground

  29. Frances says:

    Hi There –
    I am in my 50’s and have been very active all my life. I had surgery almost 3 years ago (FAO) diagnosed with dysphasia (not known for all these years that I was born with it). Clicking, etc. all these years but took until age 49 for pain to develop in both hips. The surgery improved me so much that the pain in the other hip has gone away mostly. Still have some pain (operation FAO not a 100% fix at my age) but pain is reduced greatly when I do my regimen of special strengthening exercises along with walking, etc. I visited several top surgeons in the Los Angeles area, and there are some great ones.

  30. shelly says:

    Hi my daughter was diagnosed with developement hip dysplasia at birth. She was born posterior. she has now just turned 15. We have been seen and been monitored over the past 15 years. Initially the orthopaedic surgeons wanted to perform surgery on her. I was conservative in my approach and felt it was right to wait till her pelvis had stopped growing at age 15. She is currently waiting to have a CT scan and see the ortho surgeon who specialises in this type of surgery. she will need both hips done; ie cutting the pelvis then tilting it to the correct angle getting full coverage of the femur bone then inserting screws to anchor the joint. Im hesitant too however she is very very fit and is a competive gymnast and horserider amongst many other sports(believe it or not) yes her hip clicks out regularly and she never complains of pain. I wonder if I should allow this surgery now and try to prolong the pain/hip replacement or not. its a difficult decision but at the moment Im leaning towards the surgery. We have gone to osteo’s etc and kept her body in top shape all her life. I just dont know if it prevents further surgery or not. if it help the pain in the meantime well there is not option. I hope this helps.

  31. Michelle says:

    My daughter is 11 yrs old and we just found out yesterday that she has some degree of hip displaysia.After reading all these posts…I realize I’m not the only scared mother.Ill back up a bit….my daughters pediatrician found a click in her right hip when she was couple months old and we were referred to orthopedic surgeon.After lots of x-rays found out she would need to be on full body harness due to hip out of place.But never was called hip displaysia.After 6 weeks and more x-rays it was confermed that my baby girl was supposedly all better and we could that brace off.I was so very happy because I couldn’t even hug my baby the right way or give her baths due to the brace.Anyway we thought this problem was over til she started complaining of pain in last couple years and now I’m blaming myself for not having her checked along the way.Maybe this could’ve been prevented.After reading all the posts I’m little angry at drs for not informing me better on what could come of this later.But for now I just hope and pray it’s not so bad that she will need surgery.Please any suggestions or comments would be greatly be appreciated and I would love to hear how any one of you are doing now
    Prayers really do help and mine are with you all

  32. Julie says:

    Hello, I feel for you and your worries for your daughter. We had many doctors look at Whitneys hips and the all had different opinions of what we should do. We were signed up to have a PAO surgery and backed out because we were not sure if we should put her through that and if we might have new issues when we were done. That was when she was 14. She is now 18 at college. She has hip pain sometimes worse than others and just learns how to deal with it depending on the situation. It hurst when she sleeps at night also. I am not sure if we made the right decision or at some point she will decide to get a surgery, but for now that was our choice. You will be in our prayers, many do well with a PAO.

  33. Valencia Sieta says:

    Good morning my daughter was diagnosed with hip dysplasia in June and is scheduled for surgery in November, she is always in pain and miss out on school a lot I am so worried about her is their anyway that I can help her while she awaits surgery. I am trusting God that this surgery will ease her pain as she is constantly on pain medications. Its so bad that we frequently have to go to the doctor for an injection. please advice if you have any home remedies or something anything we can do to ease her pain.

  34. Giveypup says:

    Chased a reliable diagnosis for my 25 year old daughter for bilateral hip pain, for 7 years, now. She had a labrum trim, which did nothing to stem her pain, and she was seen by physicians all over the place. Even though her hips are severely anteverted, that is no longer thought to be driving the pain (she does NOT toe in). First surgeon recommended a derotational, femoral osteotomy, which the second surgeon said would make her stiff and toe-in. After finally doing a hip to ankle CT, which I had asked all of the orthopedists about doing, over the seven years, the penultimate hip specialist did the study, and it has been deterined that she needs bilateral PAOs (with or without scoping). She is likely going to have the first of two PAOs, this December, and I am just hoping that this will stem her chronic hip pain and inability to sit for any length of time. She has been doing her life, using a standing desk, and suffers silently. Even more ironic is that she is a third-year medical student, who will be going into surgery, and she has become very cynical about the success of surgery. But she was rightfully very skeptical about the first hip surgery proposed (the derotational, femoral osteotomy) and right in her instincts that it was the wrong surgery. She trusts the two latest surgeons that what she needs is a PAO since the head of her femur and pelvic socket are misaligned. Just praying that this will mitigate/eliminate her hip pain and allow her to sit. She also has painful knees and is seeing on of the top knee orthopedists in the country to evaluate that. I still don’t know if the PAO will in anyway impact her knee pain, or if she her knees are torsioned. She had studies for her knees, which will be evaluated by the knee orthopedist. The hip surgeon isn’t commenting. Where we are. Just really want to know if PAOs for hip displaysia/difficulty with sustained sitting resolved people’s pain.

