Hayden’s Story

Hayden was diagnosed with bilateral hip dysplaysia at birth. At the 6 week mark the right hip had fixed itself, but the left was still a complete dislocation. After struggling with the pediatrician in a far remote arctic community, I advocated on my baby’s behalf for us to be sent down to see a pediatric ortho surgeon.

They tried to convince me that we would be able to wait until she was 5 months old to have her hips looked at, I refused to leave the office until they put the referral in. At nine weeks old she was placed in the pavlik, for 8 weeks 24/7. This was devestating, I cried for weeks and wondered what I had did wrong. It was like grieving a loss. I wasn’t able to hold my newborn baby like everyone else around me. It was a dark period in my life….

She progressed and was allowed into a rhino brace for 14 hours a day, then 12, then 8, then every other night. This was over the course of 7 months. We adjusted and it was second nature for us. The next worrisome part was her 1 year follow up, in which she was scheduled for an x-ray, I was a wreck a month prior, with constant worry that her hips were not growing at the rate her body was.

To my pleasant surprise, her X-ray results came back perfect! Such a weight lifted off my shoulders!!! I was probably the happiest I have been in a long time. Her legs have become bowed due to the rhino so we have a follow up I’m a year to see what her legs will be like them. BUT that is nothing in comparison to the journey we just endured. She is a reliant little girl ….

I guess what trying to say is for other hip babies who have been diagnosed and their families is that although the journey may be long and dark. There is a light at the end of the tunnel! All the best in your journeys and I hope each and everyone of your babies has an outcome like mine did. Xo




Is this your story? Log in to reply to comments.

Leave a Reply

  • Call to Action Buttons

  • Email Sign Up

    Email Sign Up
  • Social Media Links

  • Translate Link

    Para ver en Español Click Aquí

  • SubNav Menu

  • Latest News

    Latest News

    Submit a Story

    Participate in a Bracing Survey

    May 21

    Please help us understand your experience with brace treatment for De...

    Postponed Treatment Option for Older Infants

    May 07

    Surgery may be postponed for hip dysplasia because of limited surgica...

    Suggestions for Managing DDH in a Resource-Limited...

    Apr 03

    Authors: International Hip Dysplasia Institute Pandemic Work Group: P...

  • Latest Stories

    Latest Stories

    Submit a Story

    Sarah Rowlands

    Apr 30

    Hello all So i thought i'd like to share a shortened down version of ...

    Chelsey

    Apr 02

    Hello everyone, my name is Chelsey. Growing up I played travel softbal...

    Lauren

    Apr 01

    I was 36 years old when I was diagnosed with congenital hip dysplasia....