  35. Amanda says:

    MY name is Amanda a 16 year old and I just recently went through with the PAO surgery myself. I was in competitive dance for five years and I tore my hip flexor, which started this all. I was on crutches and when the pain didn’t subside I went to many doctors and nobody did an MRI only x-rays. When nobody gave me any answers for my pain that was at level 10000x I went to a hip specialist. After seeing 24 different doctors I found my doctor who did my surgery, My hip Dysplasia was not only terrible, but I only had maybe 30% coverage. I also received many hip injections for my pain, which helped but didn’t at the same time. The doctor got me in for my surgery in less then 2 months, I am currently 3 months post op, I am doing fairly well! I would most definitely recommend getting this surgery IF needed. This surgery has helped me overcome over 50% of my pain.

  36. WorriedMom says:

    My nearly 12 year old daughter was diagnosed at birth and the harness and spica casts helped her right hip but not left hip. At 2.5 years old they did pelvic osteotomy to help reshape her left hip socket, and we got xrays every year and the orthoped. surgeon kept saying “good enough for now, we need to keep an eye on it but nothing else to do for now” But now at almost 12 years old xrays are showing it is still uncovered quite a bit and she is starting to have hip pain sometimes like when we walk over 5 miles or so in a day or when she plays sports for several hours during a tournament.

    We are going to get 2nd opinion but so far they are saying PAO – but of course she says it doesn’t hurt and I don’t want to make her get this surgery if she isn’t in pain yet because I hear the recovery is super painful and long. Anyway, if any of you have thoughts on waiting/not waiting, and if you waited, what you could do to prevent or minimize pain (like exercise? stopping impact sports?) I’d like to hear your stories.

  37. Kelly McKay says:

    Hello all I have a a daughter who is 12 and has bilateral hip dysplasia. From birth previous treatmonts from birth to 8/9months of cast did not work. Docs said to leave her be and have surgery when she stopped growing. Up until 2 years ago she was found to have rheumatoid arthritis as well as scoliosis in her lower back. She is and has been in so much pain. Missing slot of school.. Her daily life has is hard for to deal with. Pain killers not helping. Just wondering has anyone dealt with having scoliosis and Hip dysplasia at the same time?? Docs had suggested physio for scoliosis but that seems to be causing more pain in her back neck and legs knees. I just wonder how this would be treated. I mean surley if the hips are disclocated and left that way the spine will be affected.. I don’t know.. I’m a mum at her wits end trying to find answers..

  38. Erin says:

    Hi all. Did anyone have a tween or young teen go through with the PAO? My 20 year old daughter is scheduled in November for her first and she will have the second 12 months later. I would love to head any experiences in this age bracket. Thanks

  39. Keytlyn says:

    Hi I’m 21 years old and I had the POA surgery and I was diagnosed when I was in the military in boot camp. They discharged me because of my hip dysplasia and I actually got worse because of the training I went through in boot camp, I didn’t know I had this condition till they gave me MRI in Missouri where I was at in training, I never felt so much pain in my life, I walked funny, the pain would get worse everyday, I would cry to the point were I would’ve have to sit or wait it out till it stopped which was a couple hours, when I got home in AZ my parents and decided to look into what doctor or what hip dysplasia was and we tried calling for doctors who specialized in that and how to fix me, took about a year later to find one and when we Finally found one doctor that specialized in it, it was Mayo Clinic the orthopedic department that we found, we scheduled an appointment and finally the doctor knew what was talking about and how to help me, we decided to have the POA surgery and I was so nervous of what would happen and how the results would be, I wait about a couple months before I want to get my surgery done, I had appointments to see how bad my hips were, both sides unfortunately were bad and my left hip was the most severe one, I have tear cartilage on it so it’s basically was rubbing bone to bone which isn’t good, so he told me the surgery would be critical and that he would do his best to rotate it and place to the way it should be and hope that the cartilage would heal it’s self, i had my surgery on May 26 of 2020 and it’s been a week since and I’m home now trying to recover but honestly it’s been hard since I came out of the hospital. I’m healing but it’s very hard physically and mentally because it’s such a big surgery and recovery that I’m praying I get to where I wanna get.

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